I went thru with SSI and had to go thru the appeals court to get my SSI. Don't do it yourself. Go thru a lawyer to do all the filing for you and get everything done quicker. Don't expect to get it on the first try. but don't give up. I know what your son is going thru with RSD, I'm full body. Got if from an electrical shock trauma a little over 4 years ago. Good luck.
Todd
--- On Wed, 8/26/09, sivharding <siviaharding@...> wrote:
From: sivharding <siviaharding@...> Subject: [RSD_LINKS] Searching for help with disability claim To: RSD_LINKS@yahoogroups.com Date: Wednesday, August 26, 2009, 2:22 PM
Hello,
I am new to this group, and not an RSD sufferer, but I take care of my son who is 25 and has RSD as a result of a botched hernia operation. His damage is primarily in his right hip and leg although it has spread to his side now.
We are thinking about applying for Social Security Disability and would love to find others who have either considered going through the process or have successfully negotiated a claim. Specifically, as my son lives in San Diego, we are looking for a disability lawyer who works with RSD cases.
Please email me privately with information. . and thank you so much. What a blessing to find this group and I hope you can point me in the right direction.
Hello,
I am new to this group, and not an RSD sufferer, but I take care of my son who
is 25 and has RSD as a result of a botched hernia operation. His damage is
primarily in his right hip and leg although it has spread to his side now.
We are thinking about applying for Social Security Disability and would love to
find others who have either considered going through the process or have
successfully negotiated a claim. Specifically, as my son lives in San Diego, we
are looking for a disability lawyer who works with RSD cases.
Please email me privately with information.. and thank you so much. What a
blessing to find this group and I hope you can point me in the right direction.
My email: siviaharding@....
With blessings,
Sivia Harding
Because my right hand hurts and I know it is a fine line between doing too
little and doing too much, I am only going to type a little. I am trying to get
with the program. I had a bad hand injury 2 months ago and after about 5 weeks
it became clear that my recovery wasn't really happening except the external
skin part. It is so frightening to look at my hand. Now my other hand is acting
very weird, falling asleep at night and being painful and slow to wake up. I
don't know if it is just tired from over work or is somehow replicating the
right hand's problem. I have 3 medical appointments this week and a definite
diagnosis of RSD. Still there could be glass in the original wound. I hope for
relief. any help iss welcome. pam
Thanks for getting back to me. They have not said anything about an infusion pump or fentalyn pops. Do you know where I could find more information about that? We will be meeting with a new anesthesiologist soon. I'm not real sure what is going on with the one we have now that did the most recent block that failed. We mentioned to his primary doctor's assistant that we thought he did something different but were not sure. I guess whatever he did caused enough concern with her that she is switching anesthesiologists (and I guessed she cussed him out on top of it) but we couldn't get much more of her about it. He is also the one pushing the nerve burning which has been making me nervous. Otherwise, our doctors seem pretty knowlegeble
but then again, if they were not, I probably wouldn't know which is what prompted this quest for knowledge. Thanks so much. This is all way scary and its nice to talk to someone that has been thru this.
Terra
From: Todd Thorne <jtracer48@...> To: RSD_LINKS@yahoogroups.com Sent: Friday, June 26, 2009 11:35:54 AM Subject: Re: [RSD_LINKS] looking for the truth
Burning the nerve could cause more damage. putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery itself. Have they tried an infusion pump yet? Or even fentalyn pops? And are these doctors versed in treating RSD/CRPS? Make sure you get him to a pain specialist that is trained in RSD and find a good anesthesiologist that could offer different types of pain therapy, before thinking about any surgery. Especially a sympatheticectomy. I have RSD/CRPS and was in the medical field for 24 yrs before being sidelined by this illness/disease and am certified in Neurology.
Todd
--- On Thu, 6/25/09, Terra <callytb@yahoo. com> wrote:
From: Terra <callytb@yahoo. com> Subject: [RSD_LINKS] looking for the truth To: RSD_LINKS@yahoogrou ps.com Date: Thursday, June 25, 2009, 11:23 PM
My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing treatments. None of these have helped. At this point, the doctors (we have 4) are suggesting either electrical stimulation (I think they mean the spinal implant) or burning the nerve. I have done a lot of research and am getting mixed answers. Has anyone been thru either of these treatments that would be willing to give us some adivse. The doctors are well intentioned but tend to blow too much smoke. Also, they've never been thru this. Frankly, we're scared of making the wrong disission because both of these sound way too perminant. Any advise would be welcome and thanks.
Burning the nerve could cause more damage. putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery itself. Have they tried an infusion pump yet? Or even fentalyn pops? And are these doctors versed in treating RSD/CRPS? Make sure you get him to a pain specialist that is trained in RSD and find a good anesthesiologist that could offer different types of pain therapy, before thinking about any surgery. Especially a sympatheticectomy. I have RSD/CRPS and was in the medical field for 24 yrs before being sidelined by this illness/disease and am certified in Neurology.
