Hi Ed. I hope you feel better. I do. I have cried so
bad over my Psoriasis all over my body. I have cried
and I have asked God, or wondered if I had a past
life, If I was a evil soul. Then I have prayed for
feeling so sorry for myself, when there are less
fortunate folks on this Earth. I pray with all my
heart and soul you get relief from all the pain you
have.

Hugs,
Estrellita
--- ed johnson <mred412003@...> wrote:
> i hope every thing works out...i use veterans
> hospital in houston texas they are helpful
> but..can't grasp the real feeling of pain discomfort
> and depression of fighting just to get out of
> bed...they are worried i'll become dependent pain
> pills...duhhhhhh!
> if it work's use it..it it don't move on till
> something get's you up and aroud..
> being worried about addiction to pain pills is
> supposedly a bad thing..but i take all kinds of
> pills every day for years and my problem steadily
> worsens....when i take pain pills ..i'm up and
> around talking getting in volved..without i'm to
> tired to achy to depressed..anticipating more pain
> if i move around to much...i sleep 2-3 hours in a
> spurt then i have to get up and loosen up..it's
> horrible...i have trouble finding reasons to
> continue begging for relief...feel like there is
> nothing more to do except beg
> people without this disease don't understand a
> spraned neck ankle hand toes knees..
> that never leaves..it swells it burns and i fever
> and fatigue..weekly...pain pills unfortunatly
> give me hope of meeting the day with
> enthusiasam...but when i hear no ed the pills are
> not good...i wish they could spend a week in my
> body....i'm up late again talking to myself on this
> thing trying to vent....my stomach is naseated from
> asprin asulfersalizine methotrexate stomach pills
> and prosac....but no pain pills or muscle
> relaxers...
> i wish i could sleep my neck hurts so bad i can't
> move it....
>
> phase52001 <phase5@...> wrote:
> I'm a bit shocked and disappointed at reading of the
> trouble people are having with
> the cost of enbrel.
>
> I'm in Sydney Australia and feel very lucky. (I'm
> assuming a lot of people on this list
> are in the USA. I know there are some from other
> parts of the world).
>
> My specialist is currently trying to get me on a
> enbrel trail program at the local
> hospital. (Nothing else has worked). Enbrel is not
> available in Australia yet, (to the
> best of my knowledge), as its still under going
> these trials.
>
> The cost to me will be effectively nothing for the
> trails. Beyond my time.
> Once the drug is available for prescription it will
> probably cost me a few dollars for
> each prescription. (Hopefully).
>
> The reason is that it will be on the Australian PBS
> list. The "Pharmacuitical Benefit
> Scheme" is government run and pays most of the cost
> for a range of expensive drugs.
> The patient pays very little. (Its part of our
> public health system). Its one of those
> government schemes that you really don't appreciate
> until you need it. Especially
> when you need a drug like enbrel and the costs is
> thousands per month.
>
> Currently I'm a bit nervous about the "Free Trade
> Agreement" the Australian and
> American governments are working on. Its been said
> that it could cause a lot of
> problems for the PBS if its signed. I've leave the
> reader to work out why.
>
>
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