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Messages 1456 - 1485 of 1485   Oldest  |  < Older  |  Newer >  |  Newest
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1456
I can't say much about the feeding since we haven't done it, but 18 months for services like OT and PT is not acceptable in my mind. I think Ben was only 6...
Heather Edgar
h_m_edgar
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Jun 30, 2009
3:52 pm
1457
Hey Heather! Its not that we don't have O/T and P/T, we do, and they were good at getting it to us right away.  I'm just grumbling.  I just get frustrated at...
Karen Smith
karen_7lee
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Jun 30, 2009
4:54 pm
1458
Hi Karen Can you experiment with the rate which the pump delivers the formula?  We eventually got Ross's feeds down to 35 minutes 4 times a day, but we had...
caroline phillipson
csphillipson
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Jun 30, 2009
5:28 pm
1459
Hayden just started a new medicine and I didn´t realize it didn´t disolve into small enough particles to go down his NG tube until it was too late. Now his...
kiteleyst
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Jun 30, 2009
5:54 pm
1460
Unfortunately, I think you have to remove it. You could try warm water? Anne Park Hopkins Korn Ferry International 404.222.4055 office 404.388.2442 mobile ... ...
Anne Park Hopkins
aphopki
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Jun 30, 2009
6:24 pm
1461
Sorry Tracey, from what I know the only safe thing to do if you can't move anything with a syringe, is to remove it! That's partly too because you have to be...
Karen Smith
karen_7lee
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Jun 30, 2009
8:16 pm
1462
EIGHTEEN MONTHS? Sam started receiving public services through the early intervention program here when he was 5 months old, and we started private therapy as...
Shannon Butalla
dbsamsmom
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Jun 30, 2009
8:41 pm
1463
Karen Nickolaus eats from 6-7am, 11-12pm, 4-5pm and 9-10 pm. He gets 360ml per feeding. we did the night feedings with him, but found out that he does not...
shawnee bear
shawneebear1
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Jun 30, 2009
8:48 pm
1464
Tracey try warm water or apple juice. if that does not work then you will have to remove it. shawnee ________________________________ From: kiteleyst...
shawnee bear
shawneebear1
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Jun 30, 2009
8:49 pm
1465
Thanks Shawnee, Maybe one day Joel will be able to get his whole feeding in a hour.  Using only gravity its hard to get it "right" so we usually end up...
Karen Smith
karen_7lee
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Jul 1, 2009
1:26 am
1466
Another remedy for clogged G/tubes is either coca-cola, or sometimes coffee.. however, i've had better luck with coke than coffee..  good luck ...
Jean Shearer
mamashearer07
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Jul 1, 2009
2:08 am
1467
Karen, Why can they not give you a pump?  It makes it so much easier to feed them because you set it and then you can have a free moment for yourself to do...
Steve Frank
boycottingha...
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Jul 1, 2009
2:10 am
1468
Hi Tracey We were advised to pour a small amount of Coca Cola down the tube.... Sounds odd but apparently it works. Caroline ________________________________ ...
caroline phillipson
csphillipson
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Jul 1, 2009
8:48 am
1469
karen no problem, i am agreeing with the unsure part. nickolaus is the same way. too fast he gets fussy, too slow he gets bored. we finally got his feeding...
shawnee bear
shawneebear1
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Jul 1, 2009
11:06 am
1470
Thank you everyone so much. I tried again after a couple hours. I used a larger syringe and all my strength to hold a strong suction on it and I could see...
kiteleyst
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Jul 1, 2009
6:06 pm
1471
Hi Cath and Matt, You guys certainly like to have boys. :) Congratulations, I am sure Ethan is looking down from a happy place. Its seems like a lifetime ago...
Franz
frankeile
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Jul 3, 2009
5:58 am
1472
Hi Patty   I can't wait to connect.  I would also love to meet Ana.  I've often wondered what my life will be like with Adult children of IRD...you may give...
Suzanne Collins
collinskidsird
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Jul 3, 2009
10:29 am
1473
Hi Friends, Just a note wishing you all a safe and happy Independence Day weekend if you reside in the US. Sam had his 7th birthday Wednesday, and is doing...
Shannon Butalla
dbsamsmom
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Jul 3, 2009
4:55 pm
1474
SHANNON I think Nebraska would be a great place for the conference, But we also are from Omaha Ne (go Huskers)It is a great place to live and visit and for...
maclean.betty
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Jul 3, 2009
11:25 pm
1475
Hello All!! Happy 4th of July to everyone, and Happy Birthday (late) to Sam!! I have a question for all of you. . . we are on vacation, and Peter has actually...
Anne Park Hopkins
aphopki
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Jul 4, 2009
12:37 pm
1476
Ana did the same thing when she was younger. In fact, for the first 6 or 7 years, she spiked a fever every year on her birthday! When we were visiting NY for...
Patty DelSorbo
rosarymkr58
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Jul 4, 2009
12:59 pm
1477
Thank you so much, Patty! That is so helpful to know! Anne Park Hopkins Korn Ferry International 404.222.4055 office 404.388.2442 mobile ... From:...
Anne Park Hopkins
aphopki
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Jul 4, 2009
1:42 pm
1478
Did you ever have his adrenals checked? The only time in Sam's life he has ever spiked a fever is Christmas last year. His endocrinologist & Dr. Rizzo both...
Shannon Butalla
dbsamsmom
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Jul 4, 2009
2:06 pm
1479
Congratulations to you Cath and Matt! The Nguyens ________________________________ From: Cath Bowden and Matt Tulloch <matttulloch@...> To:...
Huy Nguyen
huy_ya
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Jul 4, 2009
2:57 pm
1480
Congratulations Cath and Matt! We too went the natural route after having our son pass away from ZS. We did a CVS test at about 11 weeks and found out that we...
flgatorgirl18
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Jul 4, 2009
2:57 pm
1481
Congratulations to the Colberts! The Nguyens ________________________________ From: flgatorgirl18 <marshaoc@...> To:...
Huy Nguyen
huy_ya
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Jul 4, 2009
3:13 pm
1482
Ben hardly had a fever in his whole life. He has to be super sick to get one Griffin on the other hand, seems to get fevers quite easily even if he's not that...
Heather Edgar
h_m_edgar
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Jul 4, 2009
3:30 pm
1483
Congratulations Cath and Matt and Marsha Colbert and family!!! We did the testing on Leah and they have determined the mutations, but are undecided if we want...
Stoltz, Jacquie
j_l_schafer
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Jul 4, 2009
3:39 pm
1484
Anne, I would agree with Patty. I haven't had this problem with Hayden, but I have had it several times with my other son Gabe. He will develop a fever for...
kiteleyst
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Jul 5, 2009
12:51 am
1485
I tried to send birthday ecard many times since early morning today, but I do not know why it did not show up. However, I want to send this email again: Happy...
Huy Nguyen
huy_ya
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Jul 5, 2009
2:08 am
Messages 1456 - 1485 of 1485   Oldest  |  < Older  |  Newer >  |  Newest
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