Hi Laura,
I am glad that you have found a Dr. that will listen and start to
try a few things. I had an EEG about 6 months ago. It showed that I
was not having seizures. My headaches are frequent and severe -- but
not all the time as yours are. I was almost hoping I was having
seizures, just so that then they could do something. I can not even
imagine how it must feel to have this all the time!
When I do get a headache, it feels as if the top of my head is
going to blow off. My Dr. has done a few simple tests in his office,
and they are not sure what causes my headaches either. He gives me
Vicadin (sp?), which makes me tired, dopey, and lazy, but I can
usually fall asleep and awake with a head that at least I can live
with!
However, Laura, the longer time goes on after meningitis, I know
that it is a horrid, horrid disease, and that the side effects are
numerous and the medical experts are trying to learn along with, or
from, us. My life has changed so much in the last 2 1/2 years that at
times I do not recognize myself.
As I am sure you do, I try to take one day at a time, and try to
keep as busy as I can tolerate. You remain in my thoughts and prayers.

Eileen


--- In PostmeningitisHeadache@yahoogroups.com, "cph72"
<lbstadler@...> wrote:
>
> Hello all - felt like giving everyone an update on my situation in
> hopes that you may be able to relate or have any insight...
>
> I went to a private neurologist last week (a Harvard grad), who did
> the normal neuro exam and listened to my story and asked lots of
> questions. Her view was that my other docs have not done anything
to
> really find out what the problem was to figure out my problem.
>
> She suggested I have an EEG, which my other headache dr. said would
> not show anything...and after we discussed it, we agreed that I
would
> try a new med called Lamictal first, another anit-seizure
medication.
> I was perscribed 25mg twice a day that I take at breakfast and at
> dinner time and if this medication doesn't help, then I will have
the
> EEG - even though it will cost me $400 out of my own pocket.
>
> I wonder if anyone with chronic postmeningitis headache has had an
> EEG and if they were able to see anything on the results...to shed
> any light? .......
>
> > Warmest regards,
> Laura
>