Hi Diane,

What a terrible thing to go through. You might want to try the other
meningitis related groups on yahoo as I know that there are some that
have chronic meningitis - you may also reach out to the american
meningitis assocation - I may have links to them on this site.

I wish you all the best in your search, be careful with the pain
meds. it's best to get off of them and try a prophylactic that
prevents your headaches. And it sounds like you need another dr.
There is loads of info under the "files" section here including
recommended meds for post meningitis headache from a viral infection
specifically.

Let me know if I can be of further help.

Best,
Laura

--- In PostmeningitisHeadache@yahoogroups.com, "Diane G-D"
<dizzygoodman@...> wrote:
>
> So I first got sick in early May.
> It's now mid September and I've been sick 14 weeks of the past few
> months. I had a nice 8 week break where I was symptom free but now
I'm
> on week 4 of being sick again. Meningitis was confirmed again
through
> and LP. I seem to have a "mild" viral version. I have a headache
that
> never goes away, right between my eyes, that I'd rate between 4-6
> depending on the time of day. Meds do help (oxycodone and
> fiurocet).But I think my neurologist has given up on me. He's not
> curious why I keep getting sick and because of that his only medical
> advice is to take heavy pain meds and go on steroids. (I just
finished
> my third steroid treatment). I'm able to go to work, my fever has
> stopped. But I'm very moody, mostly sad and a little anxious, and
> while I do normally have a mild anxiety disorder, I think these are
> being ignored or symptoms but they are DEFINITELY symptoms.
>
> I still haven't found anyone else online with chronic meningitis.
> All of the herpes tests came back negative.
>
> Has anyone who continues to get headaches had a new LP to see if you
> have active meningitis again?
>
> Does anyone on this list have chronic?
>
> Thanks,
> Diane
>