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It's been 9 months since my last positive lumbar   Message List  
Reply | Forward Message #188 of 226 |
Re: [PostmeningitisHeadache] It's been 9 months since my last positive lumbar

It's the stormy season here and it's definitely gotten worse with the pressure. I still love thunder storms but now they are in my head :-). It feels like pressure in my head, not throbbing, not tension.. and strangely whenever I cry which I do very easily now, I immediately get a headache too. Interesting to here the mention of swelling for you too. I wonder why I'd continue to have swelling issues after meningitis...

On Tue, Jul 7, 2009 at 2:11 PM, Diane G-D <dizzygoodman@...> wrote:


Hi folks,
I had meningitis at least 3 times last year of unknown causes (possibly from a form of herpes they didn't test me for - and one that i've never heard of and one that means I might keep getting meningitis, fun!) and now suffer from daily headaches. They come on in the early afternoon and while I would not describe them as migraines, I go from high functioning normal me to on the verge of tears if not crying, no patience, and have difficulties focusing.

I've now been on Topamax for almost three months. Still playing with the doses, still need narcotics almost daily. The goal is of course to not need any oxycodone. I think I can safely say that at this point it's effecting my heart rate. I started a new walking regime and wore a heart monitor and just walking across the parking lot and a small part of a hill got my heart rate up to 140. Ouch. First I thought it was the Topamax but after talking to my third doctor I think it's the oxy.

Has anyone else had strange side effects from their medications?
How many of you are still suffering from DAILY headaches. I'm looking for full time work but I'm having a hard time imagining NOT bursting into tears in the afternoon. And of course I'm just functioning enough to not qualify for any assistance.




Wed Jul 8, 2009 4:50 pm

mizbusiness1
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Message #188 of 226 |
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Hi folks, I had meningitis at least 3 times last year of unknown causes (possibly from a form of herpes they didn't test me for - and one that i've never heard...
Diane G-D
mizbusiness1
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Jul 7, 2009
6:11 pm

Hi Diane, I got meningitis 3 1/2 years ago I've been in the hosp.ER several times since then with reacuring symptoms. My head hurts everyday but the important...
mert_cfs@...
mert_cfs...
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Jul 8, 2009
12:45 pm

It's the stormy season here and it's definitely gotten worse with the pressure. I still love thunder storms but now they are in my head :-). It feels like...
Diane Goodman-Daniel
mizbusiness1
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Jul 8, 2009
4:51 pm
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