anyone tried the medical pot? i think i need it and im in wa where its legal

doctors didnt bring it up just neruontin which im afraid to try and never did


[Non-text portions of this message have been removed]

Thank you for your information. Would you list exactly and specifically what
your friend used to eliminate her PHN?

Lisa

On Mon, Nov 2, 2009 at 1:37 AM, maustorixor <maustorixor@...> wrote:

>
>
> Hi Everyone,
>
> I recently started a site just for shingles and postherpetic neuralgia. I
> have included as much information as possible in a short period of time. My
> girlfriend acquired a very severe case of shingles which led to very severe
> PHN. It was a result of drug therapy for chronic kidney disease (she has
> lupus nephritis which has led to a series of complications).
>
> Her PHN pain was so severe that hardly anything short of strong narcotics
> helped. We've successfully gotten her OFF the pain drugs using a topical oil
> and herb compress for the nerve damage. She still has pain but it continues
> to decrease.
>
> I hope everyone will check out my site and provide me with plenty of
> feedback. I do not claim to be an expert, I just want to help others after
> seeing what Emily has gone through (not to mention all that research I did).
> Any information you have to share is welcome. If you find the site helpful
> please let me know! I greatly appreciate your support, Thank You!
>
> www.CureShingles.info
>
> Carl
>
>
>


[Non-text portions of this message have been removed]

Hi Carl
Great website, a lot of your links seem to go to http://www.amoils.com/, does
this mean that this is the treatment your girlfriend used?
Please excuse me for being suspicious, I have seen many websites set up to
"help" sufferers of PHN and shingles only to discover that they are selling some
'miracle cure'.  Could you tell us in detail what the topical oil and herb
compresses you used and how long she had PHN.
Thanks
Nicola




________________________________
From: maustorixor <maustorixor@...>
To: Shingles-PHN@yahoogroups.com
Sent: Mon, 2 November, 2009 6:37:38
Subject: [Shingles-PHN] CureShingles.info Free, New site for natural &
conventional treatments


Hi Everyone,

I recently started a site just for shingles and postherpetic neuralgia.  I have
included as much information as possible in a short period of time.  My
girlfriend acquired a very severe case of shingles which led to very severe PHN.
It was a result of drug therapy for chronic kidney disease (she has lupus
nephritis which has led to a series of complications) .

Her PHN pain was so severe that hardly anything short of strong narcotics
helped.  We've successfully gotten her OFF the pain drugs using a topical oil
and herb compress for the nerve damage.  She still has pain but it continues to
decrease.

I hope everyone will check out my site and provide me with plenty of feedback. 
I do not claim to be an expert, I just want to help others after seeing what
Emily has gone through (not to mention all that research I did).  Any
information you have to share is welcome.  If you find the site helpful please
let me know!  I greatly appreciate your support, Thank You!

www.CureShingles. info

Carl







[Non-text portions of this message have been removed]

Glad you are seeing improvement.I take a prescription strength fish
oil,Lovaza.It is prescribed for high cholesterol.It's really hard to say what is
helping because I am trying all manner of treatments.
"look at progress from week to week and not be too worried going from one day to
the next."
Good advice,I am trying to be in the moment and not fret about will this
last,how long,is the pain gonna be worse tomorrow?I do the best I can on any
given day.I would appreciate the information you got from your friend.
Thanks,O'Livia



________________________________
"Turn your face to the Sun and all shadows fall behind"








































________________________________
From: onereivers <reivers@...>
To: Shingles-PHN@yahoogroups.com
Sent: Wed, October 28, 2009 8:44:42 PM
Subject: [Shingles-PHN] getting better


I'm in week five and starting to notice improvement.  I've read through a lot of
the archives on this group and learned a lot.  It was interesting to see that
some have been helped by taking fish-oil, B6, B12 & zinc.  I feel that
improvement started when I began the fish oil.  A company called Barlean's is
located not far from here and they have a high reputation.  They have a product
called 'Omega Swirl' that tastes like an orange slushy (not fishy at all).  In
the meantime I discovered that Ben & Jerry's 'Chunky Monkey' made me feel
better, so there you go.  It could be anything.

Changing topics: I have a good friend who is a local Anesthiologist.  Shaun sent
me a medical paper regarding pain management that was mostly over my head.  But
it did explain a few things about how the medical field is approaching pain
issues.  If you are interested in a copy I can email one to you as an
attachment.  In looking over the old messages here I see that for some, this
issue is the main struggle in their lives.  More information is good.

Shaun also told me to only look at progress from week to week and not be too
worried going from one day to the next.  Those words helped.

Blessings,
Reivers







[Non-text portions of this message have been removed]

I'm in week five and starting to notice improvement.  I've read through a lot of
the archives on this group and learned a lot.  It was interesting to see that
some have been helped by taking fish-oil, B6, B12 & zinc.  I feel that
improvement started when I began the fish oil.  A company called Barlean's is
located not far from here and they have a high reputation.  They have a product
called 'Omega Swirl' that tastes like an orange slushy (not fishy at all).  In
the meantime I discovered that Ben & Jerry's 'Chunky Monkey' made me feel
better, so there you go.  It could be anything.

Changing topics: I have a good friend who is a local Anesthiologist.  Shaun sent
me a medical paper regarding pain management that was mostly over my head.  But
it did explain a few things about how the medical field is approaching pain
issues.  If you are interested in a copy I can email one to you as an
attachment.  In looking over the old messages here I see that for some, this
issue is the main struggle in their lives.  More information is good.

