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Any advice? Looking for any help   Message List  
Reply | Forward Message #168 of 226 |
Re: [PostmeningitisHeadache] Any advice? Looking for any help

Thanks Diane for the info, I have not been tested for Lyme disease but can tell
you I now have ear aches in both ears and ear pain that comes on. They did the
MRI yesterday late afternoon but won't know anything for a few days, they don't
expect to find anything either since I still believe the viral part of
Meningitis did a major number on my vertigo and light sensitivity issues, I also
get the occasional nausea when the vertigo is really bad. It is now 6 weeks but
am glad I don't have the fever, chills or sweats, tremors anymore but the
balance, ear and vertigo issues are horrible and still unable to drive. :(

I am so sorry you have went through hell and back too! This is indeed the worst
and most sick I have ever been and thats topping any surgery I have ever had!
AMEN! do they run blood work to test for Lyme disease?

Thanks so much for all the info!
Huge HUgs,
Kimberly :)







---- Diane Goodman-Daniel <dizzygoodman@...> wrote:
> I've had it 3 times this past year and its definitely was still bad at 5
> weeks. I still get headaches and it's now 9 months later.
> I had the tremor but no vertigo and my fever was only there intermittantly.
>
>
> On Tue, Feb 17, 2009 at 7:21 PM, Jackie <jackie_yahhyahh@...> wrote:
>
> > I was wondering if you have been tested for lymes disease? The vertigo,
> > hand trembles, meningitis, chills yet your not cold, sweats, and constant
> > headaches. I suffered from lymes disease and had a co infection. It sounds
> > alot like lyme but i am no dr but your symptoms are alot like mine were, i
> > only tested positive for 2 bands.
> >
> > ------------------------------
> > From: Kimberly <kstegman@...>
> > Sent: Monday, February 16, 2009 4:01 PM
> > To: PostmeningitisHeadache@yahoogroups.com
> > Subject: [PostmeningitisHeadache] Any advice? Looking for any help
> >
> > Hello everyone,
> >
> > I am now on 5 weeks out since getting viral meningitis. My fever,
> > chills, sweats and tremors have stopped and for the most part not
> > getting the non stop migraines anymore but did have a migraine attack
> > but only lasted less than half a day however I have been getting
> > almost 18 hours a day vertigo, extreme off balance feeling too and
> > neck aches, headaches unlike the neck pain and migraines. My doctors
> > think it is far too far out since the initial viral meningitis attack
> > as well not having any fever, etc but as well are surprised regarding
> > my horrible balance issues that I honestly have not been able to
> > drive since 5 weeks ago and very rarely can get out of the house due
> > to the store lighting in most places makes my vertigo much worse.
> > They are doing an MRI tomorrow of my neck and brain, although went
> > through a CT 2 weeks ago and found nothing they are not expecting to
> > find anything on the MRI either however what the heck can one do for
> > the almost constant vertigo? I know this has to be from the virus
> > because prior I would have occasional vertigo with occasional
> > migraines but still functioned. This is just horrible! I am down to
> > only taking 1 advil migraine a day and 1 extra strength Tylenol which
> > is little compared to 800 mg of ibuprofen and 3 Tylenol's a day I
> > used to be on.
> >
> > Any suggestions, ideas please let me know! :)
> > Thanks so much everyone, Huge Hugs,
> > Kimberly :)
> >
> >
> >
> > [The entire original message is not included]
> >
> >




Wed Feb 18, 2009 4:47 pm

gpawarenessfund
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Message #168 of 226 |
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Hello everyone, I am now on 5 weeks out since getting viral meningitis. My fever, chills, sweats and tremors have stopped and for the most part not getting the...
Kimberly
gpawarenessfund
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Feb 17, 2009
12:01 am

I was wondering if you have been tested for lymes disease? The vertigo, hand trembles, meningitis, chills yet your not cold, sweats, and constant headaches. I...
Jackie
jackie_yahhyahh
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Feb 18, 2009
12:21 am

Oh yeah and my dr infectious disease dr. States to me that it can take anywhere from 2 years to 15 years to remotely feel normal. ... From: Kimberly...
Jackie
jackie_yahhyahh
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Feb 18, 2009
12:40 am

I've had it 3 times this past year and its definitely was still bad at 5 weeks. I still get headaches and it's now 9 months later. I had the tremor but no...
Diane Goodman-Daniel
mizbusiness1
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Feb 18, 2009
2:38 am

Thanks Diane for the info, I have not been tested for Lyme disease but can tell you I now have ear aches in both ears and ear pain that comes on. They did the...
kstegman@...
gpawarenessfund
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Feb 18, 2009
5:01 pm

WHATTTTTTTTTTTT~ that long! I thought 6 months to a year was long from Post Meningitis symptoms!!!!! :( Huge Hugs, Kimberly :)...
kstegman@...
gpawarenessfund
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Feb 18, 2009
5:01 pm

Not sure if yours is related but I had a similar experience along with continued headaches weeks after I was discharged from the hospital. It turned out that...
Ranajit
rnevatia
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Feb 22, 2009
1:25 am

I did get checked for that and turned out ok, they said it is post meningitis symptoms and common, as well can last months, I never heard of years till I...
kstegman@...
gpawarenessfund
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Feb 22, 2009
1:58 am

LAY OFF THE IBUPROFEN!!!!! THIS IS NOT GOOD FOR MENINGITIS!! It makes it worse! I almost killed myself with ibuprofen as I was misdiagnosed the first time and...
philip_maas
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Aug 4, 2009
1:27 pm

Hi Kimberly, I read your post and felt like I was looking at myself all over a gain. I got Viral miningitis 3 and a half years ago and it was just like your ...
mert_cfs@...
mert_cfs...
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Aug 4, 2009
2:41 pm

My bacterial meningitis was 4 years ago. I still get terrible headaches and my balance is not good at all. I am in a wheelchair and do not drive, either. I...
Eileen
erscott48
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Aug 4, 2009
2:46 pm

Kimberly, one more bit of advice, Ibuprofen and tylenol are very ineffective for this kind of pain plus they can damage your liver, ask your doctor if he will...
Merrila Kowacich
mert_cfs...
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Aug 4, 2009
2:45 pm
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