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Rpolychondritis · A Support Group for Polychondritis (RP)

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Description

A support group for those suffering from Relapsing Polychondritis (RP) and their loved ones. We offer friendship and a shoulder to lean on. We also share information about this disease, how it effects us and our families, and how we are dealing with it.

Everyone is welcome, however we do not allow selling, soliciting, or advertising of any kind. Upon joining, please visit our Files section (from the left menu), where you will find "A Warm Welcome". Throughout our website we have valuable information which we hope will help you on your journey and connect you with others who care and understand.

- 01/11 - In "Files", please see "CLINICAL TRIAL FOR THE STUDY OF ORENCIA (ABATACEPT)IN PATIENTS WITH RELAPSING POLYCHONDRITIS"

- Please go to www.rpstudy.com for the "RP Study" *STILL OPEN* (If you don't want to participate, you can still see the results and print off for your Doctor)

- We are very glad you found us! Our group has now also expanded to Facebook. If you or anyone you know would like to check out our group page there as well, click on this blue title...

RP - Relapsing Polychondritis Awareness and Support on Facebook

AND, if you're not sure about joining either of these, there is a public website as well for you to explore. See "Related Link" at the bottom of this page...Thanks and take care!

OUR MOTTO: "The only way to discover the limits of the possible is to go beyond them into the impossible." unknown

DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS. THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT, AND TREATMENT MAY BE DIFFERENT FOR MANY OF US. THANK YOU!

Message History

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