Hi Rebecca,
I am glad you have gotten through the PH probe... I really didn't like seeing my son go through that either, but I know how important it was. I do remember my sons reading going and staying below 4.0 for more that 30 minutes during his sleep.. I know this wasn't good and could be part of the reason he screams out at times during his sleep, it must be due to the pain. I feel like a bad parent thinking that *by chance* he was outgrowing this disease, but it has come back with a vengeance.... I feel so bad... I hope that you get good news and the answers you are looking for!
Robin
Luke 11, Sayer 7, Jordan 5