----- Original Message -----

From: Laurie Hamann

To: RefluxParents@yahoogroups.com

Sent: Thursday, May 16, 2002 6:37 PM

Subject: Re: [RefluxParents] Re: Stacy

This is not Stacy's email address.

----- Original Message -----

From: shoule2001

To: RefluxParents@yahoogroups.com

Sent: Thursday, May 16, 2002 11:59 AM

Subject: [RefluxParents] Re: Stacy

My son was refluxing so bad that he was passing out at 3 months old. 
So I had to keep him inclined for 30 minutes until every feeding and
have been doing that until he was 13 months old.  So he hasn't had
much floor time.  Every time he eats or drinks he had to lay
inclined.  So early on they told me he was going to walk late due to
it.  He is turning 15 months this saturday and not walking.  He can't
even stand by himself yet. 

Stacy



--- In RefluxParents@y..., "Solan" <storans@t...> wrote:
> Hi Stacy,
>
> My son is 9 and when he was 3,  I was told he had Reflux.
> He has also done a few Ph-probe - the last one was about a week ago
and they have also looked inside his tummy a few times. He also have
had an X-ray done.
>
> My son has always been allowed to do the same things as his friends
and he has always been very mobile ;-) No one ever told me to keep
him inmobile - not even when he was little.
>
> Welcome to the list // Solan
>   ----- Original Message -----
>   From: shoule2001
>   To: RefluxParents@y...
>   Sent: Wednesday, May 15, 2002 9:38 PM
>   Subject: [RefluxParents] New to the group
>
>
>   Hi my name is Stacy and my son, Avery, has had reflux since he
was 3
>   months old and is almost 15 months old now.  He had the PH Probe
done
>   a couple months ago.  I cried when they did it.  Very upsetting. 
>   Anyway, he's doing good.  His reflux flares up every once and
again. 
>   My son is behind on walking and they are saying it's due to
keeping
>   him inmobile due to the reflux.  Has anyone else experienced
this?  I
>   have a physical theropist working with him once a week to get his
>   muscles where they should be.  I thought I would introduce myself
to
>   everyone.
>
>   Stacy
>
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>                   
>                    Height:   4567 ft  01234567891011 in
>                           Weight:  
>                           Sex:   F  M
>                         
>                   
>             
>       
>       
>
>   A service of The International Association of Reflux Parents
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.



A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

----- Original Message -----

From: shoule2001

To: RefluxParents@yahoogroups.com

Sent: Thursday, May 16, 2002 11:59 AM

Subject: [RefluxParents] Re: Stacy

My son was refluxing so bad that he was passing out at 3 months old. 
So I had to keep him inclined for 30 minutes until every feeding and
have been doing that until he was 13 months old.  So he hasn't had
much floor time.  Every time he eats or drinks he had to lay
inclined.  So early on they told me he was going to walk late due to
it.  He is turning 15 months this saturday and not walking.  He can't
even stand by himself yet. 

Stacy



--- In RefluxParents@y..., "Solan" <storans@t...> wrote:
> Hi Stacy,
>
> My son is 9 and when he was 3,  I was told he had Reflux.
> He has also done a few Ph-probe - the last one was about a week ago
and they have also looked inside his tummy a few times. He also have
had an X-ray done.
>
> My son has always been allowed to do the same things as his friends
and he has always been very mobile ;-) No one ever told me to keep
him inmobile - not even when he was little.
>
> Welcome to the list // Solan
>   ----- Original Message -----
>   From: shoule2001
>   To: RefluxParents@y...
>   Sent: Wednesday, May 15, 2002 9:38 PM
>   Subject: [RefluxParents] New to the group
>
>
>   Hi my name is Stacy and my son, Avery, has had reflux since he
was 3
>   months old and is almost 15 months old now.  He had the PH Probe
done
>   a couple months ago.  I cried when they did it.  Very upsetting. 
>   Anyway, he's doing good.  His reflux flares up every once and
again. 
>   My son is behind on walking and they are saying it's due to
keeping
>   him inmobile due to the reflux.  Has anyone else experienced
this?  I
>   have a physical theropist working with him once a week to get his
>   muscles where they should be.  I thought I would introduce myself
to
>   everyone.
>
>   Stacy
>
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>                   
>                    Height:   4567 ft  01234567891011 in
>                           Weight:  
>                           Sex:   F  M
>                         
>                   
>             
>       
>       
>
>   A service of The International Association of Reflux Parents
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.



