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SAPHOziekte · SAPHO ziekte/syndroom
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Group Information

  • Members: 33
  • Category: Other
  • Founded: Feb 28, 2001
  • Language: Dutch
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Description

SAPHO: een eerder zeldzame, ongekende ziekte.

Ingedeeld bij: Reuma? Immunologie? Huidziekten? Systeemziekten?
Daarom ook, dat het zo moeilijk is om een deskundige te vinden!!

Ik heb deze groep opgericht omdat ik denk dat er nog wel meer mensen zijn met deze ziekte en die net zoals ik er niks over kunnen vinden. (En in het Nederlands al helemaal niet.)

Ik hoop dat we elkaar hier kunnen helpen en steunen door belevenissen en informatie uit te wisselen!

Message History

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2009 1
2007 3 5 1 16 1 1 2
2006 7 16
2004 1 2
2003 3 3
2002 2 4 1
2001 9 17 12 1 3
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