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RSD · This is a list for people that have Reflex Sympathetic Dystrophy,(RSD). This is a list to share information, and gain support
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Messages 12911 - 12940 of 14998   Oldest  |  < Older  |  Newer >  |  Newest
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12911
Hi All Within the next couple of days I will be leaving for Fort Campbell Kentucky to meet and wait to bring home my son-in-law Marc. We aren't sure how long ...
Marilee Poletsky
paangel53
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Jul 1, 2003
8:05 pm
12912
CAROLNJO THIS IS LAURA IN FL AND I WANTED TO THANK YOU FOR YOUR REPLY, I WOULD LOVE TO SEE IF ANYONE HAS EVER HAD THE SCS IN FOR A EXTENDED AMOUNT OF TIME...
laura ducey
laura_ducey
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Jul 1, 2003
10:57 pm
12913
laura the SCS has to be replaced or should I say the battery needs to be changed every 4-5 yrs... Mine died about 4.5 years.. but since I have had my battery...
Jeanne Brattin
mahtaz55
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Jul 2, 2003
12:26 am
12914
THANK YOU SO MUCH FOR YOUR INFORMATION OF YOUR PERSONAL EXPERIENCE! I CERTAINLY APPRECIATE IT MORE THAN WORDS CAN SAY AND ACTUALLY WOULD LIKE TO KNOW HOW YOU...
laura ducey
laura_ducey
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Jul 2, 2003
1:42 am
12915
Laura I had the same thing sympathectomy from the left hand to face.. top thorastic release.. that was the WORST surgery I have ever had.. ouchhhhh I want to...
Jeanne Brattin
mahtaz55
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Jul 2, 2003
2:10 am
12916
Hi Marty, Well, I asked my surgeon (podiatrist) here about surgeons on the west coast and these are the two he recommmended: In Washington, Dr. Jeff...
Deborah J Holt
djhslim@...
Send Email
Jul 2, 2003
12:25 pm
12917
I SENT YOU A YAHOO IM GREETING TO SEE IF YOU WOULD LIKE TO CHAT THAT WAY ABOUT THE SCS AND RSD EXPERIENCE, MAYBE WE CAN COMPARE NOTES! THANK YOU SO MUCH LAURA...
laura ducey
laura_ducey
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Jul 2, 2003
6:38 pm
12918
... Hi Laura... I agree with you on that 100%. It is not just for RSD now that the SCS is being used, but other neurological disorders. Similar technology is...
Carolnjo@...
bixie425
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Jul 2, 2003
7:48 pm
12919
BUT, if it is successful, then there should be no hype, correct? The way I'm kind of looking at it, is that if it works like the trial unit did, and I don't...
BsrYoung@...
got2getbette...
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Jul 2, 2003
10:27 pm
12920
I totally agree with you Steve. Phil ... correct? The way ... did, and I ... many other ... experiencing ... going to hurt to ... a foreign ... the same...
Phil
yank75087
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Jul 2, 2003
11:22 pm
12921
STEVE THIS IS LAURA IN FL AND I AM NOT SURE, THAT IS WHY I AM POSING THE QUESTION TO ALL SUFFER'S AND DOCTORS. HERE IS MY COUNT SO FAR OF THE DOCTORS - THIS ...
laura ducey
laura_ducey
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Jul 3, 2003
1:00 am
12922
CAROLYN THIS IS LAURA IN FL AND I AGREE I WROTE EARLIER I AM POSING THE QUESTIONS TO ALL OF YOU TO ALSO ASK YOUR OWN DOCTORS THE QUESTION AND RESPOND BACK. I ...
laura ducey
laura_ducey
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Jul 3, 2003
1:12 am
12923
PHIL DOES THAT MEAN YOU WOULD PICK THE SCS? IF YOU HAD TO PICK 1. SCS WITH A LEAD GOING UP AND DOWN; 2. MORPHINE PUMP; OR 3. SYMPATHECTOMY FOR UPPER AND...
laura ducey
laura_ducey
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Jul 3, 2003
1:24 am
12924
I have had a scs since jan. of 1997. It was my last resort. It got me over the hurdle of extreme pain. I did not look at it as a foreign object but as like a...
homesblue@...