Shaun also told me to only look at progress from week to week and not be too
worried going from one day to the next.  Those words helped.

Blessings,
Reivers

I forgot to say that when you look on Gary Craig's site you should check out the
certification and your prefered counsilor carefully.  This is a new thing and
they are working hard to get certifications into place so that the practice
stays correct.  Also, this technique is not like therapy or accupuncture:  you
do it yourself.  You don't have to have lots of sessions and pay a bunch of
money.  Maybe two or three sessions to get down to the issue and learn the
tapping.

If it doesn't work right away don't get strung along.  I won't like it if
somehow a bad person profits from anyone's misfortune.  (I don't know of any bad
EFT people, I just feel awkward - like I'm putting something out there too much.
Please do your own research.)

If you try this pick someone you trust.  They don't have to be local.  My wife
has worked over Skype with people in Europe and out of state (we live in
Washington).  She has also met with people once, then just do the rest over the
phone.

--- In Shingles-PHN@yahoogroups.com, reivers@... wrote:
>
>
>
> The EFT is done for yourself after you learn it.  If you look on the Emo-Free
site you might find someone local.  But check them out really good.  Like
anything there is a lot of personal interpretation.  Gary Craig has been
working hard to get a certification system in place so that the practice stays
true.  I better say this to the whole group. 
>
>
>
> My wife has worked with people in Europe using the Skype thing over the web. 
This way there is the video so she can show them what to do and they can see
what to do.  She has also just done telephone consultation, but you need at
least the pictures of the tapping points.  I don't think she's done PHN
people.  Just M.S. and phobias and things. 
>
>
>
> Because it's so highly stress related, I think this could work. 
>
>
>
> rd
>
>
>
> ----- Original Message -----
> From: "Connie OLivia" <wyrddreina@...>
> To: Shingles-PHN@yahoogroups.com
> Sent: Sunday, October 25, 2009 9:35:45 AM GMT -08:00 US/Canada Pacific
> Subject: Re: [Shingles-PHN] PHN and EFT
>
> Thanks for the EFT url,I will check it out.I live in a rural Tx town,making it
hard to find someone to do acupuncture.Only one chiro in this area does it and
his technique is lacking.
> I have been encouraging my friends and family to get the shingles
vaccine,prior to this I did not know it existed,nor did I know that shingles was
so hard on the body and the mind.I take it on myself to spread the word.
> O'Livia
>
>  
>
> ________________________________
> "Turn your face to the Sun and all shadows fall behind"
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>                                                   
                           
>
>
>
>
>
>
>
>
> ________________________________
> From: onereivers <reivers@...>
> To: Shingles-PHN@yahoogroups.com
> Sent: Sun, October 25, 2009 10:59:38 AM
> Subject: [Shingles-PHN] PHN and EFT
>
>   
> Hi.  I'm just finding out about shingles and PHN.  Due to thinking of myself
as a tough guy, this pain has been a harsh teacher.  I wouldn't take my
Exocodon pill until I can't function.  (I've been dumb)
>
> But it turns out my wife is an EFT counsilor.  She wants to try EFT on me,
but I've been resistant.  It seems like 'woo-woo-voodoo' to me.  Reading
everyone's stories is sobering.  I'm going to get more serious about the
options.  My brother told me about www.NIH.com and med-line for current medical
info.  My friend is an Aniethsiologist and has written a peer-reviewed paper
about PHN (he's sending me a copy).
>
> Question:  how is it that such a debilitating disorder is not driving wide
acceptance of the highly effective vaccine?  -Seems like the high cost of
stupid to me.   I would have run, walked or crawled to the vaccine if I had
known what I was in for.
>
> rd
>
> Oh, the EMO-free website is by the founder, Gary Craig.  My wife's website is
just www.tapforhealing. com
>
> --- In Shingles-PHN@ yahoogroups. com, Charles Van Dyke <cvandyke@ .> wrote:
> >
> > At 11:23 PM 8/22/2007, you wrote:
> > >Anyone know of any herbal remedies?
> > >I'd much rather try that than put another chemical into my body.
> > >Or even get stuck by another needle.
> >
> > Hi,
> >
> > I don't know much about it, as it was recommended to me by a friend. The
nice thing is that it is free (download the pdf file and follow the
instructions, you do not really have to buy anything). A lot of people claim all
kinds of relief. It is called EFT. The website is www.emofree. com
> >
> > Nothing to lose except a bit of time. There are no drugs and you do not even
have to believe that it works.
> >
> > Best of luck,
> >
> > Charlie
> >
>
>
>   
>
>
>       
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

You can learn quite a bit about EFT on youtube.

Joan


























The EFT is done for yourself after you learn it.  If you look on the Emo-Free
site you might find someone local.  But check them out really good.  Like
anything there is a lot of personal interpretation.  Gary Craig has been working
hard to get a certification system in place so that the practice stays true.  I
better say this to the whole group.



My wife has worked with people in Europe using the Skype thing over the web. 
This way there is the video so she can show them what to do and they can see
what to do.  She has also just done telephone consultation, but you need at
least the pictures of the tapping points.  I don't think she's done PHN people. 
Just M.S. and phobias and things.



