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looking for the truth   Message List  
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Re: [RSD_LINKS] looking for the truth

Burning the nerve could cause more damage.  putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery itself.  Have they tried an infusion pump yet?  Or even fentalyn pops?   And are these doctors versed in treating RSD/CRPS?  Make sure you get him to a pain specialist that is trained in RSD and find a good anesthesiologist that could offer different types of pain therapy, before thinking about any surgery.  Especially a sympatheticectomy.  I have RSD/CRPS and was in the medical field for 24 yrs before being sidelined by this illness/disease and am certified in Neurology.
Todd

--- On Thu, 6/25/09, Terra <callytb@...> wrote:

From: Terra <callytb@...>
Subject: [RSD_LINKS] looking for the truth
To: RSD_LINKS@yahoogroups.com
Date: Thursday, June 25, 2009, 11:23 PM

My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing treatments. None of these have helped. At this point, the doctors (we have 4) are suggesting either electrical stimulation (I think they mean the spinal implant) or burning the nerve. I have done a lot of research and am getting mixed answers. Has anyone been thru either of these treatments that would be willing to give us some adivse. The doctors are well intentioned but tend to blow too much smoke. Also, they've never been thru this. Frankly, we're scared of making the wrong disission because both of these sound way too perminant. Any advise would be welcome and thanks.




Fri Jun 26, 2009 6:35 pm

jtracer48
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Message #165 of 182 |
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My husband was diagnosed with RSD a little over a year ago. We have been thru the blocks, which have stopped working, physically therapy, and desensitizing...
Terra
callytb
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Jun 26, 2009
3:23 am

Burning the nerve could cause more damage.  putting in an scs(spinal cord stimulator) might be of some relief, but could cause damage from the surgery...
Todd Thorne
jtracer48
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Jun 26, 2009
6:36 pm

Thanks for getting back to me.  They have not said anything about an infusion pump or fentalyn pops.  Do you know where I could find more information about...
terra bodell
callytb
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Jun 27, 2009
2:24 am
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