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a Newbie to Psoriatic-Arthritis   Message List  
Reply | Forward Message #1184 of 2827 |
Re: [Psoriatic-Arthritis] a Newbie to Psoriatic-Arthritis

Dear Roy -

Welcome!

It is often a shock for people to get this new diagnosis, and quite
normal to be frightened of the implications. It took me a couple of
years to reach more of an acceptance stage. It also took awhile to learn
about the disease, to try various treatment options, and finally to
settle into a routine of treatment and self-care. You'll develop skills
to handle the minimal time that the doctors have. Be sure to write down
your questions before your appointment. Hang in there - you'll get
through this initial period.

If you live in the United States, there are three organizations you might
want to check into: The Arthritis Foundation, The National Psoriasis
Foundation, and, if your spine is affected, the Spondylitis Association
of America. They have a lot of info and resources to share. They all
have websites so you can get started.

PA can span quite a range in terms of severity. For some, it hardly
slows them down at all. For others it can be very debilitating. I think
we're on the edge of a lot of new medical breakthroughs, both in western
medicine as well as in alternative medicine approaches. If you had to
get PA, this is a pretty good time in history compared to my
grandfather's day. He lived on a bottle of aspirin per day! So,
regarding your question about disability, it all depends on how much it
impacts your life and your ability to work. This may change over time.
It's very difficult to predict.

This is a pretty general response to your note. Let us know if you have
more specific questions. Best wishes to you!

Kathryn





On Mon, 02 Jun 2003 16:32:28 -0000 "fivenecks" <bostic007@...>
writes:
> Hi everyone
>
> I have just been told that i have Psoriatic-Arthritis which is a big
>
> shock to me and i cannot get my head around it yet.
>
> what i would like to know if this is a disability or at what stage
> would it be, as i am not getting the answers that i want. And the
> specialists cannot wait to get you out of the room ready for the
> next case.
>
> So i am introducing myself now before i go to work and will be back
> soon.
>
> regards
>
> Roy
>
>
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Tue Jun 3, 2003 4:01 am

kathlarson@...
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Forward
Message #1184 of 2827 |
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Hi everyone I have just been told that i have Psoriatic-Arthritis which is a big shock to me and i cannot get my head around it yet. what i would like to know...
fivenecks
Offline Send Email
Jun 2, 2003
4:32 pm

Roy, welcome. im new to it too, so i dont have much answers, but i understand your frustration. i hope that others have answers that may help you. welcome to...
holly h.
mayelynn
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Jun 2, 2003
5:55 pm

Dear Roy - Welcome! It is often a shock for people to get this new diagnosis, and quite normal to be frightened of the implications. It took me a couple of ...
Kathryn J Larson
kathlarson@...
Send Email
Jun 3, 2003
4:01 am

Hi Roy I would say, and I think most psoriatics would agree that it is a disability at any degree of severity. But to be considered a disability in a legal...
orinok@...
anamenotyetused
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Jun 3, 2003
8:11 am

Orin, You have expressed so well how it is to suffer from this condition....what you said is what i had been thinking but never able to put into words. It is...
Fiona Mckinnon
jellybean_74_au
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Jun 3, 2003
12:11 pm

Orin, and Members I remember e-mailing you before but some how lost touch. Good to read your imput and yes, I do agree with you on how psoriasis effects us....
zkbernard@...
zody71
Offline Send Email
Jun 4, 2003
4:06 am

In a message dated 6/3/03 11:07:30 PM Central Daylight Time, ... I got that before too. Dude describes some rash he once had, sounded like poison ivy or...
orinok@...
anamenotyetused
Offline Send Email
Jun 4, 2003
11:38 am

hey roy!! dont let it get you down, baby!!! its all in the attitude. in fact, my brother (a holistic doctor) gave me the best advice ive heard so far: "you...
mike clark
hammer321
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Jun 4, 2003
12:49 pm

... big ... back ... just like to say thanks to everyone who responded to my message. I am from London uk and I think that i am at an early stage? no pitting...
fivenecks
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Jun 10, 2003
2:48 am

Hi Roy... I missed your original post because I have been suffering from treatment-itis - the treatment they gave me was 'a real experience' - great huh? ...
christajoyce
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Jun 22, 2003
8:24 pm

I have been diagnosed with PA for nearly two years. I worked full-time in a high stress job. I vacation in the mountains and take on any activity that I ...
grant2xlaw@...
grant2xlaw
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Jun 16, 2003
8:22 pm

Yay! Hurray! Good for you, Bill! I wish you all the best! Nancy in Minnesota grant2xlaw@... wrote: I have been diagnosed with PA for nearly two years. I...
NJP Anderson
njpanderson
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Jun 17, 2003
1:11 am

thanks Christa just finished work now and am in great deal of pain. I was only asking about the disability stuff just thinking forward, i do not want to give...
Bostic bostic
fivenecks
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Jun 23, 2003
3:23 am
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