Because it's so highly stress related, I think this could work.



rd



----- Original Message -----

From: "Connie OLivia" <wyrddreina@...>

To: Shingles-PHN@yahoogroups.com

Sent: Sunday, October 25, 2009 9:35:45 AM GMT -08:00 US/Canada Pacific

Subject: Re: [Shingles-PHN] PHN and EFT



Thanks for the EFT url,I will check it out.I live in a rural Tx town,making it
hard to find someone to do acupuncture.Only one chiro in this area does it and
his technique is lacking.

I have been encouraging my friends and family to get the shingles vaccine,prior
to this I did not know it existed,nor did I know that shingles was so hard on
the body and the mind.I take it on myself to spread the word.

O'Livia







________________________________

"Turn your face to the Sun and all shadows fall behind"







________________________________

From: onereivers <reivers@...>

To: Shingles-PHN@yahoogroups.com

Sent: Sun, October 25, 2009 10:59:38 AM

Subject: [Shingles-PHN] PHN and EFT





Hi.  I'm just finding out about shingles and PHN.  Due to thinking of myself as
a tough guy, this pain has been a harsh teacher.  I wouldn't take my Exocodon
pill until I can't function.  (I've been dumb)



But it turns out my wife is an EFT counsilor.  She wants to try EFT on me, but
I've been resistant.  It seems like 'woo-woo-voodoo' to me.  Reading everyone's
stories is sobering.  I'm going to get more serious about the options.  My
brother told me about www.NIH.com and med-line for current medical info.  My
friend is an Aniethsiologist and has written a peer-reviewed paper about PHN
(he's sending me a copy).



Question:  how is it that such a debilitating disorder is not driving wide
acceptance of the highly effective vaccine?  -Seems like the high cost of stupid
to me.   I would have run, walked or crawled to the vaccine if I had known what
I was in for.



rd



Oh, the EMO-free website is by the founder, Gary Craig.  My wife's website is
just www.tapforhealing. com



--- In Shingles-PHN@ yahoogroups. com, Charles Van Dyke <cvandyke@.. .> wrote:

>

> At 11:23 PM 8/22/2007, you wrote:

> >Anyone know of any herbal remedies?

> >I'd much rather try that than put another chemical into my body.

> >Or even get stuck by another needle.

>

> Hi,

>

> I don't know much about it, as it was recommended to me by a friend. The nice
thing is that it is free (download the pdf file and follow the instructions, you
do not really have to buy anything). A lot of people claim all kinds of relief.
It is called EFT. The website is www.emofree. com

>

> Nothing to lose except a bit of time. There are no drugs and you do not even
have to believe that it works.

>

> Best of luck,

>

> Charlie

>











[Non-text portions of this message have been removed]



------------------------------------



Yahoo! Groups Links



[Non-text portions of this message have been removed]






















_________________________________________________________________
Windows 7: I wanted more reliable, now it's more reliable. Wow!
http://microsoft.com/windows/windows-7/default-ga.aspx?h=myidea?ocid=PID24727::T\
:WLMTAGL:ON:WL:en-US:WWL_WIN_myidea:102009

[Non-text portions of this message have been removed]

The EFT is done for yourself after you learn it.  If you look on the Emo-Free
site you might find someone local.  But check them out really good.  Like
anything there is a lot of personal interpretation.  Gary Craig has been
working hard to get a certification system in place so that the practice stays
true.  I better say this to the whole group. 



My wife has worked with people in Europe using the Skype thing over the web. 
This way there is the video so she can show them what to do and they can see
what to do.  She has also just done telephone consultation, but you need at
least the pictures of the tapping points.  I don't think she's done PHN
people.  Just M.S. and phobias and things. 



Because it's so highly stress related, I think this could work. 



rd



----- Original Message -----
From: "Connie OLivia" <wyrddreina@...>
To: Shingles-PHN@yahoogroups.com
Sent: Sunday, October 25, 2009 9:35:45 AM GMT -08:00 US/Canada Pacific
Subject: Re: [Shingles-PHN] PHN and EFT

Thanks for the EFT url,I will check it out.I live in a rural Tx town,making it
hard to find someone to do acupuncture.Only one chiro in this area does it and
his technique is lacking.
I have been encouraging my friends and family to get the shingles vaccine,prior
to this I did not know it existed,nor did I know that shingles was so hard on
the body and the mind.I take it on myself to spread the word.
O'Livia

 

________________________________
"Turn your face to the Sun and all shadows fall behind"































                                                    
                         








________________________________
From: onereivers <reivers@...>
To: Shingles-PHN@yahoogroups.com
Sent: Sun, October 25, 2009 10:59:38 AM
Subject: [Shingles-PHN] PHN and EFT

  
Hi.  I'm just finding out about shingles and PHN.  Due to thinking of myself
as a tough guy, this pain has been a harsh teacher.  I wouldn't take my
Exocodon pill until I can't function.  (I've been dumb)

But it turns out my wife is an EFT counsilor.  She wants to try EFT on me, but
I've been resistant.  It seems like 'woo-woo-voodoo' to me.  Reading
everyone's stories is sobering.  I'm going to get more serious about the
options.  My brother told me about www.NIH.com and med-line for current medical
info.  My friend is an Aniethsiologist and has written a peer-reviewed paper
about PHN (he's sending me a copy).

