As a chronic Lyme disease patient who was misdiagnosed with CFS for many
years, if I were you I would try to see a Lyme knowledgeable physician
to get reliable determination as to whether or not you might have Lyme
disease.

CFS and Lyme can look exactly alike. One of the treatments for Lyme
disease , in addition to antbiotics, has been hyperbaric oxygen .

Ellen

[Thanks for the input... If hyperbaric oxygen can help, then I think
EPO can probably also help... If it works, it is less expensive than
several sessions of hyperbaric oxygen and the benefit of high oxygen
lasts 24 hours per day for several months. It is worth trying, I
think. - Ellis]


From: "Linda H. Wish"
Mailing-List: list Rejuvenation@yahoogroups.com; contact
Rejuvenation-owner@yahoogroups.com
Date: Mon, 14 Jun 2004 10:51:01 -0400
Subject: [Rejuvenation] * * * HGH and Bone Death (Avascular Necrosis)


I have not been diagnosed with AVN, but I do have CFS and I have
had terrible, terrible pain in my foot bones and ankle and
sometimes up my legs from there; the growth hormone sadly has not
helped the pain at all. I need 180-200 mg a day of morphine, and
have for a long time (I've taken months off and then have to crawl
around on my hands and knees).

[Growth hormone is great, but it can't do everything, and who
knows what is the cause of your pain? Growth hormone helps
some persons like Peter Longmore with pain, perhaps by helping
to heal whatever was broken, but I don't know what causes your
pain or why growth hormone does or does not relieve anybody's
pain. - Ellis]

I do take supplemental oxygen - when I took the pure thing through
a mask it did get rid of the pain altogether for a few months. Then
the pain returned, and after a period of no supplemental oxygen, I
am now on 2-3 liters/min through a nasal cannula (but who knows
what percent of that is actually breathed in overnight), and I
definitely feel better on oxygen than off, and to go solely by
instinct, I'd say my bones were dying of insufficient oxygen
especially without supplemental oxygen.

[Well this certainly is interesting! If hyperbaric oxygen can
relieve your pain, then I think you have to check your hematocrit
and hemoglobin and perhaps it is lower than your body needs and
you could benefit from EPO (erithropoyetin, a hormone that raises
red blood cells.)

Please study these two pages and show them to your doctor.:

http://www.rajeun.net/hb.html

http://www.rajeun.net/bicycle.html

I hope this helps you. - Ellis]