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Sacral_Agenesis_Australia · Sacral Agenesis Australia

Group Information

  • Members: 18
  • Category: Spina Bifida
  • Founded: Oct 8, 2006
  • Language: English
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Description

**Our greatest glory consists not in never falling, but in rising every time we fall : Confucius**

Welcome to Sacral Agenesis Australia. Our daughter Aimee is one of a very small group within Australia (1 per 25 000 to be precise) Our aim is to find adults and children with this rare disease. We are in Tasmania and Aimee is the only one in this state that we know of......? We know there are at least 30 other cases within Australia. So if you have Sacral Agenesis, are a carer (be it parent, guardian or friend), please feel free to join and offer help and assistance to us and all that come her to chat!! We only have a few rules & they are easy to follow

1 You must post at least every 2 week minimum
2 You must introduce yourself once you have been approved
3 If I request an answer it needs to be followed through

This is now a member approval site only, please, upon application you MUST have a FULLY COMPLETED yahoo ID, give a description of yourself (and whether it is you or someone else who has Sacral Agenesis) & what you feel you can bring to the group & how the group will benefit you, I will then review your application. (Being as this is such a rare disability we are pretty much all like family in here.)

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Re: G'day to all
Hi to all, Ange sorry to hear it has been such a sh*#tty year for you - it never rains but pours hey! Hope it gets better. Hope Simone does well in the next
Posted - Mon Nov 2, 2009 9:32 am
The McGuigans
the5mcguigans
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G'day to all
Hey all, Hope you are all well (or as well as can be expected) We are all pretty much ok here in Tassie ... Aimee had swimming last week & thoroughly loved it
Posted - Mon Nov 2, 2009 4:33 am
tazziedolphin
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Re: A long awaited update
Ange, I hope things get better for you. We're thinking of you. Keep us updated. Danielle ... From: tazziedolphin <tazziedolphin@...> To:
Posted - Mon Nov 2, 2009 12:15 am
twxee@...
deardippy20
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Re: A long awaited update
Hi Ange Damn .... dunno what else to say ... my thoughts are with you ... Dr's can be right royal pricks sometimes eh ... they expect it to be done their way
Posted - Sun Nov 1, 2009 10:47 pm
tazziedolphin
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Re: A long awaited update
hi ange.. sorry to hear about your pain and suffering.. it seems so unfair!! all of our thoughts are with you- and we prey u get the relief you deserve soon,
Posted - Sun Nov 1, 2009 2:50 pm
shannarrah ryan
storm1ndiana
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 60 33 90 31 26 7 14 29 10 26 7
2008 80 21 34 50 46 23 93 70 41 60 43 30
2007 85 72 151 42 41 15 25 25 20 62 26 19
2006 14 4 14
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