Hello Lee,

Thanks for responding. I am sorry to hear of the loss of your brother.  It is just so heartbreaking.

I know some of my biggest obstacles in dealing with this.  The main one is ACCEPTANCE.  I know she is gone, but I have not accepted it in yet. I am trying to cope with her death through educating others about this horrible disease.  I tell everyone I can about SJS and that does bring me some comfort.

I thank you for the reassurance of being in wrapped God's arm.  I know that in the end, it is with Him that I will found peace again.

Hope to hear from you soon,

jessie
--- On Wed, 7/16/08, Lee <mshoneybee@...> wrote:

From: Lee <mshoneybee@...>
Subject: [SJSBereavement] Re: Hello
To: SJSBereavement@yahoogroups.com
Date: Wednesday, July 16, 2008, 2:26 PM

Hi Jessie,

My name is Lee. I lost my brother August 5, 2005. He had a horrific
bout of SJS on March 25th, 2003, and after that, his health failed. He
had heart trouble for years that was under control with medication and
he lived a very full life. If you didn't know him personally, you
would not know anything was wrong with him. After the Stevens Johnson,
it's like everything went wrong. He went into the hospital on December
21, 2004 for an overnight procedure (they were replacing his
defibrillator with a Bi-V {which is a pacemaker-defibrill ator
combination device}) and he never came home. So I do understand your
anger at the physicians. Out of everything that has happened, that
still haunts me sometimes. I work to let it go because I don't want it
to destroy me.

Jessie, I do understand the loss you are experiencing. It's three
years this August that my brother is gone and I must honestly tell you,
I still miss him. It doesn't sting like it used to, but I guess I'll
always miss him.

I'll be praying that the Lord will comfort you and make you aware that
his arms are wrapped around you and you can rest assured that He will
bring you through.

Peace and blessings,

Lee

--- In SJSBereavement@ yahoogroups. com, "jessie_upshaw"
<jessie_upshaw@ ...> wrote:
>
> Just wanted to take the time to introduce myself. My name is Jessie
> and my siblings and I lost our mother, Ms. Willie Upshaw, to SJS on
May
> 10, 2008. We live in Atlanta, Georgia. Words cannot express how sad I
> am. Tomorrow marks 2 months since we laid her to rest and I feel
like
> my chest is going to explode.
>
> I am very ANGRY at the physicians because of the lack of knowledge in
> dealing with her condition. Six weeks in ICU and it took them 4 1/2
> weeks to diagnose her. We removed her off the vent (actually she was
on
> two) 1 1/2 weeks later.
>
> jessie
>