Todd
--- On Thu, 6/25/09, Terra <callytb@...> wrote:
From: Terra <callytb@...> Subject: [RSD_LINKS] looking for the truth To: RSD_LINKS@yahoogroups.com Date: Thursday, June 25, 2009, 11:23 PM
My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing treatments. None of these have helped. At this point, the doctors (we have 4) are suggesting either electrical stimulation (I think they mean the spinal implant) or burning the nerve. I have done a lot of research and am getting mixed answers. Has anyone been thru either of these treatments that would be willing to give us some adivse. The doctors are well intentioned but tend to blow too much smoke. Also, they've never been thru this. Frankly, we're scared of making the wrong disission because both of these sound way too perminant. Any advise would be welcome and thanks.
My husband was diagnosed with RSD a little over a year ago. We have been thru
the blocks, which have stopped working, physically therapy, and desensitizing
treatments. None of these have helped. At this point, the doctors (we have 4)
are suggesting either electrical stimulation (I think they mean the spinal
implant) or burning the nerve. I have done a lot of research and am getting
mixed answers. Has anyone been thru either of these treatments that would be
willing to give us some adivse. The doctors are well intentioned but tend to
blow too much smoke. Also, they've never been thru this. Frankly, we're scared
of making the wrong disission because both of these sound way too perminant.
Any advise would be welcome and thanks.
You were recently invited to participate in a project designed to increase understanding of chronic pain. We are writing to request your participation again.
Specifically, we are conducting a study on persons with chronic pain who are involved in online support groups. We are inviting participants (age 18 and older) who have been and are currently experiencing a recurrent or "nonremitting" chronic pain condition for at least 3 months to complete an online survey. It is anticipated that this survey will take 45-60 minutes of your time to complete.
In addition, we request that you forward/share the survey link to other individuals with chronic pain who may wish to participate in this study so that they may have the opportunity to assist us in gathering information about chronic pain and online support groups. Participants who complete the survey may elect also to be entered into a drawing to win one of twelve $50 VISA gift cards. We expect to have approximately 600 people complete the survey. If everyone enters the drawing your odds of winning one of the gift cards would be 1 in 50.
This study has been approved by Spalding University's Research Ethics Committee in support of dissertation requirements for the completion of a doctorate of psychology (Psy.D.) degree. If you have any questions regarding this study, please feel free to contact Kristen Crafton, M.A. at chronicpaincyberstudy@... or Dr. Steve Katsikas at skatsikas@....
Sincerely,
Kristen Crafton, MA Steve Katsikas, PhD School of Professional Psychology Spalding University
Hello!
You were recently invited to participate in a project designed to increase
understanding of chronic pain. We are writing to request your participation
again.
Specifically, we are conducting a study on persons with chronic pain who are
involved in online support groups. We are inviting participants (age 18 and
older) who have been and are currently experiencing a recurrent or
"nonremitting" chronic pain condition for at least 3 months to complete an
online survey. It is anticipated that this survey will take 45-60 minutes of
your time to complete.
In addition, we request that you forward/share the survey link to other
individuals with chronic pain who may wish to participate in this study so that
they may have the opportunity to assist us in gathering information about
chronic pain and online support groups.
Participants who complete the survey may elect also to be entered into a drawing
to win one of twelve $50 VISA gift cards. We expect to have approximately 600
people complete the survey. If everyone enters the drawing your odds of winning
one of the gift cards would be 1 in 50.
To participate in this study, please click on the following link:
http://www.questionpro.com/akira/TakeSurvey?id=1179975
This study has been approved by Spalding University's Research Ethics Committee
in support of dissertation requirements for the completion of a doctorate of
psychology (Psy.D.) degree. If you have any questions regarding this study,
please feel free to contact Kristen Crafton, M.A. at
chronicpaincyberstudy@... or Dr. Steve Katsikas at
skatsikas@....
Sincerely,
Kristen Crafton, MA
Steve Katsikas, PhD
School of Professional Psychology
Spalding University
You are being invited to participate in a project designed to increase understanding of chronic pain. Specifically, we are conducting a study on persons with chronic pain who are involved in online support groups. We are inviting participants (age 18 and older) who have been and are currently experiencing a recurrent or "nonremitting" chronic pain condition for at least 3 months to complete an online survey. It is anticipated that this survey will take 45-60 minutes of your time to complete.
In addition, we request that you forward/share the survey link to other individuals with chronic pain who may wish to participate in this study so that they may have the opportunity to assist us in gathering information about chronic pain and online support groups.
Participants who complete the survey may elect to be entered into a drawing to win one of twelve $50 VISA gift cards. We expect to have approximately 600 people complete the survey. If everyone enters the drawing your odds of winning one of the gift cards would be 1 in 50.
To participate in this study, please click on the following link:
This study has been approved by Spalding University's Research Ethics Committee in support of dissertation requirements for the completion of a doctorate of psychology (Psy.D.) degree. If you have any questions regarding this study, please feel free to contact Kristen Crafton, M.A. at chronicpaincyberstudy@... or Dr. Steve Katsikas at skatsikas@....
Sincerely,
Kristen Crafton, MA Steve Katsikas, PhD School of Professional Psychology Spalding University