Hello all - felt like giving everyone an update on my situation in
hopes that you may be able to relate or have any insight...

I went to a private neurologist last week (a Harvard grad), who did
the normal neuro exam and listened to my story and asked lots of
questions. Her view was that my other docs have not done anything to
really find out what the problem was to figure out my problem.

She suggested I have an EEG, which my other headache dr. said would
not show anything...and after we discussed it, we agreed that I would
try a new med called Lamictal first, another anit-seizure medication.
I was perscribed 25mg twice a day that I take at breakfast and at
dinner time and if this medication doesn't help, then I will have the
EEG - even though it will cost me $400 out of my own pocket.

I wonder if anyone with chronic postmeningitis headache has had an
EEG and if they were able to see anything on the results...to shed
any light?

I have been on the Lamictal since Friday night and it does seem to
calm the pain in my head, however it is giving me a secondary kind of
headache (kind of sick, achy head feeling)...and is overall making me
feel relaxed (good side-effect), but also nauseous, out of it,
sleepy, a bit anxious and woozy. I will give it some time to see if
the side-effects get better and if it does continue to curb the pain.
Fingers crossed!

The neuro also said the same thing as the pain dr. that Botox would
not help me because what I have is a CNS problem and Botox is only
for tension headaches. I still won't rule this out, but have to
somehow trust that two drs. have told me the same thing so there
might be something to it.

The other thing the dr. said was that swimming is a good exercise to
try and said that for some people with brain injuries that swimming
seems to help. She said that it has to do with the equilibrium
effect.

That's all for now. Feel free to chime in if you have any feedback.
It's would be interesting to know if anyone else has tried this
medication and if they'd had success with it. Also, has anyone found
a medication that does help with minimal side-effects?

Until next time...the quest continues.

Hope this finds you having a good day today.

Warmest regards,
Laura