A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

My son was refluxing so bad that he was passing out at 3 months old.
So I had to keep him inclined for 30 minutes until every feeding and
have been doing that until he was 13 months old.  So he hasn't had
much floor time.  Every time he eats or drinks he had to lay
inclined.  So early on they told me he was going to walk late due to
it.  He is turning 15 months this saturday and not walking.  He can't
even stand by himself yet.

Stacy



--- In RefluxParents@y..., "Solan" <storans@t...> wrote:
> Hi Stacy,
>
> My son is 9 and when he was 3,  I was told he had Reflux.
> He has also done a few Ph-probe - the last one was about a week ago
and they have also looked inside his tummy a few times. He also have
had an X-ray done.
>
> My son has always been allowed to do the same things as his friends
and he has always been very mobile ;-) No one ever told me to keep
him inmobile - not even when he was little.
>
> Welcome to the list // Solan
>   ----- Original Message -----
>   From: shoule2001
>   To: RefluxParents@y...
>   Sent: Wednesday, May 15, 2002 9:38 PM
>   Subject: [RefluxParents] New to the group
>
>
>   Hi my name is Stacy and my son, Avery, has had reflux since he
was 3
>   months old and is almost 15 months old now.  He had the PH Probe
done
>   a couple months ago.  I cried when they did it.  Very upsetting.
>   Anyway, he's doing good.  His reflux flares up every once and
again.
>   My son is behind on walking and they are saying it's due to
keeping
>   him inmobile due to the reflux.  Has anyone else experienced
this?  I
>   have a physical theropist working with him once a week to get his
>   muscles where they should be.  I thought I would introduce myself
to
>   everyone.
>
>   Stacy
>
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>
>                    Height:   4567 ft  01234567891011 in
>                           Weight:
>                           Sex:   F  M
>
>
>
>
>
>
>   A service of The International Association of Reflux Parents
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.

----- Original Message -----

From: Solan

To: RefluxParents@yahoogroups.com

Sent: Thursday, May 16, 2002 12:18 AM

Subject: [RefluxParents] Stacy

Hi Stacy,

 

My son is 9 and when he was 3,  I was told he had Reflux.

He has also done a few Ph-probe - the last one was about a week ago and they have also looked inside his tummy a few times. He also have had an X-ray done.

 

My son has always been allowed to do the same things as his friends and he has always been very mobile ;-) No one ever told me to keep him inmobile - not even when he was little.

 

Welcome to the list // Solan

----- Original Message -----

From: shoule2001

To: RefluxParents@yahoogroups.com

Sent: Wednesday, May 15, 2002 9:38 PM

Subject: [RefluxParents] New to the group

Hi my name is Stacy and my son, Avery, has had reflux since he was 3
months old and is almost 15 months old now.  He had the PH Probe done
a couple months ago.  I cried when they did it.  Very upsetting. 
Anyway, he's doing good.  His reflux flares up every once and again. 
My son is behind on walking and they are saying it's due to keeping
him inmobile due to the reflux.  Has anyone else experienced this?  I
have a physical theropist working with him once a week to get his
muscles where they should be.  I thought I would introduce myself to
everyone.

Stacy



A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

----- Original Message -----

From: shoule2001

To: RefluxParents@yahoogroups.com

Sent: Wednesday, May 15, 2002 9:38 PM

Subject: [RefluxParents] New to the group

Hi my name is Stacy and my son, Avery, has had reflux since he was 3
months old and is almost 15 months old now.  He had the PH Probe done
a couple months ago.  I cried when they did it.  Very upsetting. 
Anyway, he's doing good.  His reflux flares up every once and again. 
My son is behind on walking and they are saying it's due to keeping
him inmobile due to the reflux.  Has anyone else experienced this?  I
have a physical theropist working with him once a week to get his
muscles where they should be.  I thought I would introduce myself to
everyone.

