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Sotosyndrome · Sotos and other Early Over Growth Syndro

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For the parents/grandparents raising children diagnosed with SOTOS, WEAVERS and other Early Overgrowth SYNDROMES. Come share your concerns/achievements with others in the same situation.

We are individuals sharing our experiences regarding our own children. We are not medical experts and our opinions should never be substituted for the medical professionals who are taking care of your children.

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Re: Heart Attack Nr. 4
Ah, I can understand his concerns about the drive. That's a long way to drive. Would you and Andy have someone driving with you? Kellie Rotten Rottie Mama
Posted - Sun May 27, 2012 9:05 pm
Kellie Taylor Penny
rottiemamadogs
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Re: Heart Attack Nr. 4
The doc and I are going to have a talk about that in two weeks. He cancelled me out on a 50 anniversary celebration in Gatlinberg for my son's inlaws we were
Posted - Sun May 27, 2012 9:00 pm
Ed St.Clair
coloradoramled
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Re: Heart Attack Nr. 4
You'd better be around to haunt us. I, for one count on your voice of wisdom and experience in my more troubled days with Daniel. Do you think you'll be in Van
Posted - Sun May 27, 2012 8:50 pm
Kellie Taylor Penny
rottiemamadogs
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Heart Attack Nr. 4
So here I am, Thursday afternoon, venting my spleen on a certain unnamed politician, when my chest started hurting. Despite what I preach about going in when
Posted - Sun May 27, 2012 5:53 pm
Ed St.Clair
coloradoramled
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Re: Fw: Sotos and "Joint Hypermobility Syndrome"
That's how I took what he was saying. Insurance companies love the word "syndrome" anyway. They use it as an excuse to deny. I hate insurance companies. Kellie
Posted - Fri May 25, 2012 9:24 pm
Kellie Taylor Penny
rottiemamadogs
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