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RefluxParents · This mailing list is for parents with older children suffering from Gastroesophageal Reflux or related motility disorders. It
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Re: Digest Number 397   Message List  
Reply | Forward Message #1614 of 1925 |
Re: [RefluxParents] Harrison's surgery

Valerie,

Emma's story is definitely a SUCCESS STORY! I'll try not to let it
drag on & on. . . but here it is in a nutshell:

She was born screaming & never stopped for several months. She
cried on average of 12 to 14 hours per day from the beginning.
Actually, she screamed!! We went through two hospital stays
before my maternity leave was up (4 wks>). She was on Propulsid
& ZAntac. At 9 months, she was put on Prilosec. She also was
diagnosed with failure to thrive, severe asthma, & had 3
pneumonias before she was 1 year old. She was milk & soy
intolerant, too. At 21 months, the doctor recommended surgery.
We hadn't yet read any horror stories, so we were all for it. Four
weeks after surgery, she went off all medications (including asthma
meds.) and has become a PERFECTLY happy & healthy child.
The surgery recovery was tiresome as she didn't want to eat "baby
food" any longer. She also got food stuck at the site & had to go
in to get it removed a week after surgery. After that day, Emma
went 11 months without going to the doctor except for post-op
check-ups. Since then, her MILD asthma has returned, but
nothing else.

As for the fundo type. . . Emma had an open fundo & it really was
no problem. She had a 1 1/2 inch incision just below her ribcage
to one side. They sealed off the incision with a clear looking "glue"
that came off in 7 days by itself. She had very little pain from the
surgery after she was home. The biggest thing was getting her to
eat.

I could go on & on . . . the surgery was the biggest miracle I've
ever seen. I spent days after she was well just watching her play
so peacefully, pain free while I literally cried tears of joy. I know it
doesn't always work out as successfully as with Emma, but we're
definitely willing to take that chance again with Harrison.

Hope this helps.

Email me privately if you'd like. juliew@...

Julie



(Date unavailable)

juliew@...
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Message #1614 of 1925 |
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Hi, My son is also 12 and was found to have a polyp in his stomach about a year ago. His problems are a little different in that he has been on Prilosec for ...
PattiRN820@...
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Apr 30, 2001
3:31 am

Hello Patti, Wow...it is wonderful to hear from someone with a similar problem. Kristopher's polyp was removed two weeks ago through endoscopy. I was nervous...
D. Compton
lizzie6885@...
Send Email
Apr 30, 2001
3:55 am

Hi Donna, My children don't have polyps, but my 2 most severe refluxers (and asthmatics) of the three I have, have hyperplasias in the duodenum. We get ...
waygle@...
Send Email
Apr 30, 2001
6:11 am

Glenda, Wow..three refluxers, I can't even imagine it. I was told that theophylline is a major offender with GERD, although Kristopher was never on ...
D. Compton
lizzie6885@...
Send Email
Apr 30, 2001
3:04 pm

Hello everyone... i am new to this Reflux disease, well sort of... My son who is now 6 1/2 will be going to his specialist appointment with the GI doctor on...
Pippie333@...
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May 1, 2001
12:48 am

Harrison's fundo is scheduled for Thursday, May 17th. Our anniversery is on the 18th, so I suppose we'll enjoy fine cafeteria dining that evening! Really...
Julie Wilkins
juliew@...
Send Email
May 1, 2001
5:27 pm

How old is Emma? My son, Teddy is almost 8 and has had GERD since birth. He has had three endoscopies, has been on and off Prilosec or Previcid for 2 and 1/2...
Valerie Aronson
valerieba@...
Send Email
May 2, 2001
1:30 am

Valerie, Emma's story is definitely a SUCCESS STORY! I'll try not to let it drag on & on. . . but here it is in a nutshell: She was born screaming & never...
Julie Wilkins
juliew@...
Send Email
May 2, 2001
2:13 pm

Hi Valerie, I have 2 children who have had fundos, and I consider both of them to be successful. Anthony's was done 20 months ago, when he was almost 3 yrs...
waygle@...
Send Email
May 5, 2001
12:24 am

Hi Amy, How did your appointment go? I do hope that you got some answers, or at least have started down on the road to getting some. It can take a while to...
Jenny Ollerenshaw
jlo@...
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May 3, 2001
12:29 am

Hi Amy, I am glad that you found this group. Welcome :) I am glad that you are going to follow your instincts, and have this problem investigated. Our children...
waygle@...
Send Email
May 1, 2001
9:12 am

Dear Amy, Welcome to the group. I have a 8 1/2 year old who even after a fundoplication to control his reflux is still having problems. I hope things work out...
ryanmommy@...
Send Email
May 1, 2001
10:32 am

thank u so very much for the words of encouragement.... how long has your son sufferedd??? and are they gonna do anything else for him. what exactly is a ...
Pippie333@...
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May 3, 2001
2:46 am
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