Send Email
Jul 3, 2003
1:50 am
12925
i Have never had mine replaced or anything go wrong with it. The insurace company offered to update me with the newest one out so I took the offer. But I ...
homesblue@...
Send Email
Jul 3, 2003
1:56 am
12926
How long have you had yours, if I may ask? Thanks, Steve [Non-text portions of this message have been removed]...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:10 am
12927
Hi Laura, Yeah I'm in agreement with you too. The problem that I'm facing now, is the stupid w/c insurance doesn't yet want to spend the $ on the permanent...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:17 am
12928
Laura, Your tally and questions are fine. I'm glad that you do ask and post messages as well. I have just as many as you and all of the others in our group....
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:27 am
12929
Thanks Phil! I appreciate it. Steve [Non-text portions of this message have been removed]...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:28 am
12930
... Hi Steve... The context of Laura's question was whether or not anyone knew of anyone, or if anyone here, had had a success rate of 10 years or so with the...
Carolnjo@...
bixie425
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Jul 3, 2003
8:19 am
12931
I was just adding on to a previous statement that I had made reference to, in comparison. Sorry. I think that I will quit posting for awhile, and just read....
BsrYoung@...
got2getbette...
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Jul 3, 2003
11:12 am
12932
Hi Steve, I just got the approval yesterday for the permanent SCS implant. I should have the procedure done within a week or two. My personal feelings right...
Phil
yank75087
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Jul 3, 2003
1:01 pm
12933
STEVE THIS IS LAURA IN FL AND I DIDN'T KNOW IF YOU WERE ASKING ME IF "HOW LONG HAVE I HAD YOURS" WAS MEANING RSD. IF SO I HAVE HAD RSD SINCE 1992 IN THE LEFT...
laura ducey
laura_ducey
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Jul 3, 2003
1:14 pm
12934
STEVE LAURA IN FL YES I CERTAINLY UNDERSTAND WORK COMP. (BOTH TIMES MINE WERE W/C) AND I HAVE HAD 5 OR MORE MMPI (EVALUATIONS) AND PASSED. IF THAT IS WHAT IS ...
laura ducey
laura_ducey
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Jul 3, 2003
1:16 pm
12935
Congradulations Phil!!!!!!!!!!!! I'm glad to hear this. Yeah I agree with you, in that if it is even half as good as the trial. If all goes well with me next...
BsrYoung@...
got2getbette...
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Jul 3, 2003
1:16 pm
12936
STEVE LAURA IN FL AGAIN AND DON'T YOU DARE STOP POSTING!!!!!!!!!!!!! I NEED YOU AS WELL AS EVERYONE'S INPUT, I THINK THAT WE ALL SHOULD BE A TEAM AND I REALLY...
laura ducey
laura_ducey
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Jul 3, 2003
1:21 pm
12937
Ok thanks Laura, I've heard that it may go by fast, as I read a little, then talk, read some more, talk again, etc.. As long as I am comfortable (pain wise)...
BsrYoung@...
got2getbette...
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Jul 3, 2003
1:23 pm
12938
Hey I'm just clowning around on not posting. LOL! We all have to be here to support each other, and even occasionally let out our frustrations. I luv ya!! ...
BsrYoung@...
got2getbette...
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Jul 3, 2003
1:25 pm
12939
HOMESBLUE THIS IS LAURA IN FL AND THANK YOU - THANK YOU !!!!! NOW CAN I ASK ONE QUESTION MORE TO YOU? YOU DO HAVE THE BATTERY CHANGED EVERY 4.5 YEARS RIGHT ...
laura ducey
laura_ducey
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Jul 3, 2003
1:30 pm
12940
STEVE YES THEY DO AND I WAS OFFERED IT IN COLORADO YEARS AGO BEFORE IT GOT BETTER (BUT THAT IS NOT THE POINT) W/C DECIDED THEY WOULD PAY FOR THE TRIAL AND ...
laura ducey
laura_ducey
Offline Send Email
Jul 3, 2003
1:56 pm
Messages 12911 - 12940 of 14998   Oldest  |  < Older  |  Newer >  |  Newest
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