Search the web
Sign In
New User? Sign Up
RSD · This is a list for people that have Reflex Sympathetic Dystrophy,(RSD). This is a list to share information, and gain support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Messages 14940 - 14969 of 15000   Newest  |  < Newer  |  Older >  |  Oldest
Messages: Show Message Summaries   (Group by Topic) Sort by Date v  
#14969 From: mbertr1071@...
Date: Wed Jul 12, 2006 9:11 am
Subject: Re: SAD NEWS
mbertr1071
Offline Offline
Send Email Send Email
 
our blessings prayers and love to them and their families.....mimi


[Non-text portions of this message have been removed]

#14968 From: "Dori Beynon" <woebey@...>
Date: Wed Jul 12, 2006 6:07 am
Subject: SAD NEWS
woebey
Offline Offline
Send Email Send Email
 
Just wanted to share the  sad news of the loss of two very dear RSD friends.
Both of these came as a complete surprise.

Marilee (aka, Dove) Poletsky of Canton Ohio passed away early this
morning.Marilee was just 50 years old and had battled with RSD for 10 years.
Many in the RSD community will probably best remember her for the prayers that
she used to write on a daily basis and share with us. Marilee had been sick and
bedridden for the last 3 weeks but her daughter said that yesterday she was
playing with the grandkids and had eaten some, so it was not expected.

Andy Rutter of Fort Littleton, PA passed away yesterday. Andy has also suffered
from RSD for many many years and just recently underwent surgery and had
developed an infection but we thought he was doing much better. He is best known
as RSDPAPA or popsnodgrass and was a co-owner of the RSDVictims support group.
He leaves behind a 14 year old son named Kenny.

Please keep their families and friends in your prayers and if anyone would like
further information, feel free to contact me.
RSD friends
Dori


[Non-text portions of this message have been removed]

#14967 From: Jameslrank@...
Date: Tue Jul 4, 2006 9:33 am
Subject: Re: Bill Gates and Pepsico hoax
bushog13
Offline Offline
Send Email Send Email
 
Thanks for posting the truth.


[Non-text portions of this message have been removed]

#14966 From: "Dori Beynon" <woebey@...>
Date: Mon Jul 3, 2006 9:43 pm
Subject: Bill Gates and Pepsico hoax
woebey
Offline Offline
Send Email Send Email
 
This is a list for people that have Reflex Sympathetic Dystrophy,(RSD).  This is
a list to share information, and gain support Bill Gates Wants to Share His
Fortune With You-Fiction!






             Summary of the eRumor:
             According to this message, Microsoft founder Bill Gates want to make
sure that his Internet Explorer browser remains on top. So, Microsoft and AOL
are doing an "email beta test." If you forward their email to your friends over
the next two weeks, you'll get money in the mail.

             The Truth:
             This is a hoax. Neither Microsoft nor AOL is participating. Plus,
there is no system being used on the Internet to track forwarded emails in order
to compensate those who forward them.
             It's become one of the most widely circulated hoaxes on the
Internet.

             This is somewhat similar to two other hoaxes, the AOL-Intel Hoax and
the Disneyland-Microsoft hoax.


             A real example of the eRumor as it has appeared on the Internet:

             Version #1

             Dear Friends,

             Please do not take this for a junk letter. Bill Gates is sharing his
fortune. If you ignore this you will repent later. Microsoft and AOL are now the
largest Internet companies and in an effort to make sure that Internet Explorer
remains the most widely used program, Microsoft and AOL are running an e-mail
beta test.

             When you forward this e-mail to friends, Microsoft can and will
track it (if you are a Microsoft Windows user) for a two week time period. For
every person that you forward this e-mail to, Microsoft will pay you $245.00,
for every person that you sent it to that
             forwards it on, Microsoft will pay you $243.00 and for every third
person that receives it, you will be paid $241.00.

             Within two weeks, Microsoft will contact you for your address and
then send you a cheque.
             Version #2


              If she says that this will work - It will work. After all, What
have you got to lose?

              SORRY EVERYBODY.. JUST HAD TO TAKE THE CHANCE!!! I'm an attorney,
And I know the law. This thing is for real. Rest assured AOL and Intel will
follow through with their promises for fear of facing a multimillion-dollar
class action suit similar to the one filed by PepsiCo against General Electric
not too long ago.

              Dear Friends; Please do not take this for a junk letter. Bill Gates
sharing his fortune. If you ignore this, You will repent later.

              Microsoft and AOL are now the largest Internet companies and in an
effort to make sure that Internet Explorer remains the most widely used program,
Microsoft and AOL are running an e-mail beta test.

              When you forward this e-mail to friends, Microsoft can and wi ll
track it (If you are a Microsoft Windows user) For a two weeks time period.

              For every person that you forward this e-mail to, Microsoft will
pay you $245.00 For every person that you sent it to that forwards it on,
Microsoft will pay you $243.00 and for every third person that receives it, You
will be paid $241.00. Within two weeks, Microsoft will contact you for your
address and then send you a check.

              Regards. [Name and contact info removed]


             I thought this was a scam myself, But two weeks after receiving this
e-mail and forwarding it on. Microsoft contacted me for my address and within
days, I receive a check for $24, 800.00. You need to respond before the beta
testing is over. If anyone can affoard this, Bill gates is the man.


              It's all marketing expense to him. Please forward this to as many
people as possible. You are bound to get at least $10,000.00 We're not going to
help them out with their e-mail beta test without getting a little something for
our time. My brother's girlfriend got in on this a few months ago. When i went
to visit him for the Baylor/UT game. She showed me her check. It was for the sum
of $4,324.44 and was stamped "Paid in full"

              Like i said before, I know the law, and this is for real.





   ----- Original Message -----
   From: RSD@yahoogroups.com
   To: RSD@yahoogroups.com
   Sent: Monday, July 03, 2006 4:28 PM
   Subject: [RSD] Digest Number 2026


   This is a list for people that have Reflex Sympathetic Dystrophy,(RSD).  This
is a list to share information, and gain support
   Messages In This Digest (1 Message)
     1. Fwd: Fw: FW: PLEEEEEEASE REEEEEAD! IT WAS ON GOOD MORNING AMERICA From:
kath0829@...
   View All Topics | Create New Topic Message
     1. Fwd: Fw: FW: PLEEEEEEASE REEEEEAD! IT WAS ON GOOD MORNING AMERICA
     Posted by: "kath0829@..." kath0829@...
     Mon Jul 3, 2006 1:06 pm (PST)

     > Read carefully,
     >
     > To All, This is not a joke, It really works, Please believe me, Love,
     Kathy M
     >
     > THIS TOOK TWO PAGES OF THE TUESDAY USA TODAY - IT IS
     > FOR REAL
     >
     > To all of my friends, I do not usually forward
     > messages,
     > But this is from my friend Pearlas Sandborn and she
     > really is
     > an attorney.
     >
     > If she says that this will work - It will work.
     > After all,What have
     > you got to lose?
     >
     > SORRY EVERYBODY.. JUST HAD TO TAKE THE CHANCE!!! I'm
     > an
     > attorney, And I know the law. This thing is for
     > real. Rest assured
     > AOL and &nbs p; Intel will follow through with their
     > promises for
     > fear of facing a multimillion-dollar class action
     > suit similar to the one
     > filed by PepsiCo against General Electric not too
     > long ago.
     >
     > Dear Friends; Please do not take this for a junk
     > letter.
     > Bill Gates sharing his fortune. If you ignore this,
     > You will repent
     > later.
     >
     > Microsoft and AOL are now the largest Internet
     > companies
     > and in an effort to make sure that Internet Explorer
     > remains the
     > most widely used program, Microsoft and AOL are
     > running an e-mail
     > beta test.
     >
     > When you forward this e-mail to friends, Microsoft
     > can and will
     > track it (If you are a Microsoft Windows user) For a
     > two weeks
     > time period.
     >
     > For every person that you forward this e-mail to,
     > Microsoft will pay
     > you $245.00 For every person that you sent it to
     > that forwards it on,
     > Microsoft will pay you $243.00 and for every third
     > person that receives
     > it, You will be paid $241.00. Within two weeks,
     > Microsoft will contact
     > you for your address and then send you a check.
     >
     > Regards. Charles S Bailey General Manager Field
     > Operations
     > 1-800-842-2332 Ext. 1085 or 904-1085 or RNX 292-1085
     >
     [mailto:Charles_Bailey@...]Charles_Bailey@...
     >
     >
    