Stacy



A service of The International Association of Reflux Parents

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Hi my name is Stacy and my son, Avery, has had reflux since he was 3
months old and is almost 15 months old now.  He had the PH Probe done
a couple months ago.  I cried when they did it.  Very upsetting.
Anyway, he's doing good.  His reflux flares up every once and again.
My son is behind on walking and they are saying it's due to keeping
him inmobile due to the reflux.  Has anyone else experienced this?  I
have a physical theropist working with him once a week to get his
muscles where they should be.  I thought I would introduce myself to
everyone.

Stacy

That's quite a brave and handsome boy you have :)  Best of luck to
you both.

:)Paula

Sorry, both those are US designations. I do know for
certain that Canadian kids have many of the same right
to a free and effective public education. It should,
actually, be the administrator or principal who deals
with this, not the individual teachers.

Thinking good thoughts and hoping you have a good
holiday.

Doris
--- dunninghams <dunninghams@...> wrote:
> --- In RefluxParents@y..., Doris Beers
> <DJ_Beers@y...> wrote:
> > I'm sorry -- the number used is 504, not 405.  But
> do
> > call today. You owe it to yourself and your son.
>
>
> Hi and thanks.  At this time the teachers are
> withdrawing all support
> and extra curicular activities as a form of protest.
>  They will not
> meet with parents.  That is part of the problem.  No
> report cards no
> tutors no support staff no supervising no sports no
> clubs...nothing.
> I am in Canada so I don't know what a 405 is, sorry.
> Once the
> teachers have they're contract, things may change.
>
>                                            Paula
>
>
>


__________________________________________________
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--- In RefluxParents@y..., Doris Beers <DJ_Beers@y...> wrote:
> I'm sorry -- the number used is 504, not 405.  But do
> call today. You owe it to yourself and your son.


Hi and thanks.  At this time the teachers are withdrawing all support
and extra curicular activities as a form of protest.  They will not
meet with parents.  That is part of the problem.  No report cards no
tutors no support staff no supervising no sports no clubs...nothing.
I am in Canada so I don't know what a 405 is, sorry. Once the
teachers have they're contract, things may change.

                                            Paula

I'm sorry -- the number used is 504, not 405.  But do
call today. You owe it to yourself and your son.
--- dunninghams <dunninghams@...> wrote:
> Hi all,
>
> I don't know about you but the season is a puke
> filled one here for
> us.  Too much excitement.  Well, this year we
> haven't been so lucky.
> My sons teacher is mortified by his GERD and is
> constantly telling
> him he is sick (snotty nose and cough) and needs to
> see a Doctor.  I
> tried to get in before school started to talk to her
> and explain his
> GERD but they were not interested and too busy. I
> got called every
> day last week (by my son not the teacher) with
> requests to take him
> home because he had vomitted.
> I finally went and got him and headed directly to
> the Dr.  Yup, not
> sick.  OK teach, proof, now move on..... I was
> called by her the 1st
> week to inform me he was very behind and had some
> behavior "issues".
> I tried to explain that he was suffering GERD
> related problems but
> she didn't believe me.  Two weeks and she was shown,
> by him, that it
> was temporary. He is back up to grade 2 standards.
> They actually
> asked if he could carry a bucket with
> him!!!!!!!!!!!!!!!!!  What
> next, a sign? Plastic splash bib? Tatoo on his
> forehead? No dignity.
> His other
> teacher always understood and cared, this one
> dislikes him intensly,
> is disgusted by the GERD and doesn't want to deal
> with his medical
> issues, at all.  Not one phonecall, except from my
> son saying the
> teacher sent him to call to go home.  I told her if
> he WAS sick he
> wouldn't stop vomitting. He is becoming slightly
> depressed. He KNOWS
> his teacher doesn't like him and why. It is obvious
> by how short she
> is with him and by her reaction to his vomitting.
> How am I supposed
> to deal with this? Any of you know how to deal with
> this?  I would
> appreciate any advise....
>
>                                                Paula
>
>


__________________________________________________
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You need to sit with the principal and possibly the
special ed folk *immediately* to set up accommodations
for your little guy.  There is a process called a 504
where the staff and you and the docs come up with
appropriate accommodations.

