I should add that the hospital THOUGHT I had viral meningitis but most
of my symptoms recurred once the steriods subsided. After a ton of
blood work the only test that came back positive was something called
mycoplasma. It normally gives you walking pneumonia but in rare rare
cases can cause meningitis. It was only after getting the right
antibiotic that my headaches finally went away, knock on wood. It's
been a month since my last one so I'm hoping that this trend continues.

It might be worth your wife getting more blood work done. Mycoplasma
wouldn't show up in a regular bacteria screen because it is TINY
compared to bacteria. The reason I bring this up is that when I
presented at the hospital I never had a fever over 100 which was an
odd presentation.

They tested me for herpes (3 different ways), lupus, lyme disease,
mycoplasma and a whole wack of other things.

Hope this is helpful...I really saw a change when they got me on the
right antibiotic.




--- In PostmeningitisHeadache@yahoogroups.com, Steve Beck
<Solj4life@...> wrote:
>
>
> Thank you so much for the prompt reply and info. Knowing that my
wife, Erin, is not the only one is somewhat relieving.
Unfortunately, Erin's doctors did not warn us of possible reocurring
headaches. In fact, when we went back to the same hospital that
diagnosed her with the viral menginitis 2 weeks later for strikingly
similar symptons, the doctors (an ER doctor and a neurologist) told us
it was rare for such symptoms to reoccur! Thus, we were very worried
when it happened. After the second headache early this morning, I
decided to do some research on my own and thankfully found some info
and this group. To top it all off, we are in Destin, FL on vacation
(which the doctor said would be okay to go on).
>
> We plan on finding a neurologist or headache specialist back in St.
Louis when we get home later in the week. Erin is resting now. The
headache went from a 9 to 3 on a 10-point scale. One thing that
worries me is that her temperature climbs into the 99 point somethings
a few hours into the headache. Her temp as since stabilized. This
episode was almost identical to the last. Erin also experiences
vomiting with her headaches. Finally, so far the headaches have only
occurrerd during the middle of the night after she went to sleep. She
wakes up with the pain, vomits about 30 mins in, and has the headache
for about 8-12hrs.
>
> Any more info will be much appreciated, such as any drug that was
helpful to you or doctors' contact info that are familiar with such
headaches. It seems as though the doctors at the hospital she went to
have no idea, which makes me very nervous.
>
> Thanks again!!
>
> Steve
>
>
>
> To: PostmeningitisHeadache@...: dizzygoodman@...: Sun, 10 Aug 2008
16:00:23 +0000Subject: [PostmeningitisHeadache] Re: Wife recently
diagnosed with viral meningitis experiencing severe headaches
>
>
>
>
> I had bacterial meningitis this summer. My headaches lasted for
twomonths. I've heard about other folks ending up with migraines
aftermeningitis. Knock on wood, I haven't had one in a month, which
isabout how long I've felt truly all better.I don't think there's a
lot of post meningitis documentation but Ifound this link
useful.http://www.meningitis.org/disease-info/after-effectsGood
luck.Diane--- In PostmeningitisHeadache@yahoogroups.com,
"stevenbeck_710"<Solj4life@> wrote:>> Hello, all. My wife was
diagnosed with viral meningitis about 3 weeks > ago. Since then, she
has had 2 very severe headaches, each occurring > about 7 days apart.
The first occurred about 10 days after she was > released from the
hospital where she was treated for the meningitis. > We went back to
the ER and they just gave her a steroid taper and some > pain meds.
The second about 7 days after that. The headaches > accompanied with
vomiting. > > I feel helpless in not knowing what to do. After some
research on the > web I realized that post-meningitis headaches are
not that uncommon. > Any feedback will be much appreciated. Thank you.>
>
>
>
>
>
> _________________________________________________________________
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