Question:  how is it that such a debilitating disorder is not driving wide
acceptance of the highly effective vaccine?  -Seems like the high cost of
stupid to me.   I would have run, walked or crawled to the vaccine if I had
known what I was in for.

rd

Oh, the EMO-free website is by the founder, Gary Craig.  My wife's website is
just www.tapforhealing. com

--- In Shingles-PHN@ yahoogroups. com, Charles Van Dyke <cvandyke@.. .> wrote:
>
> At 11:23 PM 8/22/2007, you wrote:
> >Anyone know of any herbal remedies?
> >I'd much rather try that than put another chemical into my body.
> >Or even get stuck by another needle.
>
> Hi,
>
> I don't know much about it, as it was recommended to me by a friend. The nice
thing is that it is free (download the pdf file and follow the instructions, you
do not really have to buy anything). A lot of people claim all kinds of relief.
It is called EFT. The website is www.emofree. com
>
> Nothing to lose except a bit of time. There are no drugs and you do not even
have to believe that it works.
>
> Best of luck,
>
> Charlie
>


  


      

[Non-text portions of this message have been removed]



------------------------------------

Yahoo! Groups Links





[Non-text portions of this message have been removed]

ive heard of elf

im in wa too

few get the shingles? or do many?

few are so lucky like me to get it in eye

stay away from sugar robusta cofee stress news politics  beer   maybe the cooler
weather is why i feel better i dont know

[Non-text portions of this message have been removed]

Thanks for the EFT url,I will check it out.I live in a rural Tx town,making it
hard to find someone to do acupuncture.Only one chiro in this area does it and
his technique is lacking.
I have been encouraging my friends and family to get the shingles vaccine,prior
to this I did not know it existed,nor did I know that shingles was so hard on
the body and the mind.I take it on myself to spread the word.
O'Livia



________________________________
"Turn your face to the Sun and all shadows fall behind"








































________________________________
From: onereivers <reivers@...>
To: Shingles-PHN@yahoogroups.com
Sent: Sun, October 25, 2009 10:59:38 AM
Subject: [Shingles-PHN] PHN and EFT


Hi.  I'm just finding out about shingles and PHN.  Due to thinking of myself as
a tough guy, this pain has been a harsh teacher.  I wouldn't take my Exocodon
pill until I can't function.  (I've been dumb)

But it turns out my wife is an EFT counsilor.  She wants to try EFT on me, but
I've been resistant.  It seems like 'woo-woo-voodoo' to me.  Reading everyone's
stories is sobering.  I'm going to get more serious about the options.  My
brother told me about www.NIH.com and med-line for current medical info.  My
friend is an Aniethsiologist and has written a peer-reviewed paper about PHN
(he's sending me a copy).

Question:  how is it that such a debilitating disorder is not driving wide
acceptance of the highly effective vaccine?  -Seems like the high cost of stupid
to me.   I would have run, walked or crawled to the vaccine if I had known what
I was in for.

rd

Oh, the EMO-free website is by the founder, Gary Craig.  My wife's website is
just www.tapforhealing. com

--- In Shingles-PHN@ yahoogroups. com, Charles Van Dyke <cvandyke@.. .> wrote:
>
> At 11:23 PM 8/22/2007, you wrote:
> >Anyone know of any herbal remedies?
> >I'd much rather try that than put another chemical into my body.
> >Or even get stuck by another needle.
>
> Hi,
>
> I don't know much about it, as it was recommended to me by a friend. The nice
thing is that it is free (download the pdf file and follow the instructions, you
do not really have to buy anything). A lot of people claim all kinds of relief.
It is called EFT. The website is www.emofree. com
>
> Nothing to lose except a bit of time. There are no drugs and you do not even
have to believe that it works.
>
> Best of luck,
>
> Charlie
>







[Non-text portions of this message have been removed]

Hi.  I'm just finding out about shingles and PHN.  Due to thinking of myself as
a tough guy, this pain has been a harsh teacher.  I wouldn't take my Exocodon
pill until I can't function.  (I've been dumb)

But it turns out my wife is an EFT counsilor.  She wants to try EFT on me, but
I've been resistant.  It seems like 'woo-woo-voodoo' to me.  Reading everyone's
stories is sobering.  I'm going to get more serious about the options.  My
brother told me about www.NIH.com and med-line for current medical info.  My
friend is an Aniethsiologist and has written a peer-reviewed paper about PHN
(he's sending me a copy).

Question:  how is it that such a debilitating disorder is not driving wide
acceptance of the highly effective vaccine?  -Seems like the high cost of stupid
to me.   I would have run, walked or crawled to the vaccine if I had known what
I was in for.

rd

Oh, the EMO-free website is by the founder, Gary Craig.  My wife's website is
just www.tapforhealing.com


--- In Shingles-PHN@yahoogroups.com, Charles Van Dyke <cvandyke@...> wrote:
>
> At 11:23 PM 8/22/2007, you wrote:
> >Anyone know of any herbal remedies?
> >I'd much rather try that than put another chemical into my body.
> >Or even get stuck by another needle.
>
> Hi,
>
> I don't know much about it, as it was recommended to me by a friend. The nice
thing is that it is free (download the pdf file and follow the instructions, you
do not really have to buy anything). A lot of people claim all kinds of relief.
It is called EFT. The website is www.emofree.com
>
> Nothing to lose except a bit of time. There are no drugs and you do not even
have to believe that it works.
>
> Best of luck,
>
> Charlie
>

