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Severe_MEites_United

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39 New Messages - New Questions

Description

This is a group where people with the organic neurological, cardiac, immune and neuroendocrine illness Myalgic Encephalomyelitis (classified at G93.3 by the World Health Organisation) can meet other people with the same illness for advice, support and new friendships.

The emphasis in this group is on people with the more severe form of M.E. or progressive M.E. ie. Those who are bedbound, housebound, or wheelchair bound - or very close to it. (ie. You can leave the house once a month or less, and are out of bed less than 3 hours a day.) Anyone who has (or cares for someone with) this degree of severe M.E. is welcome.

This is a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for CFS' and 'oh I am just so tired!'and 'FM/Lyme/Candida is pretty much the same illness' and 'CFS is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important. You'll be sent the group's new M.E. Manifesto when you apply for membership, please read and evaluate it carefully!


BUT: Anyone thinking of joining just to talk about an 'amazing miracle treatment' that 'cures' 'CFS' - please don't! Basically, if you've come up with an easy answer, you have NO IDEA what the actual question is. Genuine members only please.


PLEASE also ignore ALL the silly ads for 'fatigue' treatments on this site they are NOT vetted or recommended by this group in any way.


Note: It is important to be aware that M.E. and CFS are not synonymous terms. See What is M.E.? for more information on all aspects of Myalgic Encephalomyelitis and why the bogus disease category of 'CFS' must be abandoned.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 184 51 66 18 12 45 72 68 76 97 54
2008 49 67 99 89 41 54 109 129 92 57 45 117
2007 17 42 71 44 158 315 372 92 36 24 23 37
2006 15 22 60
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