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a Newbie to Psoriatic-Arthritis   Message List  
Reply | Forward Message #1188 of 2826 |
Re: [Psoriatic-Arthritis] a Newbie to Psoriatic-Arthritis

Orin, and Members
I remember e-mailing you before but some how lost touch. Good to
read your imput and yes, I do agree with you on how psoriasis effects
us. No body undestands unless they are living the " Heart Brake Of
Psoriasis" I once had a counsoler tell me after I told him I hated to
be out in the public with my skin showing he had the nerve to tell me he
understood because he was almost bald headed. I looked at him and say
yes but would someone refuse to set by you just because your head was
bald? NO, they wouldn't, but if they saw my skin they would rudly stare
then move away! He didn't know what to say then. I have gone to
several counslors to try to fight this depession and hurt that psoriasis
has done to me. None understood. The best is like this group to talk
things out , we truly understand the emotional side of living with
psoriais. It effects every thing in our lives . It takes a very
special person in our lives to be our mates . At least we know they
really love us to put up with the scales all over the floor when we
walk, or how our moods change with how bad our skin is. So many things
we have to deal with that if not for psoriasis we ourself would just
take for granted.
I have been on SS Disabilty for about 7 years. I guess I was one
of the lucky ones they listen too. I have 80% coverage, and I took
pictures of my body. The pictures did my talking. Even when the Judges
Secretary saw my pictures tears came to her eyes. I also have PA very
bad and each year brings both P and PA worse. I have had psoriasis
since the age of 5. Even if one day a cure was found for psoriasis the
scars will never leave because of the deep impact psoriasis did in my
life. Zoella

Remember this!!! When He was on the cross, You were on His mind.




Wed Jun 4, 2003 4:06 am

zody71
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Message #1188 of 2826 |
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Hi everyone I have just been told that i have Psoriatic-Arthritis which is a big shock to me and i cannot get my head around it yet. what i would like to know...
fivenecks
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Jun 2, 2003
4:32 pm

Roy, welcome. im new to it too, so i dont have much answers, but i understand your frustration. i hope that others have answers that may help you. welcome to...
holly h.
mayelynn
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Jun 2, 2003
5:55 pm

Dear Roy - Welcome! It is often a shock for people to get this new diagnosis, and quite normal to be frightened of the implications. It took me a couple of ...
Kathryn J Larson
kathlarson@...
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Jun 3, 2003
4:01 am

Hi Roy I would say, and I think most psoriatics would agree that it is a disability at any degree of severity. But to be considered a disability in a legal...
orinok@...
anamenotyetused
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Jun 3, 2003
8:11 am

Orin, You have expressed so well how it is to suffer from this condition....what you said is what i had been thinking but never able to put into words. It is...
Fiona Mckinnon
jellybean_74_au
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Jun 3, 2003
12:11 pm

Orin, and Members I remember e-mailing you before but some how lost touch. Good to read your imput and yes, I do agree with you on how psoriasis effects us....
zkbernard@...
zody71
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Jun 4, 2003
4:06 am

In a message dated 6/3/03 11:07:30 PM Central Daylight Time, ... I got that before too. Dude describes some rash he once had, sounded like poison ivy or...
orinok@...
anamenotyetused
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Jun 4, 2003
11:38 am

hey roy!! dont let it get you down, baby!!! its all in the attitude. in fact, my brother (a holistic doctor) gave me the best advice ive heard so far: "you...
mike clark
hammer321
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Jun 4, 2003
12:49 pm

... big ... back ... just like to say thanks to everyone who responded to my message. I am from London uk and I think that i am at an early stage? no pitting...
fivenecks
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Jun 10, 2003
2:48 am

Hi Roy... I missed your original post because I have been suffering from treatment-itis - the treatment they gave me was 'a real experience' - great huh? ...
christajoyce
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Jun 22, 2003
8:24 pm

I have been diagnosed with PA for nearly two years. I worked full-time in a high stress job. I vacation in the mountains and take on any activity that I ...
grant2xlaw@...
grant2xlaw
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Jun 16, 2003
8:22 pm

Yay! Hurray! Good for you, Bill! I wish you all the best! Nancy in Minnesota grant2xlaw@... wrote: I have been diagnosed with PA for nearly two years. I...
NJP Anderson
njpanderson
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Jun 17, 2003
1:11 am

thanks Christa just finished work now and am in great deal of pain. I was only asking about the disability stuff just thinking forward, i do not want to give...
Bostic bostic
fivenecks
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Jun 23, 2003
3:23 am
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