[mailto:Charles_bailey@...]p;msg=A44FACE5-D622-41C2-821D-E3A16377D110&star
     t=0&len=3
     > href="mailto:Charles_bailey@..."
     > target=_blank>Charles_bailey@...
     >
     > thought this was a scam myself, But two weeks after
     > receiving this
     > e-mail and forwarding it on. Microsoft contacted me
     > for my address and
     > within days, I received a check for $24,800.00. You
     > need to respond
     > before the beta testing is over. If anyone can
     > affoard this, Bill gates is the
     > man.
     >
     > It's all marketing expense to him. Please forward
     > this to as many
     > people as possible. You are bound to get at least
     > $10,000.00
     > We're not going to help them out with their e-mail
     > beta test without
     > getting a little something for our time. My
     > brother's girlfriend got in
     > on this a few months ago. When i went to visit him
     > for the Baylor/UT
     > game. She showed me her check. It was for the sum of
     > $4,324.44 and was stamped
     > "Paid
     > in full"
     >
     > Like i said before, I know the law, and this is for
     > real.
     >
     >
     > No virus found in this incoming message.
     > Checked by AVG Free Edition.
     > Version: 7.1.385 / Virus Database: 268.4.4/318 -
     > Release Date: 18/04/2006
     >
     >

     [Non-text portions of this message have been removed]


     Back to top Reply to sender | Reply to group | Reply via web post
     Messages in this topic (1) New Message Search
   Find the message you want faster. Visit your group to try out the improved
message search.



   Share feedback on the new changes to Groups

   Visit Your Group
   Need to Reply?
   Click one of the "Reply" links to respond to a specific message in the Daily
Digest.
   Create New Topic | Visit Your Group on the Web
   Messages | Files | Photos | Links | Database | Polls | Members | Calendar
   No moderator or any member of the group may be
   held liable either personally or collectively for any statements made on
behalf this group.  All opinions are of a personal nature and or belief created
by individual experience and choice and should not be misconstrued as a means to
start, stop or add anything to the treatment plan including but not limited to
medication or any procedures recommended or prescribed to any person by their
personal physician, specialist or any member of the medical profession.  No
persons be it general members or any moderator of RSD-list is claiming to or is
attempting to practice medicine without a license or to give the perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and apart from
this acknowledgment.

   If you feel you do not understand this disclaimer, please ask questions.  If
you feel that you cannot comply with this disclaimer, you MUST unsubscribe from
this group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
   Thank you,
   Owner/Moderater, Paula Diviney



   You are receiving a Daily Digest Change Delivery Settings
   Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe


[Non-text portions of this message have been removed]

#14965 From: kath0829@...
Date: Mon Jul 3, 2006 3:37 pm
Subject: Fwd: Fw: FW: PLEEEEEEASE REEEEEAD! IT WAS ON GOOD MORNING AMERICA TODAY S...
kath0829@...
Send Email Send Email
 
>          Read carefully,
>
>  To All, This is not a joke, It really works, Please believe me, Love,
Kathy M
>
> THIS TOOK TWO PAGES OF THE TUESDAY USA TODAY - IT IS
> FOR REAL
>
> To all of my friends, I do not usually forward
> messages,
> But this is from my friend Pearlas Sandborn and she
> really is
> an attorney.
>
> If she says that this will work - It will work.
> After all,What have
> you got to lose?
>
> SORRY EVERYBODY.. JUST HAD TO TAKE THE CHANCE!!! I'm
> an
> attorney, And I know the law. This thing is for
> real. Rest assured
> AOL and &nbs p; Intel will follow through with their
> promises for
> fear of facing a multimillion-dollar class action
> suit similar to the one
> filed by PepsiCo against General Electric not too
> long ago.
>
> Dear Friends; Please do not take this for a junk
> letter.
> Bill Gates sharing his fortune. If you ignore this,
> You will repent
> later.
>
> Microsoft and AOL are now the largest Internet
> companies
> and in an effort to make sure that Internet Explorer
> remains the
> most widely used program, Microsoft and AOL are
> running an e-mail
> beta test.
>
> When you forward this e-mail to friends, Microsoft
> can and will
> track it (If you are a Microsoft Windows user) For a
> two weeks
> time period.
>
> For every person that you forward this e-mail to,
> Microsoft will pay
> you $245.00 For every person that you sent it to
> that forwards it on,
> Microsoft will pay you $243.00 and for every third
> person that receives
> it, You will be paid $241.00. Within two weeks,
> Microsoft will contact
> you for your address and then send you a check.
>
> Regards. Charles S Bailey General Manager Field
> Operations
> 1-800-842-2332 Ext. 1085 or 904-1085 or RNX 292-1085
>
[mailto:Charles_Bailey@...]Charles_Bailey@...
>
>
[mailto:Charles_bailey@...]p;msg=A44FACE5-D622-41C2-821D-E3A16377D110&star
t=0&len=3
> href="mailto:Charles_bailey@..."
> target=_blank>Charles_bailey@...
>
> thought this was a scam myself, But two weeks after
> receiving this
> e-mail and forwarding it on. Microsoft contacted me
> for my address and
> within days, I received a check for $24,800.00. You
> need to respond
> before the beta testing is over. If anyone can
> affoard this, Bill gates is the
> man.
>
> It's all marketing expense to him. Please forward
> this to as many
> people as possible. You are bound to get at least
> $10,000.00
> We're not going to help them out with their e-mail
> beta test without
> getting a little something for our time. My
> brother's girlfriend got in
> on this a few months ago. When i went to visit him
> for the Baylor/UT
> game. She showed me her check. It was for the sum of
> $4,324.44 and was stamped
> "Paid
> in full"
>
> Like i said before, I know the law, and this is for
> real.
>
>
> No virus found in this incoming message.
> Checked by AVG Free Edition.
> Version: 7.1.385 / Virus Database: 268.4.4/318 -
> Release Date: 18/04/2006
>
>


[Non-text portions of this message have been removed]

#14964 From: BsrYoung@...
Date: Wed Jun 21, 2006 5:53 pm
Subject: Message from RSDSA
got2getbette...
Offline Offline
Send Email Send Email
 
Complex Regional Pain Syndrome
By Steven A. King, MD, MS, Psychiatric  Times
URL:
http://www.psychiatrictimes.com/article/showArticle.jhtml?articleId=189500108

June 2006, Vol. XXIII, No. 7


Of all the common pain  syndromes, perhaps none is so misunderstood by both
physicians and patients as  complex regional pain syndrome (CRPS). Types I and
II of CRPS are the current  names for what were previously called reflex
sympathetic dystrophy (RSD) and  causalgia, respectively. Because of limited
knowledge about these disorders,  patients who suffer what is frequently very
severe
pain often have their  condition misdiagnosed and do not receive appropriate
treatment.

Although many physicians are still relatively unfamiliar with these
disorders, the first in-depth description was made over 140 years ago by the
physician often considered the father of American neurology, S. Weir Mitchell, 
and
his colleagues, based on their observations of soldiers wounded in the Civil
War. They noted that some soldiers who were wounded in the hand or foot
developed a burning pain that was exacerbated by touching the affected body 
part.
This syndrome was named causalgia, Greek for “burning pain.”