Your probably right about me stressing about whether I have it and when will it
return...I have set aside a room in my home for relaxation,my"meditation
room"contains all things that are soothing,calming,pleasing to me.On days I
can't function I take to my room and allow myself to just be.I probably do too
much on my good days,something to think about.A good day for me,is one where I
can work thru the pain.
I am not ready to "believe"that this will be my life from now on,too early on in
the process.I have picked up info I did not have by reading through the posts
here.
My thoughts and heart go out to those who do have to cope with this dis-ease.
Thanks for the comments,O'Livia




________________________________
"Turn your face to the Sun and all shadows fall behind"








































________________________________
From: Eleanor <emp_4560@...>
To: Shingles-PHN@yahoogroups.com
Sent: Sat, October 24, 2009 6:43:17 PM
Subject: [Shingles-PHN] Re: Intro




Kara O'Livia,
Yes, stress makes it worse; as does sudden changes in weather, flu, and anything
else that (probably) affects the immune system. Fatigue continues...
At the moment I am reading a book EVOLVE YOUR MIND by Joe Dispenza which
discusses individuals who have not only CHANGED THEIR MINDS but by changing
their thinking cured themselves of dis-ease. During the last four years of
suffering PHN I have felt that if I could 'tweak' my mind the pain/discomfort
would go. To date all I have achieved is being able to make myself comfortable
(lying in a more or less V shape) and relaxing till I AM NOT AWARE OF PHN.
A GP (doctor, general practicitioner) told me that 1% of people who get shingles
continue to suffer discomfort and pain and, he claimed, it was because the
original doctor did not treat the pain (the irresponsible inconsiderate inhumane
creature who told me I had singles, said it would last 6 weeks, that I would be
in agony and he LAUGHED!!! Oh yes, he added "no cuddles" because shingles is
catching. You seem to have been getting the correct treatment and those who I
know who have received treatment for the pain DO RECOVER. An acquaintance who
had it at the same time as me continued with treatment (including alternative
treatments) for PAIN for several months after the original attack before
recovering fully.
Reading previous messages will give you an idea of what has been tried but
everyone is unique but everything I have read seems to agree that STRESS &
DEPRESSED IMMUNE SYSTEM have a lot to do with continued PHN.
Yes, the pain from shingles is unbelievable; whenever I think back I wonder how
I survived and, to be honest, I think anyone who survives shingles and puts up
with PHN deserves several nobel prizes!
The fact that you are OK for a couple of days makes me wonder if (1)that your
body is recovering but (2)you are stressing yourself because of the PHN?
Sometimes I find my thoughts whirling around with fear that this will never go
and that shingles will come back; my body tenses (trying to get away from the
pain?) and it gets worse. It's a spiral and the only way I have been able to
break it is make myself very comfortable (usually lying down - PHN attacks my
right side below right breast) while listening to music or reading. I have a
MIND MEDICINE CD - pain management by Mary Rodwell RN - that helps me relax. In
fact I usually 'wake up' about an hour later feeling wonderful, very often with
only a slight twinge (PHN reminding me that I cannot escape? See the way the
mind works to return to the cycle?)
I only have my experience of shigles & PHN (and what other people have
written/experienced ) for my ideas but I do know that this GROUP has helped me
through many a day of extreme distress.
namaste,
and may you be free of PHN by the time you read this,
emp


--- In Shingles-PHN@ yahoogroups. com, "wyrddreina" <wyrddreina@ ...> wrote:
>
> Hello,My name is O'Livia.
> I got shingles 2 months ago and tho the blisters are gone I still have the
pain and the burning.My outbreak was on my scalp and face.If someone had told me
how excruciating the pain from shingles was,I would not have thought it
possible.As far as meds,I have been on an anti viral,hydrocodone, steroids,
lyrica and neurontin,amitripty line,propolis and B5.Of course not at the same
time!The Lyrica worked the best but I was allergic.I have been trying to educate
myself as my Dr has not been informative except to say it should go
away...eventually.
> I have many questions.Does stress make this worse?Is fatigue common?
> Why am I ok for a couple of days and then the symptoms return with a
vengeance?Does your immune system have anything to do with this?
> Ok,now that I have vented a bit,I will read over past messages and see what
questions I can get answered.At the least I figure it will be good to be amongst
people that know what I am experiencing.
> thanks,O'Livia
>







[Non-text portions of this message have been removed]

Yes,I have been avoiding people...esp those that bring drama!
I am diabetic and control it with diet and exercise ,so no sugar.

  O'Livia

________________________________
"Turn your face to the Sun and all shadows fall behind"








































________________________________
From: Paul Slavko Goldstijn <welshmusic@...>
To: Shingles-PHN@yahoogroups.com
Sent: Sat, October 24, 2009 8:50:20 AM
Subject: Re: [Shingles-PHN] Intro


