Sotosyndrome : Message: To Robin

Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others

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Message #42771 of 69838 |

To Robin

Hi Robin

I noticed you said that Chris "scoots his feet". I've not heard of that expression before. Do you mean he drags/scrapes his feet along the ground? Shannon does that all the time but I thought it was a behavioural thing. Do you think there is a physical reason?

Susan UK

Mon May 1, 2006 6:23 pm

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"Susan Smith" <shannick@...>

shannick145

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Message #42771 of 69838 |

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Hi, this is Beata. I can exactely relate to what you are going trough now. It must be so hard on you , especially with the 9 months old baby. I have my Jason -...	dontaskmychildtoforgi... dontaskmychi...	Jul 4, 2002 2:47 am
Beata, I have no advice, for you, Chris is soon to be 10, and I still find him glued to my hip along with the babies. lol. I can say, he isn't on my hip as...	Kenneth Cowley cowley3b	Jul 4, 2002 5:05 am
Could I please have your mailing address. I would like to send you a copy of the book " Child psychiatry - drugging and betraying our children for profit ". I...	dontaskmychildtoforgi... dontaskmychi...	Jul 6, 2002 3:24 pm
Hi Robin I noticed you said that Chris "scoots his feet". I've not heard of that expression before. Do you mean he drags/scrapes his feet along the ground?...	Susan Smith shannick145	May 1, 2006 6:23 pm
Susan, Yes, I meant drags, wears out the bottom before he should. I was told by his PT that it was a depth perception thing. That he does this due to the...	Robin Cowley cowley3b	May 1, 2006 10:52 pm
My son who has sotos at twelve years old, still drags his feet, I didn't know it was a depth perception thing. Thanks for the info. Lisa ... From: Robin...	Calentra calentra2003	May 2, 2006 12:26 am
YW, That is what Chris' PT said. Our Doctors may say something different, I am going to trust the PT as that's the area they specialize in. Robin Calentra...	Robin Cowley cowley3b	May 2, 2006 12:34 am
... perception and that he did not realize he controlled the feet, he was taught and told to walk on his heels to remind him they would say heel toe heel toe...	abjkv99	May 2, 2006 4:13 pm
Hi Robin Chris is such a handsome young man and I would never have guessed there was anything wrong. I am sorry I can't remember how tall you have said he is,...	Susan Smith shannick145	May 2, 2006 9:57 am
Susan, Chris is 13 yrs old and stands 5'8", his shoe size is a 13 in mens. He wears a size 32/30 in mens jeans. Thank you, I think he is handsom too, but I...	Robin Cowley cowley3b	May 2, 2006 12:26 pm

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