Multiple similar conditions were described over the years and received a
variety of names, including post-traumatic injuries, algodystrophy, and Sudeck
atrophy. In 1953, John Bonica, one of the pioneers in the study of pain,
suggested that these disorders be subsumed under “reflex sympathetic
dystrophy.”
However, the validity of this term has been questioned frequently. One of the
major problems encountered in its use is the uncertainty of the role of the
sympathetic nervous system (SNS) in this disorder. The fact that there is a
great deal of variability in response to sympathetic blocks suggests that in
many patients, the pain is not due to a disorder of the SNS.

Because of  this and the general confusion over RSD and causalgia, the
International  Association for the Study of Pain renamed these syndromes in its
classification  of chronic pain.1 RSD became CRPS type I and causalgia became
CRPS
type II. The  diagnostic criteria for CRPS are shown in the Table (see June
2006 Psychiatric  Times, page 9). The difference between types I and II is that
in the latter,  there is evidence of a definable nerve lesion.

Two terms used to  describe the pain, allodynia and hyperalgesia, are notable
in the criteria for  both types of CRPS. Allodynia is pain due to a stimulus
that is not usually  painful and is commonly the most dramatic presenting
symptom of these disorders.  Patients with this problem may wear loose-fitting
clothing to limit the amount  of contact between it and the skin in the affected
area. In more severe cases,  patients may complain that even having bedsheets
touching the body part can  cause severe pain. In hyperalgesia, a normally
painful stimulus causes more  discomfort than expected. Both allodynia and
hyperalgesia are covered by the  more general term “hyperesthesia,” an
increased
sensitivity to stimulation.

The frequency of occurrence of CRPS is unclear. A recent study of  patients
with fractures of the distal radius reported that CRPS type I developed  in
18%.2 Another study of 162 soldiers wounded in the Iraqi war who were seen in
pain clinics reported that 4.3% suffered CRPS type II and 1.9%, CRPS type I.3
Based on reports that patients with CRPS often see a number of physicians
before  their condition is diagnosed correctly, it appears that many cases are
never  diagnosed. Type I may especially go unrecognized because of the absence
of
an  identifiable peripheral nerve injury and the usual relationship of the
disorder  to some form of trauma, ranging from an accident-induced injury to
surgery or  diseases that can cause pain, including myocardial infarction and
post-herpetic  neuralgia. Since pain is an expected sequela of these events, the
possibility of  CRPS may not be considered by health care providers for lengthy
periods.

Unfortunately, because many patients with CRPS appear “normal” and  because
pain such as allodynia seems so bizarre and so foreign to most laypeople  and
even some health care professionals, patients may be mistakenly thought to  be
either exaggerating their pain for secondary gain or even malingering. One of
  the saddest things is that these patients may find their pain discounted by
so  many others and may be stigmatized as falsifying their discomfort.

The  cause of CRPS remains a mystery. A variety of physiologic mechanisms
have been  proposed. The classic view that the pain is due to hyperactivity of
the SNS has  been discounted, although the SNS appears to be involved in some of
the  symptoms, most notably the edema, blood flow, and sudomotor changes.
Currently,  CRPS is believed to be due to a combination of peripheral and
central
factors.4  Among the peripheral mechanisms that have been proposed are an
inflammatory  process, peripheral sensitization, and changes in sodium channels.
These  processes may result in central changes, including an exaggerated
response to  the peripheral input and a reduction of descending inhibitory
pathways.

Because the severity of the original trauma does not appear to be  correlated
with these disorders, the significance of psychological factors and  the
possibility that they may play an important role—if not the major role—in 
the
development of the pain have often been the focus of attention. Despite this
speculation, there have never been consistent findings of a correlation between
preexisting mental disorders and the development of CRPS. However, it has
been  proposed that there may be changes in the brain, most notably in the
primary  sensory cortex, secondary to CRPS, and that these can lead to a
distorted
body  image.5,6 What role these changes may play in the pain and other symptoms
of  CRPS is still the subject of speculation.

In my next column, I will  address the diagnostic workup and treatment of
CRPS.

Dr King is clinical  professor of psychiatry at the New York University
School of Medicine.

References
1. Merskey H, Bogduk N, eds.Classification of Chronic  Pain: Descriptions of
Chronic Pain Syndromes and Definitions of Pain Terms. 2nd  ed. Seattle: IASP
Press; 1994.
2. Puchalski P, Zyluk A. Complex regional pain  syndrome type 1 after
fractures of the distal radius: a prospective study of the  role of
psychological
factors. J Hand Surg (Br). 2005;30:574-580.
3. Cohen  SP, Griffith S, Larkin TM, et al. Presentation, diagnoses,
mechanisms of injury,  and treatment of soldiers injured in Operation Iraqi
Freedom:
an epidemiological  study conducted At two military pain management centers.
Anesth Analg. 2005;  101:1098-1103.
4. McBride A, Atkins R. Complex regional pain syndrome. Curr  Orthop.
2005;19:155-165.
5. Moseley GL. Distorted body image in complex  regional pain syndrome.
Neurology. 2005;65:773.
6. Birklein F, Rowbotham MC.  Does pain change the brain? Neurology.
2005;65:666-667.





[Non-text portions of this message have been removed]

#14963 From: Carolnjo@...
Date: Sun Apr 30, 2006 4:29 am
Subject: Re: Elaine and itching
Carolnjo@...
Send Email Send Email
 
In a message dated 4/27/2006 11:58:54 A.M. Pacific Daylight Time,  Elaine
wrote:

I have  been having bad iching spells and I
don't know if it is the neurotin or  rsd.


Hi Elaine....

Welcome back! And I want to let you know how happy I am for you that you
finally settled with WC. It must be a huge load off your shoulders!

As for the itching, this is just a thought I had (and have had experienced)
as to the cause of the itching and what to do for it. Many people are
sensitive  to pain medications that contain codeine or other opioid drugs and it
will
cause your skin to itch like crazy. Benadryl may help if you take it before
you  take your pain med doses and it helps the histamine reaction you are
receiving  from the pain pills. Some pain meds are worse than others, and in
other
people,  it doesn't cause any itching at all. I personally have noticed that
since I just  switched to a new pain med this past month, that I am having
itching, even on my  head. I have been on opioid therapy for my CRPS/RSD for so
long, I had forgotten  that can be a frequent reaction, especially when it is
something new, or you are  not used to taking any pain pills that contain opioid
derivatives. I also had a  friend over to visit last Saturday nite who had
just had dental work done and  had received a prescription for Codeine for the
pain. She was scratching like  crazy and I tore my medicine cabinet and first
aid kit apart looking for  something to put her out of the misery. That
experience reminded me that  the cause of the itching I have been going through
the
past month was more  likely than not due to the fact that my body is just not
used to that  medication. Soaking in epsom salts, using calamine lotion, aloe
vera are  other things that will help. As your body becomes used to the
medication, the  itching should stop. If you have not had any changes in your
medications,  however, and are used to taking the meds at the doses you are
currently
on for  some time, there are other reasons for itching, including the
interaction  between the medications you are on, and how your liver is filtering
them
out of  your body. Hopefully you are not taking anything with tylenol (like
Vicodin) as  your primary medication for your CRPS/RSD pain because the added
tylenol can be very toxic to your liver when used for longer than one would
take  it in an acute setting. I don't know that I have ever heard of CRPS/RSD
causing skin itching, but the medications we take for the pain control can
cause  it. Usually that is something that you adjust to. If not, I would go to
see
  my primary care doctor and discuss it, or perhaps an allergist in case the
two  are not even related whatsoever!

