Our Dr. put Peyton on hydrocortisone pills to kick start her adrynal glands into
helping her recover from colds or stressful situations w/out her body having to
work so hard to do it.

--- In Peroxisomal_Disorders@yahoogroups.com, Karen Smith <karen_7lee@...>
wrote:
>
> We brought Joel in today to get him checked out because of a fever once
again.  The results of the bloodwork again showed a "mild infection" somewhere
they were unable to pinpoint cause the counts were so low and general.
>  
> Man, am I sick of that.  Has anyone else had this happen to their child?  I
don't understand how a "mild" infection gives him a fever of 39.5 or higher
(without the motrin) for 2 days.  Is that normal??  I would have thought a low
grade fever that wouldn't go away would be more typical for a "mild" infection
where white blood cell counts were not that high??  Or maybe I don't know
something?
>  
> The doctor was all unconcerned and saying how kids typically got a lot of bugs
at this age and it was normal for them to get quite a few flus and etc.  Maybe
Caeden was just abnormally healthy, but he never got fevers all the time like
this, it was usually a runny nose and sniffles.  Plus, several times now it had
been an infection of some kind.  I think this is the fourth time we have been on
antibiotics since June, the last fever did not come with elevated white blood
cells, so we got Tamiflu sent home with us instead.
>  
> Why oh why does my child have to be so WEEEIIRD.   I don't really mean that,
as I adore my little guy, but I wish if God were going to give me the
responsibility of caring for him, He would have sent along an instruction
booklet.
>  
> Right now I am constantly either feeling like I am not being proactive enough,
taking him in to the doctor soon enough, etc. or else feeling like I am
overreacting.  In fact, the doctor this time did not even worry about ferbile
seizures as she said they were usually brief and did no damage, unless they
became prolonged. 
>  
> That also gets me.  They have no idea how unclear they are sometimes. 
Prolonged in what way??  In that one episode lasts longer than 5 mins?  In that
there are many little "ticks" and movements within an hour?  In that strange
movements are repeat many times in 10 mins??
>  
> Well, if anyone can help, that would be great.
>  
> And, Sarah, I hope you know that you and your  family are in my prayers
tonight.  I have been thinking of you all day long and I hope it all goes well
for you to get in to see a neurologist right away.  I wish so much you were
closer, and I'd come over and we could cry together and just sit and hang out
quietly.  I am very much hoping that Dr. Raymond can also give you some hope
that Jordan may regain some of what he has lost...
>  
> We love you!
> Karen
>
>
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