RSD is not a rare disease.
This group is for Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome patients and their families and friends. The posts, pictures, writings by any members are strictly confidential and MAY NOT be used in any form without express written permission of the owners of this group.
The prevalence of RSD has been estimated between 500,000 and 6 million cases at any given time within the United States.
YOu are NOT alone.
RSD is a disease that is poorly understood by patients, their families and health care professionals. Since doctors do not completely understand this disease it is hard for our family members to understand our pain.
This is why we encourage caregivers to join.
In this support group we vent, laugh, and sometimes cry on each others shoulders. We are like a big extended family.
We have many links for you to peruse. Our hope is at least one of these numerous links will provide information that will help at least one person.
What reflex sympathetic dystrophy patients feel is real, painful, and can be disabling mentally and physically.
We founded RSD-CRPS of America to provide a place we could have to discuss treatments, medications and VENT with others who suffer from this painful disease. We have few rules. NO personal attacks are ever allowed, and while religion isn't "banned" we do ask that you respect everyone's beliefs. In service to a nonstressful atmosphere, please avoid raising topics that are emotionally charged. Personal conflicts that might arise should be resolved via private email. The selling of personal merchandise and ANY links to personal websites are not permitted. Members who solicit monetary donations will be banned from the group immediately.
Please always confirm any change in treatment with your pain specialist.
Feel free to contact us privately anytime.
JoAnne - Jomal1@aol.com
Barbara - torreyb@prodigy.net
Owners RSD-CRPSofAmerica@yahoogroups.com