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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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FW: [Sotosyndrome] Contradictory X-Ray Result   Message List  
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I have never heard of that before.  Advanced bone age during the first 5 years is one of the characteristics of Sotos

 

----- Original Message -----

From: rodomier

Sent: Tuesday, July 14, 2009 11:27 AM

Subject: [Sotosyndrome] Contradictory X-Ray Result

 

Yesterday we were informed by the genetic counselor that genetic testing will take 4-6 weeks to get results but that the X-Ray from the hand/wrist showed bone age underdeveloped for chronological age (4.5 yr boy) rather than aged as documented for SOTOS. Please comment on this unusual finding...I am puzzled. What percentage of the children with sotos have this older bones feature? What about younger bones? Had any one experienced this with your children diagnosed with Sotos? Please share your experiences to try to make sense of this.


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Tue Jul 14, 2009 6:00 pm

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It used to be one of the 4 main criteria, but I think (if I recall from others posting) that it is not always present, but is very common with Sotos. Kevin...
Pam
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