Love and soft hugs, Carolyn

People who don't like cats
were probably mice in an earlier life.



[Non-text portions of this message have been removed]

#14962 From: BsrYoung@...
Date: Wed Apr 26, 2006 8:29 am
Subject: Msge from RSDSA re: World's softest sock
got2getbette...
Offline Offline
Send Email Send Email
 
Sue Holcomb suggested that I send out an e-alert about "the world's softest
sock."  We often receive inquiries about difficulties encountered in  finding
appropriate clothing.  Sue's e-mail is   auntsuzymouse@....


"I believe I have  found something so wonderful I need to share with you. A
close friend of mine,  who also has RSD, had been shopping this past weekend
and found the softest sock  in the world! She called me as soon as she arrived
home letting me know so I  could share this discovery at my support group
meeting tonight. This is sooo  great I now forward this information to all of
you.

We all know so well  how difficult it is for us to wear clothing or even have
a sheet lay lightly  over our feet and legs. This sock called, “The World’s
Softest Sock,” allows you  to feel as if you are “walking on clouds!” The
sock is recommended for: larger  feet/ankles; diabetic edema; and sensitive
skin.
It’s made for a wide fit and  comes in a variety of colors and styles besides
offering the consumer a one year  guarantee! These special socks for men and
women are available three  collections: the everyday; classic; and cozy
collections. You’ll discover over a  40% roomy cross stretch with the Wide Fit
style, a dense cushion that will keep  feet dry and comfortable inhibiting
blisters
and hotspots, as well as a soft  seam that is ultra smooth and comfortable.
They are designed this way so they  will help to reduce the rubbing and
irritation that other toe seams seem to  cause.

These are available at Hanes and Socks Galore Stores, retailing  for $13.50
(their price $7.59) or you can go online to:    www.worldssoftest.com and
purchase them there. I have set an account up for my  support groups so we can
buy
in bulk and eliminate shipping charges.

You  will also find that the company manufactures robes for both  genders."



[Non-text portions of this message have been removed]

#14961 From: "elaine1882002" <elaine188@...>
Date: Tue Apr 25, 2006 10:44 am
Subject: HI!
elaine1882002
Offline Offline
Send Email Send Email
 
I haven't been on here for awhile. Just sort of moving on and deeling
with rsd best as I can. I did however get ppt from comp, I thank God
it been a long hard battle. I have been having bad iching spells and I
don't know if it is the neurotin or rsd. I have told my Dr. but he
doesn't listen. The only thing that help's is bath's in epsom salts
and I use avon skin so soft,or cortaid. Sometimes I take benidryl
which help's sleep. Does anyone else have skin problems?

#14960 From: BsrYoung@...
Date: Sat Apr 15, 2006 10:27 am
Subject: Notice from RSDSA
got2getbette...
Offline Offline
Send Email Send Email
 
Pain Doctors Denounce DEA
March 22, 2006
News Summary
A leading  pain-medication expert says the Drug Enforcement Administration
(DEA) is failing  to strike a proper balance between preventing illicit
diversion of pain drugs  and ensuring that patients get the medicine they need,
Medical News Today  reported March 21.
"It is now apparent to me that the spirit of cooperation  that existed
between the DEA and the pain community to achieve the goal of  balance has
broken down," said Howard A. Heit, M.D., a pain doctor who  previously had
collaborated with the agency in an aborted effort to provide  guidance to
physicians on prescribing pain medication. "The DEA seems to have  ignored the
input
and needs of the healthcare professionals and pain patients  who actually
prescribe, dispense and use controlled substances."
Heit wrote  one of seven commentaries on the subject in the February 2006
issue of the  journal Pain Medicine, published by the American Academy of Pain
Medicine  (AAPM).
Doctors charge that the DEA has used the courts to bypass state  medical
boards and go after doctors who prescribe pain medications. AAPM  President
Scott M. Fishman, M.D. worries that a recently passed law requiring  statesto
track prescriptions of controlled substances "may be intended less as a
clinical tool than as a physician mouse trap."
"Healthcare decisions,  including those involving legitimate use of
analgesics, must remain in the  hands of healthcare professionals," wrote
Fishman. The DEA should be required  to work with health agencies and
healthcare professionals in finding common  ground and reaching the rational
position
of balance that is in the public's  best interest, Healthcare oversight must
remain within agencies whose primary  responsibility is to improve public
health. Contrary to recent events in  Washington, we must continue to insist
that
drug abuse can be curbed without  undermining patients in pain and striving
for such policies is in the best  interest of society. The least we can do is to
make sure that the casualties of  the war on drugs are not suffering patients
who legitimately deserve  relief."





[Non-text portions of this message have been removed]

#14959 From: "Dori Beynon" <woebey@...>
Date: Sat Apr 8, 2006 3:38 am
Subject: Fw: Telephone Support Group for people in Westchester & Fairfield County
woebey
Offline Offline
Send Email Send Email
 
Friendly Connections, a not-for-profit organization, serving Westchester,
NY & Fairfield county in Connecticut, wants to determine the feasibility of
starting a chronic pain telephone support group for people with CRPS.
> If you are from Westchester or Fairfield county and want to participate,
please call 203 661-8841 and ask to speak to Dawn White or Leese Jamison.
>

[Non-text portions of this message have been removed]

#14958 From: "Dori Beynon" <woebey@...>
Date: Sat Apr 8, 2006 3:31 am
Subject: RSD Newspaper Article
woebey
Offline Offline
Send Email Send Email
 
Here is the URL for an article that appeared in the Tri-valley Herald on
April 3rd:
> Cut & paste in your browser
>
> http://www.insidebayarea.com/search/ci_3662778
>
> It's a good example of how you can promote greater awareness of CRPS by
telling your story.
>
> Here are some suggestions of other ways you can get involved:
>
> Cut & paste in your browser:
> http://rsds.org/6/volunteer_2.html

[Non-text portions of this message have been removed]

#14957 From: mbertr1071@...
Date: Mon Apr 3, 2006 12:19 pm
Subject: Re: Apology and clarification
mbertr1071
Offline Offline
Send Email Send Email
 
me too steve!!!  blessings  mims


[Non-text portions of this message have been removed]

#14956 From: kath0829@...
Date: Mon Apr 3, 2006 2:53 pm
Subject: Re: Apology and clarification
kath0829@...
Send Email Send Email
 
Steve,

I don't think you did anything wrong and hope that you stay with this
group. When important people like yourself drop out of a group, the
group dissolves.  I know of no other RSD group and don't know what I
would do without this group. Yes, there are a few bad apples, but that
happens in every circumstance and in every group there is whether it be
at work, school, home, or church organizations.  Please think twice
before leaving. If you still decide after this plea to leave, then I
would appreciate a personal e-mail telling me where I can go to find a
well organized RSD group.

Thank you for all of your time you put into this group.  "I" personally
appreciate everything you've done.

Thanks, again.

Kat (kath0829@...)

-----Original Message-----
From: BsrYoung@...
To: RSD@yahoogroups.com
Sent: Fri, 31 Mar 2006 00:21:36 EST
Subject: [RSD] Apology and clarification

   Hello ALL....
On a regular basis, I receive e-mail notices from RSDSA.ORG and forward
  them
to here as well as to a support group in Oklahoma.   There are a  few
here
that have exchanged e-mails with those in OK as well.
There have been times where if a particular subject gets started, that
there
are multiple of us exchange our views and comments.  One such subject
came
along involving a person of the OK group stating that he was leaving
the  group
because of the content he'd received from others.  I responded back  by
stating I had never seen such postings, and since I was an assigned
moderator
to
that group, I assured this person that I would be more watchful for
them.
I was in error when I posted that message, because it apparently came
across
this support group vs. the OK support group.

