This group has been established to support families with children affected by a Peroxisomal Biogenesis Disorder. The primary disease spectrum of the children in this group is The Zellweger's Spectrum of Disorders. The Zellweger's Spectrum includes Infantile Refsum Disease (IRD), Neonatal Adrenoleukodystrophy (NALD), and Zellweger Syndrome.
Hello again, and Happy New Year!  Just thought I'd send a little update about Joel. He still seems to be doing very still, as far as being playful and
Hi Jim, I didnt even concider that i will certainly give it a try. I always bath at night as i feel it gives him a clue like routine to let him no that its
Great information, AP & Sarah, Maybe I need to try a new Probiotic. I’ll check on the Florastor. Has anyone tried Align? We have tried others through our
Shannon I dont know if this will help you at all but Jordan always seems to be the consitpated type to. However when we use to have problems from antibiotics
Shannon, Peter has always had runny type poop that is not solid and seemingly not digested. It has streaks,etc in it? we test for blood about once a week. ..