id say stress makes it worse and sugar is bad robustia coffee is bad

i avoid a lot of people

they carry the flu anyway

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Kara O'Livia,
Yes, stress makes it worse; as does sudden changes in weather, flu, and anything
else that (probably) affects the immune system. Fatigue continues...
At the moment I am reading a book EVOLVE YOUR MIND by Joe Dispenza which
discusses individuals who have not only CHANGED THEIR MINDS but by changing
their thinking cured themselves of dis-ease. During the last four years of
suffering PHN I have felt that if I could 'tweak' my mind the pain/discomfort
would go. To date all I have achieved is being able to make myself comfortable
(lying in a more or less V shape) and relaxing till I AM NOT AWARE OF PHN.
A GP (doctor, general practicitioner) told me that 1% of people who get shingles
continue to suffer discomfort and pain and, he claimed, it was because the
original doctor did not treat the pain (the irresponsible inconsiderate inhumane
creature who told me I had singles, said it would last 6 weeks, that I would be
in agony and he LAUGHED!!! Oh yes, he added "no cuddles" because shingles is
catching. You seem to have been getting the correct treatment and those who I
know who have received treatment for the pain DO RECOVER. An acquaintance who
had it at the same time as me continued with treatment (including alternative
treatments) for PAIN for several months after the original attack before
recovering fully.
Reading previous messages will give you an idea of what has been tried but
everyone is unique but everything I have read seems to agree that STRESS &
DEPRESSED IMMUNE SYSTEM have a lot to do with continued PHN.
Yes, the pain from shingles is unbelievable; whenever I think back I wonder how
I survived and, to be honest, I think anyone who survives shingles and puts up
with PHN deserves several nobel prizes!
The fact that you are OK for a couple of days makes me wonder if (1)that your
body is recovering but (2)you are stressing yourself because of the PHN?
Sometimes I find my thoughts whirling around with fear that this will never go
and that shingles will come back; my body tenses (trying to get away from the
pain?) and it gets worse. It's a spiral and the only way I have been able to
break it is make myself very comfortable (usually lying down - PHN attacks my
right side below right breast) while listening to music or reading. I have a
MIND MEDICINE CD - pain management by Mary Rodwell RN - that helps me relax. In
fact I usually 'wake up' about an hour later feeling wonderful, very often with
only a slight twinge (PHN reminding me that I cannot escape? See the way the
mind works to return to the cycle?)
I only have my experience of shigles & PHN (and what other people have
written/experienced) for my ideas but I do know that this GROUP has helped me
through many a day of extreme distress.
namaste,
and may you be free of PHN by the time you read this,
emp


--- In Shingles-PHN@yahoogroups.com, "wyrddreina" <wyrddreina@...> wrote:
>
> Hello,My name is O'Livia.
> I got shingles 2 months ago and tho the blisters are gone I still have the
pain and the burning.My outbreak was on my scalp and face.If someone had told me
how excruciating the pain from shingles was,I would not have thought it
possible.As far as meds,I have been on an anti viral,hydrocodone,steroids,lyrica
and neurontin,amitriptyline,propolis and B5.Of course not at the same time!The
Lyrica worked the best but I was allergic.I have been trying to educate myself
as my Dr has not been informative except to say it should go away...eventually.
> I have many questions.Does stress make this worse?Is fatigue common?
> Why am I ok for a couple of days and then the symptoms return with a
vengeance?Does your immune system have anything to do with this?
> Ok,now that I have vented a bit,I will read over past messages and see what
questions I can get answered.At the least I figure it will be good to be amongst
people that know what I am experiencing.
> thanks,O'Livia
>

hello yes lots of stuff helps

[Non-text portions of this message have been removed]

id say stress makes it worse and sugar is bad robustia coffee is bad

i avoid a lot of people

they carry the flu anyway

[Non-text portions of this message have been removed]

Hi,
my mother has been suffering with shingles in her hair for a yr now. Nothing the
doctors give helps. Id there anything she could do that may work? I will read
throught he files. But has anyone been helped?
Lori

Hello,My name is O'Livia.
I got shingles 2 months ago and tho the blisters are gone I still have the pain
and the burning.My outbreak was on my scalp and face.If someone had told me how
excruciating the pain from shingles was,I would not have thought it possible.As
far as meds,I have been on an anti viral,hydrocodone,steroids,lyrica and
neurontin,amitriptyline,propolis and B5.Of course not at the same time!The
Lyrica worked the best but I was allergic.I have been trying to educate myself
as my Dr has not been informative except to say it should go away...eventually.
I have many questions.Does stress make this worse?Is fatigue common?
Why am I ok for a couple of days and then the symptoms return with a
vengeance?Does your immune system have anything to do with this?
Ok,now that I have vented a bit,I will read over past messages and see what
questions I can get answered.At the least I figure it will be good to be amongst
people that know what I am experiencing.
thanks,O'Livia

Hello,
The needles used now are all new and sealed and sterile and disposed of after
each use.  They open a new package each time.  The are small and cheap enough
now I guess to do it this way instead of the worry of proper sterilization. 
There are several different sizes of needles available for this use so it woulbe
best to let your acupuncturist decide which size needle to use to properly treat
you.  Very good concern tho!  Thanks for asking.  Please let me know how it
works for you.  Please remember it may take several visits to get some relief.
Best of Luck to you,
Sharon
   ----- Original Message -----
   From: twinlabz12
   To: Shingles-PHN@yahoogroups.com
   Sent: Thursday, October 22, 2009 8:14 AM
   Subject: [Shingles-PHN] Re: Cost of Acupuncture



   Hi, I'm new....this disease is insideous. Sharon, I'm a bit apprehensive on
accupuncture due to the possibility of disease risk with the needles. Can you
purchase your own needles and bring them with each appointment?

