Hi Diane,
I got meningitis 3 1/2 years ago I've been in the hosp.ER several times since
then with reacuring symptoms. My head hurts everyday but the important question
is "What does your headache feel like? If it feels like your brain is swelling
and bumping against your skull or like its in a vice it may be a hydrocephalis
headache, They tend to be worse when their is a low pressure system in the
weather or in other words when it is stormy outside. If your brain feels like it
is burning look up "Cerebral Arachnoiditis" on the internet
Sincerely Mert
PS I've been on Topamax, Hydroco, and many other meds, the only one that has
truly helped me is Tramadol. I take two, three times a day and it has helped me
to live a pretty normal life.
--- In PostmeningitisHeadache@yahoogroups.com, "Diane G-D" <dizzygoodman@...>
wrote:
>
> Hi folks,
> I had meningitis at least 3 times last year of unknown causes (possibly from a
form of herpes they didn't test me for - and one that i've never heard of and
one that means I might keep getting meningitis, fun!) and now suffer from daily
headaches. They come on in the early afternoon and while I would not describe
them as migraines, I go from high functioning normal me to on the verge of tears
if not crying, no patience, and have difficulties focusing.
>
> I've now been on Topamax for almost three months. Still playing with the
doses, still need narcotics almost daily. The goal is of course to not need any
oxycodone. I think I can safely say that at this point it's effecting my heart
rate. I started a new walking regime and wore a heart monitor and just walking
across the parking lot and a small part of a hill got my heart rate up to 140.
Ouch. First I thought it was the Topamax but after talking to my third doctor I
think it's the oxy.
>
> Has anyone else had strange side effects from their medications?
> How many of you are still suffering from DAILY headaches. I'm looking for full
time work but I'm having a hard time imagining NOT bursting into tears in the
afternoon. And of course I'm just functioning enough to not qualify for any
assistance.
>