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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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UK Conference

Susan,
Sounds like everyone enjoyed the UK conference.  I had a feeling since I couldn't find anything online regarding Joanna's paper that it wasn't ready yet but I hope the talk she gave went well and was informative.  I will be interested to read it when she does publish it.  My 13 yr old daughter is having a hard time at school and would just like to seclude herself away from the world right now.  She started seeing a behavioral specialist last month and after a few visits we are ready to find out on Wednesday what goals and work we have to do to help her with her socializing skills.
Take care,
Kristin


Tue Oct 3, 2006 3:15 am

sotos196
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Dear Matt, It was lovely to meet you although it was briefly at least i can put a face to your name and that helps a lot. Arrived home late yesterday due to...
joycecummings1@...
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Oct 2, 2006
8:28 pm

Susan, Sounds like everyone enjoyed the UK conference. I had a feeling since I couldn't find anything online regarding Joanna's paper that it wasn't ready yet...
Kristin Gilbertson
sotos196
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Oct 3, 2006
3:42 am

Hi, I'm donna and have a 12 year old son with sotos (Zak), and live in Colorado. Sorry if I am repeating something you already know, but there is an annual...
donnarlee@...
donnartleef
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Feb 14, 2008
7:41 pm

Hi Donna The format for the last 2 years that I have attended has been for all families to get together for the first half an hour, then the different growth...
shannick145
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Feb 15, 2008
11:31 am
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