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#164 From: "Terra" <callytb@...>
Date: Fri Jun 26, 2009 3:23 am
Subject: looking for the truth 		callytb
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My husband was diagnosed with RSD a little over a year ago.  We have been thru

the blocks, which have stopped working, physically therapy, and desensitizing

treatments.  None of these have helped.  At this point, the doctors (we have 4)

are suggesting either electrical stimulation (I think they mean the spinal

implant) or burning the nerve.  I have done a lot of research and am getting

mixed answers.  Has anyone been thru either of these treatments that would be

willing to give us some adivse.  The doctors are well intentioned but tend to

blow too much smoke. Also, they've never been thru this.  Frankly, we're scared

of making the wrong disission because both of these sound way too perminant. 

Any advise would be welcome and thanks.


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#165 From: Todd Thorne <jtracer48@...>
Date: Fri Jun 26, 2009 6:35 pm
Subject: Re: looking for the truth 		jtracer48
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Burning the nerve could cause more damage.  putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery itself.  Have they tried an infusion pump yet?  Or even fentalyn pops?   And are these doctors versed in treating RSD/CRPS?  Make sure you get him to a pain specialist that is trained in RSD and find a good anesthesiologist that could offer different types of pain therapy, before thinking about any surgery.  Especially a sympatheticectomy.  I have RSD/CRPS and was in the medical field for 24 yrs before being sidelined by this illness/disease and am certified in Neurology.
Todd

--- On Thu, 6/25/09, Terra <callytb@...> wrote:

From: Terra <callytb@...>
Subject: [RSD_LINKS] looking for the truth
To: RSD_LINKS@yahoogroups.com
Date: Thursday, June 25, 2009, 11:23 PM

My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing treatments. None of these have helped. At this point, the doctors (we have 4) are suggesting either electrical stimulation (I think they mean the spinal implant) or burning the nerve. I have done a lot of research and am getting mixed answers. Has anyone been thru either of these treatments that would be willing to give us some adivse. The doctors are well intentioned but tend to blow too much smoke. Also, they've never been thru this. Frankly, we're scared of making the wrong disission because both of these sound way too perminant. Any advise would be welcome and thanks.



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#166 From: terra bodell <callytb@...>
Date: Sat Jun 27, 2009 2:24 am
Subject: Re: looking for the truth 		callytb
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Thanks for getting back to me.  They have not said anything about an infusion pump or fentalyn pops.  Do you know where I could find more information about that?  We will be meeting with a new anesthesiologist soon.  I'm not real sure what is going on with the one we have now that did the most recent block that failed.  We mentioned to his primary doctor's assistant that we thought he did something different but were not sure.  I guess whatever he did caused enough concern with her that she is switching anesthesiologists (and I guessed she cussed him out on top of it) but we couldn't get much more of her about it.  He is also the one pushing the nerve burning which has been making me nervous.  Otherwise, our doctors seem pretty knowlegeble but then again, if they were not, I probably wouldn't know which is what prompted this quest for knowledge.  Thanks so much.   This is all way scary and its nice to talk to someone that has been thru this.
 
Terra

From: Todd Thorne <jtracer48@...>
To: RSD_LINKS@yahoogroups.com
Sent: Friday, June 26, 2009 11:35:54 AM
Subject: Re: [RSD_LINKS] looking for the truth

Burning the nerve could cause more damage.  putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery itself.  Have they tried an infusion pump yet?  Or even fentalyn pops?   And are these doctors versed in treating RSD/CRPS?  Make sure you get him to a pain specialist that is trained in RSD and find a good anesthesiologist that could offer different types of pain therapy, before thinking about any surgery.  Especially a sympatheticectomy.  I have RSD/CRPS and was in the medical field for 24 yrs before being sidelined by this illness/disease and am certified in Neurology.
Todd

--- On Thu, 6/25/09, Terra <callytb@yahoo. com> wrote:

From: Terra <callytb@yahoo. com>
Subject: [RSD_LINKS] looking for the truth
To: RSD_LINKS@yahoogrou ps.com
Date: Thursday, June 25, 2009, 11:23 PM

My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing treatments. None of these have helped. At this point, the doctors (we have 4) are suggesting either electrical stimulation (I think they mean the spinal implant) or burning the nerve. I have done a lot of research and am getting mixed answers. Has anyone been thru either of these treatments that would be willing to give us some adivse. The doctors are well intentioned but tend to blow too much smoke. Also, they've never been thru this. Frankly, we're scared of making the wrong disission because both of these sound way too perminant. Any advise would be welcome and thanks.




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