Porph Group is for individuals seeking information on Porphyria. Our specific focus is on education and support. We are not medical professionals, therefore any suggestions that are discussed here should be reviewed with your medical doctor.

Our membership is made up of individuals that either have Porphyria or are caregivers to Porphyria patients. We are committed to managing our Porphyria so that we can improve our quality of life. We do this by learning as much as possible about the disease and sharing that information with others. Our commitment to health is our mission.

We offer an email support and education group dedicated to helping you manage your Porphyria. Our files section provides our members with information on on various aspects of managing Porphyria. Our links section connects you to hundreds of Porphyria medical sites and lists the most up to date medical research available on the web.

It is important to remember that what works for one may not work for another. We encourage you to always seek medical advice before trying any new protocols. Open communication with your physician is important in developing effective treatment protocols. We can not nor will we be held responsible for any injury as a result of information obtained and used here.

Welcome to your new home. . .

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