Dear Daphne, I have been trying to send a message to (sealady7of11)by clicking the highlighted name at the top of a post. I'm wondering if I am sending the...
... the ... sending ... cause ... to ... I ... ************************************************* Hi Vanessa! I did finally get your last e-mail I don't use...
OK so I have a SCS and it really helps my leg pain...LOTS! but what are we supposed to do about the back spasms??? sitting, standing, laying down (I'm at work)...
dear daphne, i'm so sorry to hear about your back spasms... and like lots of folks, probably, i can relate. i have two kinds of spasms -- one truly just...
there is a good article on treating breakthrough pain with opioids by a pain specialist who deals with crps on www.medscape.com. you may need to register [it's...
How do I get in touch with the Group Owner, Paula Divine? I have tried to send an e-mail by clicking on her name but it has gotten returned. Thanks....
Hi All, I know it's been a long time but, I have been through 10 months of hell I wouldn't wish on anyone, well maybe a couple of people. On October the 4th...
I have to agree with you Jim, as we have simularities. My scs is an implanted Medtronics unit, that runs off a remote. I too am at about a 90% relief, at...
Jim Yeah for you!!!!!!!!!!!!!! My SCS has been a god-send also. I don't know
what I would do without it. Just remember though, what is good for one does not...
Hello, Does anyone know if it's safe for someone with RSD to donate bone marrow? My husband has RSD. Last week his aunt was diagnosed with Leukemia. Everyone...
GreenEyez1978@...
Oct 5, 2003 2:08 am
13419
Finally some positive feedback about the SCS !! I too have the Medtronics implant, and this has truly turned my life around too. The procedure was done 2 years...
... glaucoma and ... to all the ... Lisa, I have been looking back at some old posts and came across yours about macular degeneration. There is a new treatment...
In a message dated 10/5/03 5:14:15 AM Eastern Daylight Time, ... dear karen, thanks for the response. there is a trial of photodynamic therapy at a nearby...
Huh? I'm confused... I did not know this was Jim's idea??? OOOhhhh I'm telling... LOL angelic44@... wrote: JIm I think the T-shirt's would be a good idea...
Yes I'm finding also with the colder and wetter weather the amount of relief goes down but, I wouldn't trade the SCS for a Billion dollars. My calf muscle has...
I understand not wanting to give people false hope or not try other means to relieve the pain before having to go to such a drastic measure such as we have,...
What type of restictions do you have with your SCS after the initial 8 weeks of minimal spine movement? I'm not allowed to run, play golf, ride horseback , or...
Dear All, With all of the bad things that have been going on in the last year one has to look to anything that helps you even a little bit. I just got done...
Jim...Hey man, try to keep lookin' up. I know it's difficult. We ALL here know that as well. We're ALL in this group together, to support and lift each ...
... bone ... Leukemia. ... Thanks :) ... ************************************************************* Brandy, I work in Cancer Research and first, I truly...
I am the same way-anything that can jar the spine. So no waterskiing for me, amusement park rides etc.... But hey, it could be worse-I still can do other ...
I think this is something your husband should talk to his doctor about. I know when I wanted to donate blood when 9/11 struck and was refused because of the...
In a message dated 10/6/2003 10:30:58 AM Pacific Daylight Time, ... I was wondering about blood too just out of curiousity. Thank you! Brandy Connell [Non-text...
GreenEyez1978@...
Oct 6, 2003 6:37 pm
13432
In a message dated 10/6/2003 10:24:10 AM Pacific Daylight Time, ... Thank you for getting back to me. Any information is helpful :) Brandy Connell [Non-text...
GreenEyez1978@...
Oct 6, 2003 6:37 pm
13433
... Hi Brandy, Your very welcome...any information I can give you I will be glad to pass on. I have worked in Cancer Research for about fifteen years ...
Hi everyone, this is Lori. I ran my suggestion by the owners about putting two people together to have information on them so we dont lose anyone in the rsd...
... I am a silent reader but I too have a good success rate with the scs. I was in a wheel chair and had 24 hour nursing care 1 week from a rest home at the...
homesblue@...
Oct 8, 2003 4:37 am
13436
I would be interested also... testpeachy <Testpeachy@...> wrote:Hi everyone, this is Lori. I ran my suggestion by the owners about putting two people...
hi all, after 17 months since the onset, i finally have a firm rsd diagnosis and a good doctor. i met my new neurologist today. he spent two hours with me,...
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