   Lisa
   --- In Shingles-PHN@yahoogroups.com, "Sharon Bruner" <brunerfam@...> wrote:
   >
   > Hello,
   > I had a wonderful experience with acupuncture. I pay $45 per treatment. It
took about 8 sessions to feel relief from my PHN which is on my face. I was
going twice a week to hit it hard with treatment and it worked well for me. I go
once a month now.
   > I hope this helps your mother.
   > Call around to different acupunctuists in your area to find one. They are
all about the same cost.
   > Best of luck to you,
   > Sharon near Seattle
   >
   > ----- Original Message -----
   > From: fstyle751
   > To: Shingles-PHN@yahoogroups.com
   > Sent: Monday, September 28, 2009 6:14 PM
   > Subject: [Shingles-PHN] Cost of Acupuncture
   >
   >
   > My 74 year old mother has had PHN for two and a half years. The doctors have
tried everything on her Neurontin, Gabapentin, Lyrica, Lydocain, etc. Nothying
works she still lives in tremendous pain.
   >
   > She has Medicare which does not pay for Acupuncture. Can anyone give me an
idea of the cost of Acupuncture?
   >
   > Thanks.
   >
   >
   >
   >
   >
   > [Non-text portions of this message have been removed]
   >





[Non-text portions of this message have been removed]

--- In Shingles-PHN@yahoogroups.com, "twinlabz12" <twinlabss@...> wrote:
>Hi Lisa:

      I am on my 11th treatment with acupuncture.  I have been told it takes at
least 6 treatments before you can expect any relief.  It was true in my case. 
It has help me, no more burning on my face.  Sounds like Sharon's treatments are
a deal.  Mine cost $120.00 each time I go (my insurance is paying most of it).
The needles that are used on me come in a kit and are tossed after use.

      Give it a try.  I have had PHN for over 4 years and have been on all kinds
of drugs, some you didn't even name.  Nothing helped.
      Good luck.
Joan
>
> Hi, I'm new....this disease is insideous. Sharon, I'm a bit apprehensive on
accupuncture due to the possibility of disease risk with the needles. Can you
purchase your own needles and bring them with each appointment?
>
> Lisa
> --- In Shingles-PHN@yahoogroups.com, "Sharon  Bruner" <brunerfam@> wrote:
> >
> > Hello,
> > I had a wonderful experience with acupuncture.  I pay $45 per treatment.  It
took about 8 sessions to feel relief from my PHN which is on my face.  I was
going twice a week to hit it hard with treatment and it worked well for me.  I
go once a month now.
> > I hope this helps your mother.
> > Call around to different acupunctuists in your area to find one.  They are
all about the same cost.
> > Best of luck to you,
> > Sharon near Seattle
> >
> >   ----- Original Message -----
> >   From: fstyle751
> >   To: Shingles-PHN@yahoogroups.com
> >   Sent: Monday, September 28, 2009 6:14 PM
> >   Subject: [Shingles-PHN] Cost of Acupuncture
> >
> >
> >     My 74 year old mother has had PHN for two and a half years. The doctors
have tried everything on her Neurontin, Gabapentin, Lyrica, Lydocain, etc.
Nothying works she still lives in tremendous pain.
> >
> >   She has Medicare which does not pay for Acupuncture. Can anyone give me an
idea of the cost of Acupuncture?
> >
> >   Thanks.
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>

Hi, I'm new....this disease is insideous. Sharon, I'm a bit apprehensive on
accupuncture due to the possibility of disease risk with the needles. Can you
purchase your own needles and bring them with each appointment?

Lisa
--- In Shingles-PHN@yahoogroups.com, "Sharon  Bruner" <brunerfam@...> wrote:
>
> Hello,
> I had a wonderful experience with acupuncture.  I pay $45 per treatment.  It
took about 8 sessions to feel relief from my PHN which is on my face.  I was
going twice a week to hit it hard with treatment and it worked well for me.  I
go once a month now.
> I hope this helps your mother.
> Call around to different acupunctuists in your area to find one.  They are all
about the same cost.
> Best of luck to you,
> Sharon near Seattle
>
>   ----- Original Message -----
>   From: fstyle751
>   To: Shingles-PHN@yahoogroups.com
>   Sent: Monday, September 28, 2009 6:14 PM
>   Subject: [Shingles-PHN] Cost of Acupuncture
>
>
>     My 74 year old mother has had PHN for two and a half years. The doctors
have tried everything on her Neurontin, Gabapentin, Lyrica, Lydocain, etc.
Nothying works she still lives in tremendous pain.
>
>   She has Medicare which does not pay for Acupuncture. Can anyone give me an
idea of the cost of Acupuncture?
>
>   Thanks.
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

i didnt

[Non-text portions of this message have been removed]

Has anyone tried Topamax

Has anyone tried Topamax?

In a message dated 10/9/2009 9:30:59 A.M. Eastern Daylight Time,
mvolc@... writes:

Nerve  damage/pain (from whatever cause) is, in  essence, non-non-<WBR>t  I
feel bad for the PHN sufferers, the  war vets with nerve damage -- it's all
bad.


I have to refute your claim.  PHN can become permanent, but there are  lots
of treatment options that can at least alleviate some of the pain.   I've
had PHN since 1996; some days are better than some while there are still
times that the pain can be pretty persistent.  But my pain management  doctor
has experimented with me over the years to find what helps me the  most.  For
the last several years, I've used gabapentin, oxycontin, muscle  and nerve
relaxants, lidocaine patches and injections and vicodin for  break-through
pain.
For the most part, I can go about my day...though my activities are limited
  so I don't do reckless things to cause more pain.

