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Sacral_Agenesis_Australia · Sacral Agenesis Australia

Group Information

  • Members: 19
  • Category: Spina Bifida
  • Founded: Oct 8, 2006
  • Language: English
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Description

**Our greatest glory consists not in never falling, but in rising every time we fall : Confucius**

Welcome to Sacral Agenesis Australia. Our daughter Aimee is one of a very small group within Australia (1 per 25 000 to be precise) Our aim is to find adults and children with this rare disease. We are in Tasmania and Aimee is the only one in this state that we know of......? We know there are at least 30 other cases within Australia. So if you have Sacral Agenesis, are a carer (be it parent, guardian or friend), please feel free to join and offer help and assistance to us and all that come her to chat!! We only have a few rules & they are easy to follow

1 You must post at least every 2 week minimum
2 You must introduce yourself once you have been approved
3 If I request an answer it needs to be followed through

This is now a member approval site only, please, upon application you MUST have a FULLY COMPLETED yahoo ID, give a description of yourself (and whether it is you or someone else who has Sacral Agenesis) & what you feel you can bring to the group & how the group will benefit you, I will then review your application. (Being as this is such a rare disability we are pretty much all like family in here.)

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Re: new member
Good morning to all  Things are finally starting to slow down here, Tristan has this week and his is finished school , Simone has finsished. Tristan in now
Posted - Sun Dec 6, 2009 10:09 pm
Leslie Mullins
lesliecarolm...
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Re: new member
Aww, that penguin story is too cute, really!!! ... From: The McGuigans <the6mcguigans@...> To: Sacral_Agenesis_Australia@yahoogroups.com Sent: Sat,
Posted - Sat Dec 5, 2009 8:55 pm
twxee@...
deardippy20
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Re: new member
Hi Sophie, congratulations on the birth of Kaden, my 4 year old son was born with an imperforate anus, sacral agenesis and a tethered spinal cord also. Feel
Posted - Sat Dec 5, 2009 11:47 am
Jenny
kd0507
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Re: new member
Hey Elissa wow what a funny story about the penguin I cracked up when I read that. Glad to hear Willow is goin well with her swimming Aimee thinks she is a
Posted - Sat Dec 5, 2009 5:41 am
tazziedolphin
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Re: new member
Hey Darelle glad to hear yo are going ok, Aimee & Juliet are similar in so many ways (lack of medical intervention needed) glad to hear she likes the new
Posted - Sat Dec 5, 2009 5:36 am
tazziedolphin
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 60 33 90 31 26 7 14 29 10 26 17 15
2008 80 21 34 50 46 23 93 70 41 60 43 30
2007 85 72 151 42 41 15 25 25 20 62 26 19
2006 14 4 14
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