I apologize for such a blunder of a mistake, as we all do at some point
and
time.   I can assure ALL of you, and those offended, that this will
never
occur on my part again, as I am resigning as a member from this support
  group.

God has healed me of the disease in this crazy world we call RSD, and I

guess you don't need my further input.

I'd like to say "Thank you" to all of whom I made friendships with, and
  once
again apologize to the ones who I've offended.

Best wishes to all of you,
Steve


[Non-text portions of this message have been removed]



No moderator or any member of the group may be
held liable either personally or collectively for any statements made
on behalf
this group.  All opinions are of a personal nature and or belief
created by
individual experience and choice and should not be misconstrued as a
means to
start, stop or add anything to the treatment plan including but not
limited to
medication or any procedures recommended or prescribed to any person by
their
personal physician, specialist or any member of the medical profession.
  No
persons be it general members or any moderator of RSD-list is claiming
to or is
attempting to practice medicine without a license or to give the
perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and
apart from
this acknowledgment.

If you feel you do not understand this disclaimer, please ask
questions.  If you
feel that you cannot comply with this disclaimer, you MUST unsubscribe
from this
group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
Thank you,
Owner/Moderater, Paula Diviney


Yahoo! Groups Links

#14955 From: BsrYoung@...
Date: Fri Mar 31, 2006 12:21 am
Subject: Apology and clarification
got2getbette...
Offline Offline
Send Email Send Email
 
Hello ALL....
On a regular basis, I receive e-mail notices from RSDSA.ORG and forward  them
to here as well as to a support group in Oklahoma.   There are a  few here
that have exchanged e-mails with those in OK as well.
There have been times where if a particular subject gets started, that  there
are multiple of us exchange our views and comments.  One such subject  came
along involving a person of the OK group stating that he was leaving the  group
because of the content he'd received from others.  I responded back  by
stating I had never seen such postings, and since I was an assigned moderator 
to
that group, I assured this person that I would be more watchful for  them.
I was in error when I posted that message, because it apparently came  across
this support group vs. the OK support group.

I apologize for such a blunder of a mistake, as we all do at some point and
time.   I can assure ALL of you, and those offended, that this will  never
occur on my part again, as I am resigning as a member from this support  group.

God has healed me of the disease in this crazy world we call RSD, and I
guess you don't need my further input.

I'd like to say "Thank you" to all of whom I made friendships with, and  once
again apologize to the ones who I've offended.

Best wishes to all of you,
Steve


[Non-text portions of this message have been removed]

#14954 From: kath0829@...
Date: Fri Mar 24, 2006 3:37 am
Subject: Re: Reply to Carolyn..........
kath0829@...
Send Email Send Email
 
Daphne,

You are the reason I joined the group. I very rarely write back. The
full-bodied RSD makes it very difficult. All I do is read. It is very
helpful. I, too, had a photographic memory with a very important job.
Now my biggest responsibility is remembering when to take my meds. I'm
in a lot of pain....I guess I forgot again.

Carolyn, I'm sorry that all of us forgot about your surgery. I'm sorry
to say this so bluntly but when you tell us that we all forgot about
your surgery, this only makes all of us feel horrible. I thought this
group was supposed to make us feel better about our horrific lives.
Carolyn, if I can't remember if I took my medication  today, how am I
supposed to remember about your surgery. I am sorry that so many people
are not caring anymore about the group and are leaving. This makes me
sad but I can't blame them.  Everyone has to do what is right for them.


So far, this letter took me one hour to type. I am tired but this just
had to be said.

Carolyn, I'm sorry I was fresh......Daphne, please don't leave the
group.....I need you.  Carolyn, I think when you wrote that letter
about all of us forgetting about your surgery, you were having a bad
day and didn't feel good.  I understand what it's like to be alone and
think that no one cares.  We all care even though we didn't say
anything about your surgery.  Life goes on....even with the RSD..

Thanks for listening.........Kat

-----Original Message-----
From: Fernandez, Daphne A <dfernand@...>
To: RSD@yahoogroups.com
Sent: Wed, 15 Mar 2006 10:03:28 -0800
Subject: [RSD] Reply to Carolyn..........

   Hi Carolyn,
At this time, it almost feels like if I answer you now it will seem
like I am
responding because of my guilty feelings, but I want to assure you,
that is not
the case.
For me, the reason that I didn't write to you after your surgery is
simply that
I forgot.  I think that with my RSD and the meds that I take for it,
the
absolute worst thing that has happened to me, is that my memory is
basically
non-existent anymore.  Now, I am a person who used to have almost a
photographic
memory and for conversations that I have had, my memory was impeccable.
  Now,
sometimes I forget to turn off burners at home while I am cooking.  I
forget all
sorts of things and mostly I forget conversations that I have had.  So,
Carolyn,
I am sorry I forgot you were having surgery.  I honestly wish there was
more I
could say to you but honestly, that is the only reason I haven't
written.
With Jim.  His condition is probably the worst of RSD people that I
have ever
met or heard of.  You name it, Jim seems to have it and I do feel so
sorry for
him. There really isn't much we can do for each other except keep in
touch and
let others know what we are doing to try to keep our RSD in control.
It does
seem like there is new treatments coming to us all the time but as
anyone who
has had RSD for anytime knows, all the new treatments that they keep
coming up
with while we are pretty much willing to try anything we are also
feeling like
guinea pigs aren't we?  I just need for the pain to go away and to stay
away.
What ever it takes for that dream to come true.
Well Carolyn, Like Jim, and probably Paula since we haven't heard hide
nor hair
  from her in years and I even did a search for her on the internet about
a year
or so ago............I suspect she has totally left the group.  anyway,
I, like
them, will probably leave the group because like those people I
mentioned,  I
haven't really gotten much from this group in a very long time.
Carolyn you
take care and try, try, try as best as you can to change the world.
(just a
smidge) .
God Bless.
Daphne
(Seattle)
-----Original Message-----
From: RSD@yahoogroups.com [mailto:RSD@yahoogroups.com]On Behalf Of
Carolnjo@...
Sent: Tuesday, March 14, 2006 5:32 PM
To: RSD@yahoogroups.com
Subject: [RSD] Re: Sorry it's been a bother




In a message dated 3/10/2006 11:00:47 AM Pacific Standard Time, Steve
writes:

Whow!  whow!  Jim...I don't know who's giving the problems, and I
guess I
must have not seen the postings you are referring to. but you are a
big
part of
this group.  In fact, if it weren't for you and  your computer
technology
know
how, this support group's e-mail site  wouldn't be here.  It  came
about
because of you and George put  together.  Granted some of us here  are
called
"moderators" but  that is only a title, and it takes you to help keep
this
together.


I completely understand what Jim is going through and feeling. I
subscribed
to this message board in March of 1999, the same year and month that it
began.
I  did not know that ANYONE was moderating the board since Paula
beginning
this  site. I do know that most of the original members no longer post,
and that

I  have met a lot of new people since I joined. But I have posted with
questions  that were very important to me, especially when I was facing
major
back
surgery  and asked repeatedly for ANY input from ANYONE who had had
surgery
after having  an RSD dx. Not one single person posted a response to me.
I feel
like Jim does.  This group used to be a positive, supportive group, and
to give
those who do  write me off the loop, thanks for being there. But I
don't get
that feeling at  all anymore. I had surgery right before Christmas...no
one
wrote a single thing  to me asking how it went. For a support group,
this site
is
not what it was set  up to be and has gone way to "cliquey" for me.
Whoever
wrote hateful and  negative email to Jim should be removed from the
group.
That's what a  moderator's job is to do...to moderate posts before they
are
posted. Steve, you  need to be forthright in telling the entire group
that you
are
completely cured  of RSD and the reasons why, as you wrote to me.

