... Hi Im so sorry to hear your new about your son , I was a suffer of SJS at the age of 11, I am now 37 year old and have four children and hubbie in toe . I...
Hello,  I hope everyone is doing as well as can be. This group does not have a lot of responses. I usually just go on the main group. It is harder...
I have tried several times to get on this page and it keeps giving me an error record. Can you send it again.  Hope all is well with you-know it is a very...
I was able to log into it . Thanks for sharing that with us. ... From: Ivonne Ochoa <ochoaivonne69@...> Subject: Re: [SJSBereavement] matt's memorial ...
Hello,  Just wanted to check in and let everyone know that you all are still in my thoughts and prayers. I hope things are gettings just a littlle better...
Do we know what date the Mystery Diagnosis will be? Darlene PS Yesterday was Heather's 7th year anniversary of being with God. ... From: "jessie upshaw"...
Thanks Becky, I forget to put that in the message. Darlene, I hope that yesterday was a day of good memories, laughter and love for you and your family.  ...
My sister lost her battle with TENS today. She has been in LSU Medical Center in Shreveport, LA for couple of weeks. This has been such a difficult time for...
I am so sorry to hear about your sister. My thoughts and prayers are with you. I want you to know we are here for you. Sincerely, Jean McCawley SJS Foundation ...
Hello,  I am so very sorry about the loss of your sister to TENS. I share in your grief; we lost our Mother to TENS May 10, 2008. I know this is a...
I am so sorry to hear of your lost. I lost my grandmother/best friend to TENS on July 13, 2006. I also understand and feel your pain. I will keep you and your...
I'm so sorry for your loss.My son passed away from TENS on August 24, 2009. He suffered for 20 days at the burn unit at BAMC in San Antonio, Tx. I feel your...
Ivonne, Â I am so very sorry for your loss as SJS is an absolutely horrible death--something that we will never get over--but, thankfully, due to Jean...
Beckie,  Thank you so very much for your note. SJS is a horrible death as all of us know that have had to deal with it. I really feel that we need to...
Jessie, Â Thank you so very much for your message.. It was my mother, Margot McClary, that died from this horrific disease at Children's Hospital's burn unit....
I am so very sorry about your sister. My thoughts and prayers are with you and your family. I lost my mother to SJS four years ago and it is still very...
Yes Debbie, Thank you so much. I was meaning to write back. It's been really busy lately with lots of new SJS cases. Too many, it breaks my heart. Love, Jean ...
Jean,  I understand--I saw the one from yesterday. Lupus?! I don't know what the symptoms are for that, but I really feel for the family. How are the...
hello, Â I'm writing this with tears in my eyes, I came down here to Madrid Spain for a short vacation unfortunately we were mugged at the park of the hotel...
i'm totally alone now after our local hospitals killed my Angel by denying that she had SJS/TENS after 7 ER room visits where we kept telling the doctors that...
Scott, You are not alone. This group is for those of us who feel that there is nothing left to life. Although I can tell you that life goes on it will never be...
Hi Scott, I am so sorry for the loss of your daughter. We expect to lose our parent, spouses, siblings, friends, and, etc.....but never a child. We lost...
Scott, am sorry for your loss. May you always feel the love and comfort of our loving Savior. I have been there. In 2006 I lost my mom to the Tens. Due to a...
Scott: Jessie Upshaw Jenkins notified some of us on Facebook of your tragic loss. I just wanted to let you know that you are in my thoughts and prayers. I'm...
