Tammy,

It is listed as one of the 4 main criteria (I think it has been said that it is not necessary to have advanced bone age…I think someone heard that a conference or something) Kevin was 2 years advanced at age 2. 

Pam J   

I have never heard of that before.  Advanced bone age during the first 5 years is one of the characteristics of Sotos

----- Original Message -----

From: rodomier

To: Sotosyndrome@yahoogroups.com

Sent: Tuesday, July 14, 2009 11:27 AM

Subject: [Sotosyndrome] Contradictory X-Ray Result

Yesterday we were informed by the genetic counselor that genetic testing will take 4-6 weeks to get results but that the X-Ray from the hand/wrist showed bone age underdeveloped for chronological age (4.5 yr boy) rather than aged as documented for SOTOS. Please comment on this unusual finding...I am puzzled. What percentage of the children with sotos have this older bones feature? What about younger bones? Had any one experienced this with your children diagnosed with Sotos? Please share your experiences to try to make sense of this.

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