I don't feel like I have gotten any support here for months and
months...maybe going on a year now....except off the boards. So Jim is
not the
only one
who feels like no one really gives a damn.

Carolyn

When I took the leap,
I had faith I would find a net;
Instead  I learned I could fly.
- John Calvi,  1994




[Non-text portions of this message have been removed]



No moderator or any member of the group may be
held liable either personally or collectively for any statements made
on behalf
this group.  All opinions are of a personal nature and or belief
created by
individual experience and choice and should not be misconstrued as a
means to
start, stop or add anything to the treatment plan including but not
limited to
medication or any procedures recommended or prescribed to any person by
their
personal physician, specialist or any member of the medical profession.
  No
persons be it general members or any moderator of RSD-list is claiming
to or is
attempting to practice medicine without a license or to give the
perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and
apart from
this acknowledgment.

If you feel you do not understand this disclaimer, please ask
questions.  If you
feel that you cannot comply with this disclaimer, you MUST unsubscribe
from this
group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
Thank you,
Owner/Moderater, Paula Diviney


Yahoo! Groups Links








No moderator or any member of the group may be
held liable either personally or collectively for any statements made
on behalf
this group.  All opinions are of a personal nature and or belief
created by
individual experience and choice and should not be misconstrued as a
means to
start, stop or add anything to the treatment plan including but not
limited to
medication or any procedures recommended or prescribed to any person by
their
personal physician, specialist or any member of the medical profession.
  No
persons be it general members or any moderator of RSD-list is claiming
to or is
attempting to practice medicine without a license or to give the
perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and
apart from
this acknowledgment.

If you feel you do not understand this disclaimer, please ask
questions.  If you
feel that you cannot comply with this disclaimer, you MUST unsubscribe
from this
group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
Thank you,
Owner/Moderater, Paula Diviney


Yahoo! Groups Links

#14953 From: "Fernandez, Daphne A" <dfernand@...>
Date: Wed Mar 15, 2006 6:03 pm
Subject: Reply to Carolyn..........
sealady7of11
Offline Offline
Send Email Send Email
 
Hi Carolyn,
At this time, it almost feels like if I answer you now it will seem like I am
responding because of my guilty feelings, but I want to assure you, that is not
the case.
For me, the reason that I didn't write to you after your surgery is simply that 
I forgot.  I think that with my RSD and the meds that I take for it, the
absolute worst thing that has happened to me, is that my memory is basically
non-existent anymore.  Now, I am a person who used to have almost a photographic
memory and for conversations that I have had, my memory was impeccable.  Now,
sometimes I forget to turn off burners at home while I am cooking.  I forget all
sorts of things and mostly I forget conversations that I have had.  So, Carolyn,
I am sorry I forgot you were having surgery.  I honestly wish there was more I
could say to you but honestly, that is the only reason I haven't written.
With Jim.  His condition is probably the worst of RSD people that I have ever
met or heard of.  You name it, Jim seems to have it and I do feel so sorry for
him. There really isn't much we can do for each other except keep in touch and
let others know what we are doing to try to keep our RSD in control.  It does
seem like there is new treatments coming to us all the time but as anyone who
has had RSD for anytime knows, all the new treatments that they keep coming up
with while we are pretty much willing to try anything we are also feeling like
guinea pigs aren't we?  I just need for the pain to go away and to stay away. 
What ever it takes for that dream to come true.
Well Carolyn, Like Jim, and probably Paula since we haven't heard hide nor hair
from her in years and I even did a search for her on the internet about a year
or so ago............I suspect she has totally left the group.  anyway, I, like
them, will probably leave the group because like those people I mentioned,  I
haven't really gotten much from this group in a very long time.   Carolyn you
take care and try, try, try as best as you can to change the world. (just a
smidge) .
God Bless.
Daphne
(Seattle)
-----Original Message-----
From: RSD@yahoogroups.com [mailto:RSD@yahoogroups.com]On Behalf Of
Carolnjo@...
Sent: Tuesday, March 14, 2006 5:32 PM
To: RSD@yahoogroups.com
Subject: [RSD] Re: Sorry it's been a bother




In a message dated 3/10/2006 11:00:47 AM Pacific Standard Time, Steve  writes:

Whow!  whow!  Jim...I don't know who's giving the problems, and I  guess I
must have not seen the postings you are referring to. but you are a  big
part of
this group.  In fact, if it weren't for you and  your computer  technology
know
how, this support group's e-mail site  wouldn't be here.  It  came about
because of you and George put  together.  Granted some of us here  are called
"moderators" but  that is only a title, and it takes you to help keep  this
together.


I completely understand what Jim is going through and feeling. I subscribed
to this message board in March of 1999, the same year and month that it began.
I  did not know that ANYONE was moderating the board since Paula beginning
this  site. I do know that most of the original members no longer post, and that
I  have met a lot of new people since I joined. But I have posted with
questions  that were very important to me, especially when I was facing major
back
surgery  and asked repeatedly for ANY input from ANYONE who had had surgery
after having  an RSD dx. Not one single person posted a response to me. I feel
like Jim does.  This group used to be a positive, supportive group, and to give
those who do  write me off the loop, thanks for being there. But I don't get
that feeling at  all anymore. I had surgery right before Christmas...no one
wrote a single thing  to me asking how it went. For a support group, this site
is
not what it was set  up to be and has gone way to "cliquey" for me. Whoever
wrote hateful and  negative email to Jim should be removed from the group.
That's what a  moderator's job is to do...to moderate posts before they are
posted. Steve, you  need to be forthright in telling the entire group that you
are
completely cured  of RSD and the reasons why, as you wrote to me.

I don't feel like I have gotten any support here for months and
months...maybe going on a year now....except off the boards. So Jim is not the 
only one
who feels like no one really gives a damn.

Carolyn

When I took the leap,
I had faith I would find a net;
Instead  I learned I could fly.
- John Calvi,  1994




[Non-text portions of this message have been removed]



No moderator or any member of the group may be
held liable either personally or collectively for any statements made on behalf
this group.  All opinions are of a personal nature and or belief created by
individual experience and choice and should not be misconstrued as a means to
start, stop or add anything to the treatment plan including but not limited to
medication or any procedures recommended or prescribed to any person by their
personal physician, specialist or any member of the medical profession.  No
persons be it general members or any moderator of RSD-list is claiming to or is
attempting to practice medicine without a license or to give the perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and apart from
this acknowledgment.

If you feel you do not understand this disclaimer, please ask questions.  If you
feel that you cannot comply with this disclaimer, you MUST unsubscribe from this
group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
Thank you,
Owner/Moderater, Paula Diviney


Yahoo! Groups Links

#14952 From: "Fernandez, Daphne A" <dfernand@...>
Date: Wed Mar 15, 2006 5:34 pm
Subject: RE: INTERNAL ORGANS
sealady7of11
Offline Offline
Send Email Send Email
 
Hi Jerry,
I have heard of RSD spreading to Internal organs but I personally have (I don't
think) experienced that.
I do have more to write but I will save it for another time.
God Bless.
Daphne

-----Original Message-----
From: RSD@yahoogroups.com [mailto:RSD@yahoogroups.com]On Behalf Of
KLaro21266@...
Sent: Tuesday, March 14, 2006 5:53 PM
To: RSD@yahoogroups.com
Subject: [RSD] INTERNAL ORGANS


I was just wondering if anyone has had a problem with their RSD  going to
their internal organs?

My doctor says that it is unlikely, but I have been getting some  very severe
pain in my lower back area, on the right and left. Some say  that this is
kidney stones and I have had them recently, but with the pain as  severe as it
has been I kind of think that the RSD is spreading to my internal  organs.
Anyone have any experience with that?

