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Hi again. Wow, this lawyer does sound terrific. Now I definitely know who to go with. It must be meant to be since he was the one who was recommended to me from someone else. My husband even spoke with him on the phone and said he sounded really nice. He asked my husband how many meds I am on (many) and said that qualify just because of all the crap I'm taking for the fibro. I am 27, BTW. I will be 28 in June. I was 23 or 24 (can't remember) when I first started going to docs for the pain. Most of them told me that I was too young to be in that much pain. Ha!
I'm not sure if one of the main problems I have has to do with fibro or not or if it is endometriosis. I have an appt. with a new GYN next week so hopefully I'll get some answers this time as I've already been to at least 6 of them. Anyway, starting back to around Christmas Day 2001 I had UTI's like at least every month. I also had this pain in my left side, to me it was where my ovary is, that continued to worsen. It used to hurt only when it was my time of the month, but then it started to hurt all the time. I must have gone to the ER about 50 times between then and Jan. 2002. I had been in the ER one night and was sent for a CT scan. Every time I went to the ER for this pain that was so awful words cannot describe it, I was given a pelvic exam. Every time I was told that it MIGHT be an infection, even though they didn't find any signs of it in the exam or my bloodwork. I was always sent home with antibiotics that never helped the pain. Duh. Anyway, I was always going to Fatima ER. One night they decided to give me the CT scan. They told me that it showed nothing. When I got the report it said that on my left side where I had the pain, something showed up and the report said it COULD BE something called "calcified phleboliths". I looked it up online and it says this:
Phleboliths
Calcified thrombi within the deep veins of the pelvis should be dismissed as soft tissue variants simulating stones of the genitourinary tract. Most of these clinically insignificant anomalies will be found lateral to the bladder walls and appear as nodular, homogenous opacities.
Calcified thrombi within the deep veins of the pelvis should be dismissed as soft tissue variants simulating stones of the genitourinary tract. Most of these clinically insignificant anomalies will be found lateral to the bladder walls and appear as nodular, homogenous opacities.
So, again, nothing showed up. After going through a few OB/GYN's I went to Partner's OB/GYN since a friend of my best friend's mom worked there and could get my an appt. really quickly. So, I went and the doc told me it sounded like endometriosis and that he could either put me on this medication called Lupron or do a laparoscopy to be sure I had endo. Thank God in heaven that I had done tons of research on endo and talked to many women who were put on Lupron, one was even a nurse, and they ALL told me to avoid it at all costs. You can only be on Lupron for almost one year out of your entire LIFETIME and it does things like put you into menopause and can cause bone loss, etc. It MIGHT help with the pain, but once you go off the Lupron, everything goes back to the way it was, but only now you have possible irreversible damage to your body. I know there is a class action suit against the makers of Lupron since so many women had their lives ruined by it. Sadly, most GYNs don't know much about endo or Lupron so they ignorantly put women on it without knowing all this stuff. I chose to have the lap. The doc who did it was awful, I won't go into it. He did however, find that my intestines were adhered to my abdominal wall (adhesions). He said, "Well, that WOULD cause her a lot of pain". He also only lysed the adhesions on the left side and not the right because he claims that I did not complain about the ones on the right, which is just not true. After all that time of being examined, scanned, x-rayed, etc., and told that there was nothing wrong and that I was imagining it all, it was a relief to know that there was really something there. Also, the doc told me he found no endo, but I think he was mistaken because adhesions ARE endo. Every other GYN I've seen since then has told me this, so it's not like I'm making it up. My last doc wanted to do another lap on me. He told me that he would put me on Lupron if he found more adhesions. I told him no way. I've been wanting to go up to Brigham & Women's in Boston since they have the best docs there, but with my fibro that makes it so hard. Also, these docs can't give me an answer about whether or not this is related to fibro. I've read countless times and spoken with many women who were told by their docs or by the "experts" that fibro and endo seem to go hand in hand. It is very frustrating...........
I didn't know that he was the husband of Myrth York. Small world...
I'm still waiting to hear back from SSDI. The last thing was they sent me to get evaluated by a shrink for my "Thought Process Condition" because I had told them that I have since been diagnosed with depression since first applying. (Show me someone who is NOT depressed after living with this monster.) That seemed to be a waste of time. It was more like an IQ test. The shrink barely asked me about the fibro and how it effects my life. So, I'm back to playing the waiting game for now.
Well, it's really hot and humid in my apartment so I have to log out for now. I'm going to get back online tonight when it's cooled down a little. This is nothing compared to what it's like up here in July/August. Ugh. I am dreading it. Hope you have a good night!
~*Kerrie*~
--
The great art of life is sensation,
to feel we exist even if in pain.
~~~Lord Byron
to feel we exist even if in pain.
~~~Lord Byron
----- Original Message -----
From: JeanB
Sent: Monday, April 18, 2005 6:56 AM
Subject: Re: [RHODE_ISLAND_FIBROMYALGIA-CFS_SUPPORT] Digest Number 22
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Kerrie, how old are you anyway? I know people that are young and on got on it just fine. As far as David goes, no, I didn't need him...but used to work in an office that answered his phones as he came in there one day a week..(even stopped and did house calls to his elderly clients on his way to the office out there in the country), now where do you see that in this day and age.
I was lucky, I had good doctors when I got on, that is the 1st hurdle you need to cross...a doctor that knows what the devil you have and how to word his paper work..LOL...
BTW...Davids wife is Myrth York....remember her running for Gov in 2002? Wish she had won...she would be good I think...
Another thing I was told by someone that works in SS, is the reason they deny you the 1st time, is to see if you will reapply...some people won't...because they know they are not sick...Well, to me THAT is sick...hehehe...go for it girl.
Good luck..Call David and yes, you have to appeal the 1st one by yourself, then the lawyer comes in on the 3rd app.
Jean B
-------Original Message-------
Date: 04/18/05 05:58:11
Subject: [RHODE_ISLAND_FIBROMYALGIA-CFS_SUPPORT] Digest Number 22 E-mail:
Web site: http://greenandgreenberg.lawoffice.com
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