This group has been established to support families with children affected by a Peroxisomal Biogenesis Disorder. The primary disease spectrum of the children in this group is The Zellweger's Spectrum of Disorders. The Zellweger's Spectrum includes Infantile Refsum Disease (IRD), Neonatal Adrenoleukodystrophy (NALD), and Zellweger Syndrome.
Shannon, Thank you so much for all of this information. I am just going to start hitting this head on. I don't want to miss anything for Nickolaus. I want him