Jerry


[Non-text portions of this message have been removed]



No moderator or any member of the group may be
held liable either personally or collectively for any statements made on behalf
this group.  All opinions are of a personal nature and or belief created by
individual experience and choice and should not be misconstrued as a means to
start, stop or add anything to the treatment plan including but not limited to
medication or any procedures recommended or prescribed to any person by their
personal physician, specialist or any member of the medical profession.  No
persons be it general members or any moderator of RSD-list is claiming to or is
attempting to practice medicine without a license or to give the perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and apart from
this acknowledgment.

If you feel you do not understand this disclaimer, please ask questions.  If you
feel that you cannot comply with this disclaimer, you MUST unsubscribe from this
group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
Thank you,
Owner/Moderater, Paula Diviney


Yahoo! Groups Links

#14951 From: mbertr1071@...
Date: Wed Mar 15, 2006 9:32 am
Subject: Re: INTERNAL ORGANS
mbertr1071
Offline Offline
Send Email Send Email
 
jerry  my GI dr says my rsd is going internal.....he is very knowlwdgable in
rsd as well......he did a hida scanas well to check gall bladder  the pain
yuor having and where could be related tothat as well...best of luck .....mimi


[Non-text portions of this message have been removed]

#14950 From: KLaro21266@...
Date: Tue Mar 14, 2006 8:53 pm
Subject: INTERNAL ORGANS
klaro21266
Offline Offline
Send Email Send Email
 
I was just wondering if anyone has had a problem with their RSD  going to
their internal organs?

My doctor says that it is unlikely, but I have been getting some  very severe
pain in my lower back area, on the right and left. Some say  that this is
kidney stones and I have had them recently, but with the pain as  severe as it
has been I kind of think that the RSD is spreading to my internal  organs.
Anyone have any experience with that?

Jerry


[Non-text portions of this message have been removed]

#14949 From: Carolnjo@...
Date: Tue Mar 14, 2006 8:32 pm
Subject: Re: Sorry it's been a bother
Carolnjo@...
Send Email Send Email
 
In a message dated 3/10/2006 11:00:47 AM Pacific Standard Time, Steve  writes:

Whow!  whow!  Jim...I don't know who's giving the problems, and I  guess I
must have not seen the postings you are referring to. but you are a  big
part of
this group.  In fact, if it weren't for you and  your computer  technology
know
how, this support group's e-mail site  wouldn't be here.  It  came about
because of you and George put  together.  Granted some of us here  are called
"moderators" but  that is only a title, and it takes you to help keep  this
together.


I completely understand what Jim is going through and feeling. I subscribed
to this message board in March of 1999, the same year and month that it began.
I  did not know that ANYONE was moderating the board since Paula beginning
this  site. I do know that most of the original members no longer post, and that
I  have met a lot of new people since I joined. But I have posted with
questions  that were very important to me, especially when I was facing major
back
surgery  and asked repeatedly for ANY input from ANYONE who had had surgery
after having  an RSD dx. Not one single person posted a response to me. I feel
like Jim does.  This group used to be a positive, supportive group, and to give
those who do  write me off the loop, thanks for being there. But I don't get
that feeling at  all anymore. I had surgery right before Christmas...no one
wrote a single thing  to me asking how it went. For a support group, this site
is
not what it was set  up to be and has gone way to "cliquey" for me. Whoever
wrote hateful and  negative email to Jim should be removed from the group.
That's what a  moderator's job is to do...to moderate posts before they are
posted. Steve, you  need to be forthright in telling the entire group that you
are
completely cured  of RSD and the reasons why, as you wrote to me.

I don't feel like I have gotten any support here for months and
months...maybe going on a year now....except off the boards. So Jim is not the 
only one
who feels like no one really gives a damn.

Carolyn

When I took the leap,
I had faith I would find a net;
Instead  I learned I could fly.
- John Calvi,  1994




[Non-text portions of this message have been removed]

#14948 From: BsrYoung@...
Date: Mon Mar 13, 2006 4:31 pm
Subject: FYI from RSDSA
got2getbette...
Offline Offline
Send Email Send Email
 
Background:   Section 4541 of the Balanced Budget Act of 1997  (BBA) required
the Centers for Medicare & Medicaid Services (CMS) to impose  financial
limitations or caps on outpatient physical, speech-language and  occupational
therapy services by all providers, other than hospital outpatient  departments.
The law required a combined cap for physical therapy  and speech-language
pathology, and a separate cap for occupational  therapy.   Due to a series of
moratoria enacted subsequently to the  BBA, the caps were only in effect in 1999
and for a few months in 2003.   With the expiration of the most recent
moratorium, the caps were reinstated on  January 1, 2006 at $1,740 for each cap.

RSD has been granted an automatic  exception to the above limitation.


Go to this URL for more  information (cut & paste in your  browser):
http://www.cms.hhs.gov/apps/media/press/release.asp?Counter=1782



[Non-text portions of this message have been removed]

#14947 From: mbertr1071@...
Date: Fri Mar 10, 2006 1:36 pm
Subject: Re: Sorry that it has been a bother.
mbertr1071
Offline Offline
Send Email Send Email
 
yes jim  dont let a few bad apples spoil it fo ryou!!.....if you ran across
soem unsympathetic people,  they can kiss my ,,,well ok.then...stay jim...it
takes a village.....                 hugs  mimi


[Non-text portions of this message have been removed]

#14946 From: "Daphne Fernandez" <dfernand@...>
Date: Fri Mar 10, 2006 6:23 pm
Subject: Re: Sorry that it has been a bother.
sealady7of11
Offline Offline
Send Email Send Email
 
--- In RSD@yahoogroups.com, BsrYoung@... wrote:
>
> Whow! whow!  Jim...I don't know who's giving the problems, and I
guess I
> must have not seen the postings you are referring to. but you are a
big  part of
> this group.  In fact, if it weren't for you and your computer
technology know
> how, this support group's e-mail site wouldn't be here.  It  came
about
> because of you and George put together.  Granted some of us here
are called
> "moderators" but that is only a title, and it takes you to help
keep  this together.
> The whole purpose of having this place, is to speak out the
problems,
> suggestions, experiences, etc. to get us ALL through the crazy
world we call  RSD.
> Jim your voice and speaking out is just as vital as anyone
else's.  If you,
> as a back bone of this group can't speak out what you  want, then
the rest of
> us are in that same place as well.
>
> I ask you to reconsider.   If you leave, then this group does not
have the
> support I thought it had, and I will join you as well.
>
> Steve
>
>***********************************************************
Dear Jim,
I agree with Steve.
I don't know who has been giving you grief but in my book, they
should be the ones to leave.  Jim, you are a really important part of
this group and if you leave, I will leave also.
Best Regards,
Daphne
(Seattle)

#14945 From: BsrYoung@...
Date: Fri Mar 10, 2006 1:12 pm
Subject: Re: Sorry that it has been a bother.
got2getbette...
Offline Offline
Send Email Send Email
 
Whow! whow!  Jim...I don't know who's giving the problems, and I  guess I
must have not seen the postings you are referring to. but you are a big  part of
this group.  In fact, if it weren't for you and your computer  technology know
how, this support group's e-mail site wouldn't be here.  It  came about
because of you and George put together.  Granted some of us here  are called
"moderators" but that is only a title, and it takes you to help keep  this
together.
The whole purpose of having this place, is to speak out the problems,
suggestions, experiences, etc. to get us ALL through the crazy world we call 
RSD.
Jim your voice and speaking out is just as vital as anyone  else's.  If you,
as a back bone of this group can't speak out what you  want, then the rest of
us are in that same place as well.

I ask you to reconsider.   If you leave, then this group does not  have the
support I thought it had, and I will join you as well.