Doris
--- dunninghams <dunninghams@...> wrote:
> Hi all,
>
> I don't know about you but the season is a puke
> filled one here for
> us.  Too much excitement.  Well, this year we
> haven't been so lucky.
> My sons teacher is mortified by his GERD and is
> constantly telling
> him he is sick (snotty nose and cough) and needs to
> see a Doctor.  I
> tried to get in before school started to talk to her
> and explain his
> GERD but they were not interested and too busy. I
> got called every
> day last week (by my son not the teacher) with
> requests to take him
> home because he had vomitted.
> I finally went and got him and headed directly to
> the Dr.  Yup, not
> sick.  OK teach, proof, now move on..... I was
> called by her the 1st
> week to inform me he was very behind and had some
> behavior "issues".
> I tried to explain that he was suffering GERD
> related problems but
> she didn't believe me.  Two weeks and she was shown,
> by him, that it
> was temporary. He is back up to grade 2 standards.
> They actually
> asked if he could carry a bucket with
> him!!!!!!!!!!!!!!!!!  What
> next, a sign? Plastic splash bib? Tatoo on his
> forehead? No dignity.
> His other
> teacher always understood and cared, this one
> dislikes him intensly,
> is disgusted by the GERD and doesn't want to deal
> with his medical
> issues, at all.  Not one phonecall, except from my
> son saying the
> teacher sent him to call to go home.  I told her if
> he WAS sick he
> wouldn't stop vomitting. He is becoming slightly
> depressed. He KNOWS
> his teacher doesn't like him and why. It is obvious
> by how short she
> is with him and by her reaction to his vomitting.
> How am I supposed
> to deal with this? Any of you know how to deal with
> this?  I would
> appreciate any advise....
>
>                                                Paula
>
>


__________________________________________________
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctions for all of
your unique holiday gifts! Buy at http://shopping.yahoo.com
or bid at http://auctions.yahoo.com

Hi all,

I don't know about you but the season is a puke filled one here for
us.  Too much excitement.  Well, this year we haven't been so lucky.
My sons teacher is mortified by his GERD and is constantly telling
him he is sick (snotty nose and cough) and needs to see a Doctor.  I
tried to get in before school started to talk to her and explain his
GERD but they were not interested and too busy. I got called every
day last week (by my son not the teacher) with requests to take him
home because he had vomitted.
I finally went and got him and headed directly to the Dr.  Yup, not
sick.  OK teach, proof, now move on..... I was called by her the 1st
week to inform me he was very behind and had some behavior "issues".
I tried to explain that he was suffering GERD related problems but
she didn't believe me.  Two weeks and she was shown, by him, that it
was temporary. He is back up to grade 2 standards. They actually
asked if he could carry a bucket with him!!!!!!!!!!!!!!!!!  What
next, a sign? Plastic splash bib? Tatoo on his forehead? No dignity.
His other
teacher always understood and cared, this one dislikes him intensly,
is disgusted by the GERD and doesn't want to deal with his medical
issues, at all.  Not one phonecall, except from my son saying the
teacher sent him to call to go home.  I told her if he WAS sick he
wouldn't stop vomitting. He is becoming slightly depressed. He KNOWS
his teacher doesn't like him and why. It is obvious by how short she
is with him and by her reaction to his vomitting. How am I supposed
to deal with this? Any of you know how to deal with this?  I would
appreciate any advise....

                                                Paula

Hi Julie.  Welcome to the group.  My name is Patti and my son,
Spencer, is 12 1/2.  We live outside Philadelphia.  Spencer has had
multiple fundoplications done (long long story) but the first was
done just before he turned 4.  He didn't get a G-tube until later as
he wasn't FTT til later.  Spencer was full term but also spent time
in the NICU - 3 weeks due to sepsis and pneumonia.  Spencer was also
diagnosed by a pulmonologist.

