Scott: Jessie Upshaw Jenkins notified some of us on Facebook of your tragic loss. I just wanted to let you know that you are in my thoughts and prayers. I'm...
57
Nola
nrly1
Apr 9, 2013 7:04 pm
Scott, am sorry for your loss. May you always feel the love and comfort of our loving Savior. I have been there. In 2006 I lost my mom to the Tens. Due to a...
56
jessie upshaw
jessie_upshaw
Apr 9, 2013 11:32 am
Hi Scott, I am so sorry for the loss of your daughter. We expect to lose our parent, spouses, siblings, friends, and, etc.....but never a child. We lost...
55
momofthth
Apr 9, 2013 10:38 am
Scott, You are not alone. This group is for those of us who feel that there is nothing left to life. Although I can tell you that life goes on it will never be...
54
carpter1957
Apr 9, 2013 5:16 am
i'm totally alone now after our local hospitals killed my Angel by denying that she had SJS/TENS after 7 ER room visits where we kept telling the doctors that...
53
Debbie Moulton
moultondebra
Aug 1, 2012 3:35 pm
hello, Â I'm writing this with tears in my eyes, I came down here to Madrid Spain for a short vacation unfortunately we were mugged at the park of the hotel...
52
Debbie Moulton
moultondebra
Sep 21, 2011 10:27 pm
Jean,  I understand--I saw the one from yesterday. Lupus?! I don't know what the symptoms are for that, but I really feel for the family. How are the...
51
SJSUPPORT@...
sjs_foundation
Sep 21, 2011 10:07 pm
Yes Debbie, Thank you so much. I was meaning to write back. It's been really busy lately with lots of new SJS cases. Too many, it breaks my heart. Love, Jean ...
50
Debbie Moulton
moultondebra
Sep 21, 2011 12:53 pm
I am so very sorry about your sister. My thoughts and prayers are with you and your family. I lost my mother to SJS four years ago and it is still very...
49
Debbie Moulton
moultondebra
Sep 21, 2011 12:52 pm
Jean, Â Did you get the article that I sent to you? Debbie ________________________________ From: "SJSUPPORT@..." <SJSUPPORT@...> To:...
48
Debbie Moulton
moultondebra
Sep 21, 2011 5:14 am
Jessie, Â Thank you so very much for your message.. It was my mother, Margot McClary, that died from this horrific disease at Children's Hospital's burn unit....
47
Debbie Moulton
moultondebra
Sep 21, 2011 4:45 am
Beckie,  Thank you so very much for your note. SJS is a horrible death as all of us know that have had to deal with it. I really feel that we need to...
46
Debbie Moulton
moultondebra
Sep 21, 2011 4:34 am
Ivonne, Â I am so very sorry for your loss as SJS is an absolutely horrible death--something that we will never get over--but, thankfully, due to Jean...
45
Ivonne Ochoa
ochoaivonne69
Sep 21, 2011 12:41 am
I'm so sorry for your loss.My son passed away from TENS on August 24, 2009. He suffered for 20 days at the burn unit at BAMC in San Antonio, Tx. I feel your...
44
Beckie Manganaro
sweetpeajud
Sep 20, 2011 7:34 pm
I am so sorry to hear of your lost. I lost my grandmother/best friend to TENS on July 13, 2006. I also understand and feel your pain. I will keep you and your...
43
jessie upshaw
jessie_upshaw
Sep 20, 2011 7:23 pm
Hello,  I am so very sorry about the loss of your sister to TENS. I share in your grief; we lost our Mother to TENS May 10, 2008. I know this is a...
42
SJSUPPORT@...
sjs_foundation
Sep 20, 2011 7:09 pm
I am so sorry to hear about your sister. My thoughts and prayers are with you. I want you to know we are here for you. Sincerely, Jean McCawley SJS Foundation ...
41
pbaxter67
Sep 20, 2011 6:20 pm
My sister lost her battle with TENS today. She has been in LSU Medical Center in Shreveport, LA for couple of weeks. This has been such a difficult time for...
40
jessie upshaw
jessie_upshaw
Mar 18, 2010 7:10 pm
Thanks Becky, I forget to put that in the message. Darlene, I hope that yesterday was a day of good memories, laughter and love for you and your family.  ...
39
Darlene Kiss
momofthth
Mar 18, 2010 6:21 pm
Thank you...
38
Beckie Manganaro
sweetpeajud
Mar 18, 2010 5:53 pm
Julie's story will air on March 22 at 10 p.m. EDT on Discovery Health; check local listings.    http://www.sjsupport.org/  ...
37
DEEAND68@...
momofthth
Mar 18, 2010 5:52 pm
Do we know what date the Mystery Diagnosis will be? Darlene PS Yesterday was Heather's 7th year anniversary of being with God. ... From: "jessie upshaw"...
36
jessie upshaw
jessie_upshaw
Mar 18, 2010 2:16 pm
Hello,  Just wanted to check in and let everyone know that you all are still in my thoughts and prayers. I hope things are gettings just a littlle better...
35
jessie upshaw
jessie_upshaw
Nov 25, 2009 4:12 pm
I was able to log into it . Thanks for sharing that with us. ... From: Ivonne Ochoa <ochoaivonne69@...> Subject: Re: [SJSBereavement] matt's memorial ...
34
Ivonne Ochoa
ochoaivonne69
Nov 25, 2009 2:56 pm
the website again is http://www.caringbridge.org/visit/matthewochoa  ________________________________ From: ochoaivonne69 <ochoaivonne69@...> To:...
33
Ivonne Ochoa
ochoaivonne69
Nov 25, 2009 2:50 pm
here's the site again http://www.caringbridge.org/visit/matthewochoa hope you can get through. ________________________________ From: jessie upshaw...
32
jessie upshaw
jessie_upshaw
Nov 25, 2009 11:41 am
I have tried several times to get on this page and it keeps giving me an error record. Can you send it again.  Hope all is well with you-know it is a very...
31
ochoaivonne69
Nov 25, 2009 12:36 am
Here are some pics of my angel matthew you can view them at http://www.caringbridge.org/visit/matthewochoa. ENJOY!!!!!!...
30
jessie upshaw
jessie_upshaw
Oct 21, 2009 10:32 pm
Hello,  I hope everyone is doing as well as can be. This group does not have a lot of responses. I usually just go on the main group. It is harder...
29
hayley.cooper3@...
hayley.coope...
Oct 20, 2009 7:41 pm
... Hi Im so sorry to hear your new about your son , I was a suffer of SJS at the age of 11, I am now 37 year old and have four children and hubbie in toe . I...