Steve


[Non-text portions of this message have been removed]

#14944 From: Jim Kubisak <guenter40_2000@...>
Date: Fri Mar 10, 2006 4:19 pm
Subject: Sorry that it has been a bother.
guenter40_2000
Offline Offline
Send Email Send Email
 
To All,

    I am just writing to let you all know that I will
not be emailing anymore. This last year has been a
tough one for me and I know that I have been a
depressed even in my emails. I could not believe some
of the answers that I got after my last email. I
thought this was a place where I could just say what
was going on and how I felt about it. I did not think
that I was being a "crybaby" as I was told about my
RSD. I hold no grudge against anyone. Thank you all
for being there when I needed someone to talk to. I
hope you all have better days ahead. As always I will
end by telling you all to take care of yourselves.

                  Good Luck To You All
                          Jim


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

#14943 From: kath0829@...
Date: Fri Mar 10, 2006 3:55 am
Subject: i thought this would make everyone feel abit better. It helped me
kath0829@...
Send Email Send Email
 
Subject: Fw: If this doesn't touch your heart you dont have one




          [Image removed]


    [Image removed]


      [Image removed]


       Slow Dance







This poem was written by a terminally ill young girl in a New York
Hospital.





It was sent by a medical doctor - Make sure to read what is in the
closing statement AFTER THE POEM.





SLOW DANCE





Have you ever watched kids




On a merry-go-round?




Or listened to the rain




Slapping on the ground?




Ever followed a butterfly's erratic flight?




Or gazed at the sun into the fading night?




You better slow down.




Don't dance so fast.




Time is short.




The music won't last.





Do you run through each day




On the fly?




When you ask How are you?




Do you hear the reply?




When the day is done




Do you lie in your bed




With the next hundred chores




Running through your head?




You'd better slow down




Don't dance so fast.




Time is short.




The music won't last.





Ever told your child,




We'll do it tomorrow?




And in your haste,




Not see his sorrow?




Ever lost touch,




Let a good friendship die




Cause you never had time




To call and say,"Hi"




You'd better slow down.




Don't dance so fast.




Time is short.




The music won't last.




When you run so fast to get somewhere




You miss half the fun of getting there.




When you worry and hurry through your day,




It is like an unopened gift....




Thrown away.




Life is not a race.




Do take it slower




Hear the music




Before the song is over.




--------------------





FORWARDED




E-MAILS ARE TRACKED TO OBTAIN THE TOTAL COUNT.





Dear All:





PLEASE pass this mail on to everyone you know -




even to those you don't know!





It is the request of a special girl who





will soon leave this world due to cancer.





This young girl has 6 months left to live, and as her dying wish,





She wanted to send a letter telling everyone to live





their life to the fullest, since she never will.





She'll never make it to prom, graduate from high





school, or get married and have a family of her own.





By you sending this to as many people as possible,





you can give her and her family a little hope,





because with every name that this is sent to,





The American Cancer Society





will donate 3 cents per name to her treatment and recovery plan.





One guy sent this to 500 people! So I know that we can





at least send it to 5 or 6 ---




(just think ,it could be you one day).




It's not even your money, just your time!





PLEASE PASS ON AS A LAST REQUEST





Dr. Dennis Shields, Professor





Department of Developmental and Molecular Biology




1300 Morris Park Avenue




Bronx, New York 10461







     [Image removed]





  CONFIDENTIALITY NOTICE: This e-mail/fax and its attachments may
contain PRIVILEGED and CONFIDENTIAL INFORMATION and/or PROTECTED
PATIENT HEALTH INFORMATION intended solely for the use of Saint Vincent
Catholic Medical Centers of New York (SVCMC) and the recipient(s) named
above. If you are not the intended recipient, or the employee or agent
responsible for delivering this message to the intended recipient, you
are hereby notified that any review, dissemination, distribution,
printing, or copying of this e-mail message and/or any attachments is
strictly prohibited. If you have received this transmission in error,
please notify the sender immediately and permanently delete this e-mail
[shred the document] and any attachments.

#14942 From: BsrYoung@...
Date: Wed Mar 8, 2006 10:14 am
Subject: Re: FDA to investigate Fentanyl Patches
got2getbette...
Offline Offline
Send Email Send Email
 
In a message dated 3/7/2006 7:40:51 P.M. Central Standard Time,
mikimdev@... writes:

So far  it works great.  It covers my entire right side except of course my
head.  Everyone says there is nothing to stimulate there  anyway.



LOL!!   They say that about me at times too! LOL!

Thanks for your message.
Steve


[Non-text portions of this message have been removed]

#14941 From: "Michael Grindrod" <mikimdev@...>
Date: Wed Mar 8, 2006 1:38 am
Subject: Re: FDA to investigate Fentanyl Patches
eggs1jason2002
Offline Offline
Send Email Send Email
 
No offense Steve.  I also agree with you that what the government does is
sometimes a waste of energy.  It could try to get patients more information and
facts on how to read the use, risks and contraindications of what medication(s)
they are taking.  By all means one of the more important fact is to ask your
doctor if all medications you are taking or will be taking are compatible with
each other.

I also just had my stimulator redone.  I had the new and improved version that
Medtronic's has.  So far it works great.  It covers my entire right side except
of course my head.  Everyone says there is nothing to stimulate there anyway.

Mike
   ----- Original Message -----
   From: BsrYoung@...
   To: RSD@yahoogroups.com
   Sent: Tuesday, March 07, 2006 9:54 AM
   Subject: Re: [RSD] FDA to investigate Fentanyl Patches


   Thanks Mike for your input, and I have to agree with you.  But, like
   anything else, whenever the government gets involved in something, it usually 
gets
   messed up.
   The posting I sent was sent to me, and I forwarded it on to two  groups.  So
   I hope you don't take it as it was me who wrote the  e-mail.
   Steve


   [Non-text portions of this message have been removed]



   No moderator or any member of the group may be
   held liable either personally or collectively for any statements made on
behalf this group.  All opinions are of a personal nature and or belief created
by individual experience and choice and should not be misconstrued as a means to
start, stop or add anything to the treatment plan including but not limited to
medication or any procedures recommended or prescribed to any person by their
personal physician, specialist or any member of the medical profession.  No
persons be it general members or any moderator of RSD-list is claiming to or is
attempting to practice medicine without a license or to give the perception as
such.  Accepting membership to RSD-list is automatic acceptance of this
disclaimer and no signed disclaimer needs to be filed separate and apart from
this acknowledgment.

   If you feel you do not understand this disclaimer, please ask questions.  If
you feel that you cannot comply with this disclaimer, you MUST unsubscribe from
this group by sending an email to RSD-list unsubscribe@yahoogroups.com or by
contacting pdivine1@...
   Thank you,
   Owner/Moderater, Paula Diviney





------------------------------------------------------------------------------
   YAHOO! GROUPS LINKS

     a..  Visit your group "RSD" on the web.

     b..  To unsubscribe from this group, send an email to:
      RSD-unsubscribe@yahoogroups.com

     c..  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


------------------------------------------------------------------------------



[Non-text portions of this message have been removed]

#14940 From: BsrYoung@...
Date: Tue Mar 7, 2006 9:54 am
Subject: Re: FDA to investigate Fentanyl Patches
got2getbette...
Offline Offline
Send Email Send Email
 
Thanks Mike for your input, and I have to agree with you.  But, like
anything else, whenever the government gets involved in something, it usually 
gets
messed up.
The posting I sent was sent to me, and I forwarded it on to two  groups.  So
I hope you don't take it as it was me who wrote the  e-mail.
Steve


[Non-text portions of this message have been removed]

Messages 14940 - 14969 of 15000   Newest  |  < Newer  |  Older >  |  Oldest
Advanced
Add to My Yahoo!      XML What's This?

Copyright 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help