Sotosyndrome : For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others

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For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others in the same situation.

anyone in texas is their any who has it thenselves. im 23 and liveing with it but dont know anyone else who has soto syndrome anyone in flower mound tx ... From: yvetten08 Posted - Sun May 18, 2008 11:16 am	jacklynpeace@... Send Email
Anyone in Central California? I would like to meet other kids with sotos and their parents. I live in Merced California. Is there anyone in this area? Posted - Sun May 18, 2008 5:31 am	yvetten08 Offline Send Email
Re: Genetic Blood Test Confirms Sotos Syndrome Julie, Welcome to the group. My name is Kellie. My son, Daniel, is five and has Sotos-like. You will find a lot of useful information on this site. Kellie Posted - Sun May 18, 2008 2:09 am	Kellie rottiemamadogs Offline Send Email
special needs trusts Just wondering if anyone has a special needs trust and how it works. Do they ask how you want it set up or what. Kathy Posted - Sun May 18, 2008 12:55 am	james candy jkcandy2000 Offline Send Email
Re: Does anyone have a teenager with sotos with trouble about bathin My Mom works with a guy who has a nephew with Sotos and a few years ago she told me the story about that boy not wanting to bathe or shower. Turns out that he Posted - Sun May 18, 2008 12:52 am	Kellie rottiemamadogs Offline Send Email
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