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RSD · This is a list for people that have Reflex Sympathetic Dystrophy,(RSD). This is a list to share information, and gain support
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To Laura re: SCS   Message List  
Reply | Forward Message #12915 of 15000 |
Re: [RSD] To Laura re: SCS

Laura I had the same thing sympathectomy
from the left hand to face.. top thorastic release.. that was the WORST surgery
I have ever had.. ouchhhhh
I want to talk to you further,, I have had rsd for 15.5 yrs now.. all from a
fall on ice in feb the 14th..
Gentle Hugs and PFD's and Sleep filled nights Always!

Jeanne , Mikey and Shayla!




(((((((((((Hoping to see ya'll at the RSD
ReTreat! July 26th & 27th in
Elkhart,In. )))))))))))


[Non-text portions of this message have been removed]




Wed Jul 2, 2003 2:08 am

mahtaz55
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Message #12915 of 15000 |
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THANK YOU SO MUCH FOR YOUR INFORMATION OF YOUR PERSONAL EXPERIENCE! I CERTAINLY APPRECIATE IT MORE THAN WORDS CAN SAY AND ACTUALLY WOULD LIKE TO KNOW HOW YOU...
laura ducey
laura_ducey
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Jul 2, 2003
1:42 am

Laura I had the same thing sympathectomy from the left hand to face.. top thorastic release.. that was the WORST surgery I have ever had.. ouchhhhh I want to...
Jeanne Brattin
mahtaz55
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Jul 2, 2003
2:10 am

I SENT YOU A YAHOO IM GREETING TO SEE IF YOU WOULD LIKE TO CHAT THAT WAY ABOUT THE SCS AND RSD EXPERIENCE, MAYBE WE CAN COMPARE NOTES! THANK YOU SO MUCH LAURA...
laura ducey
laura_ducey
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Jul 2, 2003
6:38 pm

... Hi Laura... I agree with you on that 100%. It is not just for RSD now that the SCS is being used, but other neurological disorders. Similar technology is...
Carolnjo@...
bixie425
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Jul 2, 2003
7:48 pm

BUT, if it is successful, then there should be no hype, correct? The way I'm kind of looking at it, is that if it works like the trial unit did, and I don't...
BsrYoung@...
got2getbette...
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Jul 2, 2003
10:27 pm

I totally agree with you Steve. Phil ... correct? The way ... did, and I ... many other ... experiencing ... going to hurt to ... a foreign ... the same...
Phil
yank75087
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Jul 2, 2003
11:22 pm

That's true, Steve. The biggest celebrity news on chronic pain supporting this is comedian Jerry Lewis. He's been battling severe chronic pain for over 30...
quitaja
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Jul 5, 2003
4:22 am

Hi Quit...Yeah when I did some research on Medtronics, as that is the company who's scs that I will be using, I ran across Jerry's testimony. Pretty ...
BsrYoung@...
got2getbette...
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Jul 5, 2003
2:34 pm

I wouldn't mind reading Jerry's tesimony. Can someone help me find it? T/Y Angelic...
angelic44@...
maemissy
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Jul 5, 2003
9:46 pm

Go to <A HREF="www.medtronics.com">www.medtronics.com</A> they have a link for testamonies. Click on it, and look to Jerry's. It's pretty interesting. ...
BsrYoung@...
got2getbette...
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Jul 5, 2003
11:09 pm

STEVE THIS IS LAURA IN FL AND I AM NOT SURE, THAT IS WHY I AM POSING THE QUESTION TO ALL SUFFER'S AND DOCTORS. HERE IS MY COUNT SO FAR OF THE DOCTORS - THIS ...
laura ducey
laura_ducey
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Jul 3, 2003
1:00 am

I have had a scs since jan. of 1997. It was my last resort. It got me over the hurdle of extreme pain. I did not look at it as a foreign object but as like a...
homesblue@...
Send Email
Jul 3, 2003
1:50 am

