Group Information- Members: 19
- Category: Spina Bifida
- Founded: Oct 8, 2006
- Language: English
|
Visit the
Groups blog for the latest Yahoo! Groups information
Description
**Our greatest glory consists not in never falling, but in rising every time we fall : Confucius**
Welcome to Sacral Agenesis Australia. Our daughter Aimee is one of a very small group within Australia (1 per 25 000 to be precise) Our aim is to find adults and children with this rare disease. We are in Tasmania and Aimee is the only one in this state that we know of......? We know there are at least 30 other cases within Australia. So if you have Sacral Agenesis, are a carer (be it parent, guardian or friend), please feel free to join and offer help and assistance to us and all that come her to chat!! We only have a few rules & they are easy to follow
1 You must post at least every 2 week minimum
2 You must introduce yourself once you have been approved
3 If I request an answer it needs to be followed through
This is now a member approval site only, please, upon application you MUST have a FULLY COMPLETED yahoo ID, give a description of yourself (and whether it is you or someone else who has Sacral Agenesis) & what you feel you can bring to the group & how the group will benefit you, I will then review your application. (Being as this is such a rare disability we are pretty much all like family in here.)
|
Re: new member
Good morning to all  Things are finally starting to slow down here, Tristan has this week and his is finished school , Simone has finsished. Tristan in now
Posted - Sun Dec 6, 2009 10:09 pm
|
Leslie Mullins
lesliecarolm...
Offline Send Email
|
Re: new member
Aww, that penguin story is too cute, really!!! ... From: The McGuigans <the6mcguigans@...> To: Sacral_Agenesis_Australia@yahoogroups.com Sent: Sat,
Posted - Sat Dec 5, 2009 8:55 pm
|
twxee@...
deardippy20
Offline Send Email
|
Re: new member
Hi Sophie, congratulations on the birth of Kaden, my 4 year old son was born with an imperforate anus, sacral agenesis and a tethered spinal cord also. Feel
Posted - Sat Dec 5, 2009 11:47 am
|
Jenny
kd0507
Offline Send Email
|
Re: new member
Hey Elissa wow what a funny story about the penguin I cracked up when I read that. Glad to hear Willow is goin well with her swimming Aimee thinks she is a
Posted - Sat Dec 5, 2009 5:41 am
|
tazziedolphin
Offline Send Email
|
Re: new member
Hey Darelle glad to hear yo are going ok, Aimee & Juliet are similar in so many ways (lack of medical intervention needed) glad to hear she likes the new
Posted - Sat Dec 5, 2009 5:36 am
|
tazziedolphin
Offline Send Email
|
Add Sacral_Agenesis_Australia to your personalized My Yahoo! page What's This?
|
Message History
Group Email Addresses
| Post message: |
Sacral_Agenesis_Australia@yahoogroups.com |
| Subscribe: |
Sacral_Agenesis_Australia-subscribe@yahoogroups.com |
| Unsubscribe: |
Sacral_Agenesis_Australia-unsubscribe@yahoogroups.com |
| List owner: |
Sacral_Agenesis_Australia-owner@yahoogroups.com |
|