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Sacral_Agenesis_Australia · Sacral Agenesis Australia

Group Information

  • Members: 32
  • Category: Spina Bifida
  • Founded: Oct 8, 2006
  • Language: English
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Description

**Our greatest glory consists not in never falling, but in rising every time we fall : Confucius**

Welcome to Sacral Agenesis Australia. Our daughter Aimee is one of a very small group within Australia (1 per 25 000 to be precise) Our aim is to find adults and children with this rare disease. We are in Tasmania and Aimee is the only one in this state that we know of......? We know there are at least 30 other cases within Australia. So if you have Sacral Agenesis, are a carer (be it parent, guardian or friend), please feel free to join and offer help and assistance to us and all that come her to chat!!
This is now a member approval site only, give a description of yourself (and whether it is you or someone else who has Sacral Agenesis) & what you feel you can bring to the group & how the group will benefit you, I will then review your application. (Being as this is such a rare disability we are pretty much all like family in here.)

Most Recent Messages

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hello every one it has been donkies since i have been in here, i have had heaps on my plate for some time, i am now only just getting my life back on track. I
Posted - Fri Apr 6, 2012 10:02 pm
yamumz_9
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Cast Covers....
A lot of our kids, and even us (ahem moi) have had to deal with ugly casts, though mine was a nice purple... Here is a story (1st link) of a woman who makes
Posted - Fri Mar 16, 2012 5:51 pm
Jahna
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Jahna's Birthday!, 1/27/2012, 12:00 am
Reminder from: Sacral_Agenesis_Australia Yahoo! Group http://groups.yahoo.com/group/Sacral_Agenesis_Australia/cal Jahna's Birthday! Friday January 27, 2012 All
Posted - Wed Jan 25, 2012 12:55 pm
Sacral_Agenesis_Austr...
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Jahna's Birthday!, 1/27/2012, 12:00 am
Reminder from: Sacral_Agenesis_Australia Yahoo! Group http://groups.yahoo.com/group/Sacral_Agenesis_Australia/cal Jahna's Birthday! Friday January 27, 2012 All
Posted - Sun Jan 22, 2012 12:55 pm
Sacral_Agenesis_Austr...
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Word of caution....
Maybe I am being overly paranoid but for those of you who've had a leg or your child's legs amputated get them stump boots as protection and have them wear
Posted - Sun Dec 4, 2011 5:18 am
Jahna
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 2 1 1
2011 16 28 20 2 2 11 10 4 2 1
2010 24 32 18 34 26 29 14 17 18 38 1 13
2009 60 33 90 31 26 7 14 29 10 26 17 22
2008 80 21 34 50 46 23 93 70 41 60 43 30
2007 85 72 151 42 41 15 25 25 20 62 26 19
2006 14 4 14
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