Sotosyndrome : For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others

For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others in the same situation.

How do you explain Sotos Syndrome to others? It really depends on who's commenting. If it's the parent of another special child I just say that it's part of his syndrome. If it's a complete stranger I Posted - Tue Dec 8, 2009 12:53 am	rschmelczer Offline Send Email
Re: How do you explain Sotos Syndrome to others? LOL. I love your response Tammy ... From: ccnvcabin@... To: Sotosyndrome@yahoogroups.com Sent: Monday, December 07, 2009 2:09 PM Subject: Re: Posted - Mon Dec 7, 2009 8:33 pm	Tammy Burtt tammy_jesses... Offline Send Email
Re: How do you explain Sotos Syndrome to others? Yea I am with you on that. I would have some choice words as well. Tammy C In a message dated 12/7/2009 11:19:08 A.M. Pacific Standard Time, Posted - Mon Dec 7, 2009 7:22 pm	ccnvcabin@... smashsis Offline Send Email
Re: How do you explain Sotos Syndrome to others? Tammy, I think that's really funny! LOL. I may have to do that. When people say he's "really tall" I just say "yes, he is". THey don't mean anything by it so Posted - Mon Dec 7, 2009 7:18 pm	Kellie Siers rottiemamadogs Offline Send Email
Re: How do you explain Sotos Syndrome to others? These are all great suggestions - thanks I now have a more "short & sweet" way of describing Hunter. One thing I catch myself doing A LOT is when people say: Posted - Mon Dec 7, 2009 7:09 pm	ccnvcabin@... smashsis Offline Send Email
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