So everyone out there:  Please keep in mind that we CAN find some  relief
from our pain if we enlist doctors who are willing to be  experimental.  And
even more important is that we find these doctors as  early in our PHN
journey as possible.  The longer the pain goes untreated,  the harder it is to
control.  And, PLEASE understand the crucial role  various opiates have in the
proper treatment of PHN.  Addiction occurs when  people take more meds more
often and without their doctors' knowledge; when  folks will do anything
for a fix, and when their whole lives revolve around  getting and using drugs.
  MY life revolves around being as engaged as I can  in the world...from
volunteering in a Head Start class to chasing my own  grandson around the house
to going out and about.  I never expect to be  pain-free, but for me,
utilizing all these different modalities has made a  somewhat normal life
possible.

Hang in there, everyone!
Barb





[Non-text portions of this message have been removed]

http://dealingwithchronicpain.aimoo.com/

[Non-text portions of this message have been removed]

im still curious but noone has anwered me-do you eat alot of sugar?i cut back 
on sugar and i guess i feel better

that means one beer or none  no candy less products that contain sugar

they say hypnosis may help


[Non-text portions of this message have been removed]

Fstyle-
I think it's true that it's permanent at this point.  Again, I'm hoping for at
least incremental relief with the new thing from Neurogesx.  ANYTHING would
help.  BTW- the pain clinic dr was awful-- it was a nightmare experience that
made it worse.
 
Distraction helps, sleep helps for my mom.  Reading, knitting, computer games
(especially puzzles, scrabble) etc.  The dog keeps her focused.  The PHN
certainly changed everything-- despite being 80- she was very active.  She
totally relates to "House".
 
Nerve damage/pain (from whatever cause) is, in essence, non-treatable.  I feel
bad for the PHN sufferers, the war vets with nerve damage -- it's all bad.
 
That's why I say I pray for a miracle, because that's what it will take to go
away.
mari
 
 


--- On Wed, 10/7/09, fstyle751 <fstyle751@...> wrote:


From: fstyle751 <fstyle751@...>
Subject: [Shingles-PHN] Re: Cost of Acupuncture - Mari
To: Shingles-PHN@yahoogroups.com
Date: Wednesday, October 7, 2009, 7:41 PM


 




Mari,

My mother has also tried everything.

Several doctors have told her once you have had it for over two years its
probably not going away. To much nerve damage.

It would be nice if my mother had a friend in the area like your mother to give
her someone to talk with who understands.

Like yours my mother also suffers horribly.

I'm helpless damnit!

--- In Shingles-PHN@ yahoogroups. com, mari <mvolc@...> wrote:
>
> Fstyle- My mother has had it for 4 1/2 years. she is 84. Nothing works for her
as well.  We found the best, most highly recommended accupuncturist in the
area.  She was about $65 for a solid hour session.   She stopped going after 4
sessions as there was not even a sign of relief. She suffers horribly.
> I wish your mom the very best and pray that she has a miracle recovery.
>
> --- On Mon, 9/28/09, fstyle751 <fstyle751@. ..> wrote:
>
>
> From: fstyle751 <fstyle751@. ..>
> Subject: [Shingles-PHN] Cost of Acupuncture
> To: Shingles-PHN@ yahoogroups. com
> Date: Monday, September 28, 2009, 9:14 PM
>
>
>  
>
>
>
> My 74 year old mother has had PHN for two and a half years. The doctors have
tried everything on her Neurontin, Gabapentin, Lyrica, Lydocain, etc. Nothying
works she still lives in tremendous pain.
>
> She has Medicare which does not pay for Acupuncture. Can anyone give me an
idea of the cost of Acupuncture?
>
> Thanks.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>



















[Non-text portions of this message have been removed]

i wonder what overall do you all eat?i  drink too much coffee maybe too much tea
which isnt as bad

im eating more brown rice and sleep better-i dont desire the b12 now -take less
aspirin

ive heard cinninmin is good for flu

The oil is a powerful germicide, but being very irritant is rarely used in
medicine for this purpose. It is a strong local stimulant, sometimes prescribed
in gastro-dynia, flatulent colic, and gastric debility.
http://www.angelfire.com/az/sthurston/honeyandcinnamon.html

[Non-text portions of this message have been removed]

Mari,

My mother has also tried everything.

Several doctors have told her once you have had it for over two years its
probably not going away.  To much nerve damage.

It would be nice if my mother had a friend in the area like your mother to give
her someone to talk with who understands.

Like yours my mother also suffers horribly.

I'm helpless damnit!


--- In Shingles-PHN@yahoogroups.com, mari <mvolc@...> wrote:
>
> Fstyle- My mother has had it for 4 1/2 years. she is 84. Nothing works for her
as well.  We found the best, most highly recommended accupuncturist in the
area.  She was about $65 for a solid hour session.   She stopped going after 4
sessions as there was not even a sign of relief. She suffers horribly.
> I wish your mom the very best and pray that she has a miracle recovery.
>
> --- On Mon, 9/28/09, fstyle751 <fstyle751@...> wrote:
>
>
> From: fstyle751 <fstyle751@...>
> Subject: [Shingles-PHN] Cost of Acupuncture
> To: Shingles-PHN@yahoogroups.com
> Date: Monday, September 28, 2009, 9:14 PM
>
>
>  
>
>
>
> My 74 year old mother has had PHN for two and a half years. The doctors have
tried everything on her Neurontin, Gabapentin, Lyrica, Lydocain, etc. Nothying
works she still lives in tremendous pain.
>
> She has Medicare which does not pay for Acupuncture. Can anyone give me an
idea of the cost of Acupuncture?
>
> Thanks.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>