I'm sorry to hear that Blake's fundo has come undone.  Unfortunately
it isn't that uncommon.  I hope he's doing OK right now.  Repeating a
fundoplication is a scary prospect but is necessary for some kids as
it was for my son.

Patti

Hi.  My name is Julie.  I live in South Carolina.  I have a 9 1/2
year old son with moderate to severe reflux.. Blake had the Nissen
Fundoplication when he was 3 1/2 yrs. old. He also has a g-button
placed due to Failure to thrive.  Blake was born 15 weeks premature.
He weighed 1lb. 6oz.  We have had different problems with him, but
the reflux has been an on going battle.  We were never guarenteed
that the reflux would be the answer to Blakes feeding problems.
Before the surgery, Blake only weighed 20 lbs. at 31/2 yrs.  It took
us taking him to a pulmonologist to get the answer.  She took his
med. history , had x-rays done and in the same day told us exactly
what was wrong.  This was after we went to another Dr. who said it
was his tonsils and adenoids that needed removal.  We almost lost him
in that surgery.  This Dr. was appauled at the fact that no one did a
study on him to rule out the reflux.
Well Blake's reflux came back full fledge about 2 years ago.  This is
when his lungs collasped and had pneumonia.  The Dr. ordered a ph
probe(what FUN) and it was mild.  So Blake went on the zantac and
Propulcid.  Since then he has been put on Reglan.  I found that the
reglan doen't work as well as the propulcid.  Is there any
alternative to this med.  I have asked several Dr.s that tend to
Blake but they all say he needs both of these to keep his reflux at
bay.
Well this past summer we found out how bad the reflux had gotten.
This was when his lung collasped and he had pneumonia again.  They
just increased the meds.  I still don't ess a change in his reflux
behavior.  We were told that he may have to have the Nissen redone.
Help                                  Julie

Hi Robin

A couple months ago there seemed to be a virus going through the
list.  Its been running fine now but no one has been posting here.
It takes up to 2 weeks to see the full effects of Prilosec so be
patient it will help.  We haven't had any side effects from
Prilosec.  However, I believe the most common side effects are
headache and abdominal pain.

Patti

Robin,

I'm glad you're back!  This site has been quiet since the problems a
couple months ago.  Have you been able to determine what foods your
son is allergic too?  I know its hard.  We tried to do a complete
elimination diet when my son was the same age.  It was very hard but
not impossible.  I hope you get some good insight from the GI and
that the month goes quickly!

Patti

Rebecca,

I know that feeling of wanting to figure things out and get the
results sooner rather than later!  Its frustrating to wait a week for
results.  I'm glad you both got through the pH probe!  When the pH
drops below 4.0, it means there is reflux occurring.  The degree of
severity of reflux isn't dependent on the pH numbers. It is dependent
on the percentage of time spent below 4.0 as well as how long it
takes to clear when the pH drops.  So, if it drops below 4 for a few
seconds, it isn't nearly as significant as if it drops below 4 for 30
minutes.  I hope this information helps you correlate what you saw on
the monitor during the test.

Patti

Begun my Eagle Scout Project. Which is to design, order, and install playground
equipment at James B. Rolle School.  In order to complete the project after
equipment arrives, various supplies will be needed.  Would you please consider a
donation to assite.

Paula,

Hi.  My name is Patti and my son Spencer is 12 1/2.  He has also had
reflux since birth.  I, too, hope that the problems with this site
are a thing of the past!  Welcome to the group.

Patti

Hello!

I am hoping to start sending out a short newsletter once again on a
quarterly basis. If you would like to help with content or have any
suggestions, please email me.  I noticed that the refluxmoms mailing
lists were getting very full, so I started a new list:  refluxmoms6
If you are getting too much mail and would like to go to a smaller
list, please email me or you can go to yahoo and unsubscribe from
your current list and subscribe to refluxmoms6.

Thanks!
Nancy