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a Newbie to Psoriatic-Arthritis   Message List  
Reply | Forward Message #1186 of 2827 |
Re: [Psoriatic-Arthritis] a Newbie to Psoriatic-Arthritis

Hi Roy I would say, and I think most psoriatics would agree that it is a
disability at any degree of severity. But to be considered a disability in a
legal sense you just about have to wait until you are completely eaten up with
it and even then you will meet with a lot of scepticism. Physical discomfort
that a person feels is hard to quantify as is the impediment that it causes, so
unless you are grossly deformed from it then you can probably forget
disability. I find it amasing that nobody would be expected to go on and
function
normally in the workforce or even society in general if they had burns over 10%
of
their body but they are expected to perform like everyone else with psor over
50%. Heres something to think about. The skin in a psoriatic lesion turns
over in about 4 days compared to 28 days in normal skin. So for every 10
percent coverage you grow enough extra skin to suit .7 of another person.
Another
way to look at that is if you have it over 50% of your body you will be making
as much skin as 3.5 people. That is a lot of extra work your body has to do.
That doesnt take into account the emotional toll either that is a strictly the
mechanical aspect. When you add in the arthritic aspects that further
compounds the resting work load all in a physical environment that makes
employment
in the world around you more difficult not only in a physical sense but also
from the discrimination that a psoriatic will enevitably face. The effect is
underestimated by anyone except those who have endured it who realise just how
much of an impact it has on every aspect of your life and how difficult it
makes even simple things like going into a store let alone going to work. Good
luck getting someone else besides the people on this message board to understand
that. Things may be changing a bit but none too slow for me. Do your
homework, develop your own understanding of this disease, join NPF, there is
strength in numbers and when we all decide to quit trying to hide it and bring
this
problem to the attention of the public maybe something will be done. There are
few groups more discriminated against than psoriatics and I think thats cause
we dont raise hell to defend ourselves. A few good winning discrimination
lawsuits may do more to get peoples attention than pleading to a doctor who only
has 2 minutes to look at your chart. Most doctors seem to think it is
entirely psychosomatic anyway and maybe it is. If it is then why dont they do
something to address that part of it? Orin
> Hi everyone
>
> I have just been told that i have Psoriatic-Arthritis which is a big
> shock to me and i cannot get my head around it yet.
>
> what i would like to know if this is a disability or at what stage
> would it be, as i am not getting the answers that i want. And the
> specialists cannot wait to get you out of the room ready for the
> next case.
>
> So i am introducing myself now before i go to work and will be back
> soon.
>
> regards
>
> Roy
>



[Non-text portions of this message have been removed]




Tue Jun 3, 2003 8:11 am

anamenotyetused
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Message #1186 of 2827 |
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Hi everyone I have just been told that i have Psoriatic-Arthritis which is a big shock to me and i cannot get my head around it yet. what i would like to know...
fivenecks
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Jun 2, 2003
4:32 pm

Roy, welcome. im new to it too, so i dont have much answers, but i understand your frustration. i hope that others have answers that may help you. welcome to...
holly h.
mayelynn
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Jun 2, 2003
5:55 pm

Dear Roy - Welcome! It is often a shock for people to get this new diagnosis, and quite normal to be frightened of the implications. It took me a couple of ...
Kathryn J Larson
kathlarson@...
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Jun 3, 2003
4:01 am

Hi Roy I would say, and I think most psoriatics would agree that it is a disability at any degree of severity. But to be considered a disability in a legal...
orinok@...
anamenotyetused
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Jun 3, 2003
8:11 am

Orin, You have expressed so well how it is to suffer from this condition....what you said is what i had been thinking but never able to put into words. It is...
Fiona Mckinnon
jellybean_74_au
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Jun 3, 2003
12:11 pm

Orin, and Members I remember e-mailing you before but some how lost touch. Good to read your imput and yes, I do agree with you on how psoriasis effects us....
zkbernard@...
zody71
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Jun 4, 2003
4:06 am

In a message dated 6/3/03 11:07:30 PM Central Daylight Time, ... I got that before too. Dude describes some rash he once had, sounded like poison ivy or...
orinok@...
anamenotyetused
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Jun 4, 2003
11:38 am

hey roy!! dont let it get you down, baby!!! its all in the attitude. in fact, my brother (a holistic doctor) gave me the best advice ive heard so far: "you...
mike clark
hammer321
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Jun 4, 2003
12:49 pm

... big ... back ... just like to say thanks to everyone who responded to my message. I am from London uk and I think that i am at an early stage? no pitting...
fivenecks
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Jun 10, 2003
2:48 am

Hi Roy... I missed your original post because I have been suffering from treatment-itis - the treatment they gave me was 'a real experience' - great huh? ...
christajoyce
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Jun 22, 2003
8:24 pm

I have been diagnosed with PA for nearly two years. I worked full-time in a high stress job. I vacation in the mountains and take on any activity that I ...
grant2xlaw@...
grant2xlaw
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Jun 16, 2003
8:22 pm

Yay! Hurray! Good for you, Bill! I wish you all the best! Nancy in Minnesota grant2xlaw@... wrote: I have been diagnosed with PA for nearly two years. I...
NJP Anderson
njpanderson
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Jun 17, 2003
1:11 am

thanks Christa just finished work now and am in great deal of pain. I was only asking about the disability stuff just thinking forward, i do not want to give...
Bostic bostic
fivenecks
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Jun 23, 2003
3:23 am
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