From: cph72 <lbstadler@...>
Subject: [PostmeningitisHeadache] Re: a question for you...
To: PostmeningitisHeadache@yahoogroups.com
Date: Monday, October 20, 2008, 2:31 PM

Thanks Shelly for all of your words. You said a lot in a little
amount of space. I have been suffering from this for 4.5 years and
can understand everything you are saying perfectly. You are right on
the money. One thing that I really struggle with is depression. I try
to keep an even keel with everything (diet, exercise, stress, rest,
etc.), but I tend to get down just about every day because of this
heavy burden. I suppose prayer and keeping optimistic can help but
any words you have on this aspect would be much appreciated. I've
already lost so much and it just seems harder and harder to keep
going when I feel so limited. Everything has an effect, even the good
stuff.

All ideas welcome.

Cheers,
Laura

--- In PostmeningitisHeada che@yahoogroups. com, "shellhillel"
<shellyhillel@ ...> wrote:
>
> It's been two decades since I was sick. I suggest balanced rest and
> activity. Not too much of either. Drink lots of clear liquids. Walk.
> Get lots of cranial sacral work from a GOOD practitioner. Very
> expensive. I'll get a name for someone in your area if you email me
> with a request. I get work done from one of the best instructors in
> the country. Use small amounts of medication. Keep the pain
controlled
> so it doesn't set in a pattern. The pattern tends to not ever leave,
> so you need to control it from the outset. Get good sleep, don't
over
> stress yourself. Keep balance in your life. Don' chase a lot of
> doctors. They don't know anything about post meningitis syndrome. Do
> tai chi, yoga, etc. Keep moving and stretch your body gently,
focusing
> on your spine. Don't over take tylenol, etc. It's probably a
> management thing, not a fixable thing. They can't see it so they
can't
> fix it. It's also probably in your brain/surrounding your brain and
> spine. Too dangerous to touch. I'll help you if I can.
>
> Shel
>
> --- In PostmeningitisHeada che@yahoogroups. com, "lauraootb"
> <lauraootb@> wrote:
> >
> > I'm new here and wondering if you can advise me... i got viral
> > meningitis in early august and after a week in hospital i
recovered
> > slowly. I thought i was better in the last 2 ish weeks but
yesterday
> > from the early hours i was crippled with a headache 9/10
accompanied
> > with vomiting. It subsided after taking morphine type tabs i was
given
> > on discharge from the hospital (i had to wait until my dad called
to
> > see me as i cudnt get out of bed even...). It left me
dazed,feeling
> > ill, slow and useless for the day and for half of today. I had 3
such
> > days after my discharge from the hospital but i thought i was
better. I
> > was discharged from the neurologist last wednesday after i told
them i
> > was fine!!My question to you is should i go to my gp about this
or do i
> > just hope it goes away??...
> >
>