Orin,

You have expressed so well how it is to suffer from
this condition....what you said is what i had been
thinking but never able to put into words.

It is heartening to know that others are feeling they
same way as i do.



--- orinok@... wrote:
---------------------------------
Hi Roy I would say, and I think most psoriatics
would agree that it is a
disability at any degree of severity. But to be
considered a disability in a
legal sense you just about have to wait until you are
completely eaten up with
it and even then you will meet with a lot of
scepticism. Physical discomfort
that a person feels is hard to quantify as is the
impediment that it causes, so
unless you are grossly deformed from it then you can
probably forget
disability. I find it amasing that nobody would be
expected to go on and function
normally in the workforce or even society in general
if they had burns over 10% of
their body but they are expected to perform like
everyone else with psor over
50%. Heres something to think about. The skin in a
psoriatic lesion turns
over in about 4 days compared to 28 days in normal
skin. So for every 10
percent coverage you grow enough extra skin to suit .7
of another person. Another
way to look at that is if you have it over 50% of your
body you will be making
as much skin as 3.5 people. That is a lot of extra
work your body has to do.
That doesnt take into account the emotional toll
either that is a strictly the
mechanical aspect. When you add in the arthritic
aspects that further
compounds the resting work load all in a physical
environment that makes employment
in the world around you more difficult not only in a
physical sense but also
from the discrimination that a psoriatic will
enevitably face. The effect is
underestimated by anyone except those who have endured
it who realise just how
much of an impact it has on every aspect of your life
and how difficult it
makes even simple things like going into a store let
alone going to work. Good
luck getting someone else besides the people on this
message board to understand
that. Things may be changing a bit but none too slow
for me. Do your
homework, develop your own understanding of this
disease, join NPF, there is
strength in numbers and when we all decide to quit
trying to hide it and bring this
problem to the attention of the public maybe something
will be done. There are
few groups more discriminated against than psoriatics
and I think thats cause
we dont raise hell to defend ourselves. A few good
winning discrimination
lawsuits may do more to get peoples attention than
pleading to a doctor who only
has 2 minutes to look at your chart. Most doctors
seem to think it is
entirely psychosomatic anyway and maybe it is. If it
is then why dont they do
something to address that part of it? Orin
> Hi everyone
>
> I have just been told that i have
Psoriatic-Arthritis which is a big
> shock to me and i cannot get my head around it yet.
>
> what i would like to know if this is a disability
or at what stage
> would it be, as i am not getting the answers that i
want. And the
> specialists cannot wait to get you out of the room
ready for the
> next case.
>
> So i am introducing myself now before i go to work
and will be back
> soon.
>
> regards
>
> Roy
>



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