CAROLYN THIS IS LAURA IN FL AND I AGREE I WROTE EARLIER I AM POSING THE QUESTIONS TO ALL OF YOU TO ALSO ASK YOUR OWN DOCTORS THE QUESTION AND RESPOND BACK. I ...
laura ducey
laura_ducey
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Jul 3, 2003
1:12 am

PHIL DOES THAT MEAN YOU WOULD PICK THE SCS? IF YOU HAD TO PICK 1. SCS WITH A LEAD GOING UP AND DOWN; 2. MORPHINE PUMP; OR 3. SYMPATHECTOMY FOR UPPER AND...
laura ducey
laura_ducey
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Jul 3, 2003
1:24 am

i Have never had mine replaced or anything go wrong with it. The insurace company offered to update me with the newest one out so I took the offer. But I ...
homesblue@...
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Jul 3, 2003
1:56 am

How long have you had yours, if I may ask? Thanks, Steve [Non-text portions of this message have been removed]...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:10 am

Hi Laura, Yeah I'm in agreement with you too. The problem that I'm facing now, is the stupid w/c insurance doesn't yet want to spend the $ on the permanent...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:17 am

Laura, Your tally and questions are fine. I'm glad that you do ask and post messages as well. I have just as many as you and all of the others in our group....
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:27 am

Thanks Phil! I appreciate it. Steve [Non-text portions of this message have been removed]...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:28 am

Hi Steve, I just got the approval yesterday for the permanent SCS implant. I should have the procedure done within a week or two. My personal feelings right...
Phil
yank75087
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Jul 3, 2003
1:01 pm

STEVE THIS IS LAURA IN FL AND I DIDN'T KNOW IF YOU WERE ASKING ME IF "HOW LONG HAVE I HAD YOURS" WAS MEANING RSD. IF SO I HAVE HAD RSD SINCE 1992 IN THE LEFT...
laura ducey
laura_ducey
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Jul 3, 2003
1:14 pm

STEVE LAURA IN FL YES I CERTAINLY UNDERSTAND WORK COMP. (BOTH TIMES MINE WERE W/C) AND I HAVE HAD 5 OR MORE MMPI (EVALUATIONS) AND PASSED. IF THAT IS WHAT IS ...
laura ducey
laura_ducey
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Jul 3, 2003
1:16 pm

Congradulations Phil!!!!!!!!!!!! I'm glad to hear this. Yeah I agree with you, in that if it is even half as good as the trial. If all goes well with me next...
BsrYoung@...
got2getbette...
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Jul 3, 2003
1:16 pm

Ok thanks Laura, I've heard that it may go by fast, as I read a little, then talk, read some more, talk again, etc.. As long as I am comfortable (pain wise)...
BsrYoung@...
got2getbette...
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Jul 3, 2003
1:23 pm

HOMESBLUE THIS IS LAURA IN FL AND THANK YOU - THANK YOU !!!!! NOW CAN I ASK ONE QUESTION MORE TO YOU? YOU DO HAVE THE BATTERY CHANGED EVERY 4.5 YEARS RIGHT ...
laura ducey
laura_ducey
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Jul 3, 2003
1:30 pm

STEVE YES THEY DO AND I WAS OFFERED IT IN COLORADO YEARS AGO BEFORE IT GOT BETTER (BUT THAT IS NOT THE POINT) W/C DECIDED THEY WOULD PAY FOR THE TRIAL AND ...
laura ducey
laura_ducey
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Jul 3, 2003
1:56 pm

Wow! journey indeed. I can see why now, or at least better, your taking the tally and doing the intense research. Hopefully, after my atty reamed the...
BsrYoung@...
got2getbette...
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Jul 3, 2003
2:19 pm

STEVE THIS IS LAURA IN FL AND GOOD GOD!!!!!!!! IT IS AMAZING AND YOU KNOW I ACTUALLY MOVED FROM MY ORIGINAL ACCIDENT IN COLORADO WENT TO NORTH CAROLINA AND...
laura ducey
laura_ducey
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Jul 3, 2003
9:47 pm
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