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Peroxisomal_Disorders · Family Support for Peroxisomal Disorders

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Description

This group has been established to support families with children affected by a Peroxisomal Biogenesis Disorder. The primary disease spectrum of the children in this group is The Zellweger's Spectrum of Disorders. The Zellweger's Spectrum includes Infantile Refsum Disease (IRD), Neonatal Adrenoleukodystrophy (NALD), and Zellweger Syndrome.

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Joel update
Hello again, and Happy New Year!   Just thought I'd send a little update about Joel.  He still seems to be doing very still, as far as being playful and
Posted - Fri Jan 1, 2010 7:50 pm
Karen Smith
karen_7lee
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Re: Christmas!
Hi Jim, I didnt even concider that i will certainly give it a try. I always bath at night as i feel it gives him a clue like routine to let him no that its
Posted - Fri Jan 1, 2010 7:18 pm
Rudi Gracie
rudigracie
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Re: POOP
Great information, AP & Sarah, Maybe I need to try a new Probiotic. I’ll check on the Florastor. Has anyone tried Align? We have tried others through our
Posted - Thu Dec 31, 2009 6:35 pm
Shannon
dbsamsmom
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Re: POOP
Shannon I dont know if this will help you at all but Jordan always seems to be the consitpated type to. However when we use to have problems from antibiotics
Posted - Thu Dec 31, 2009 4:40 pm
Sarah Ray
sarahray_06
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Re: POOP
Shannon, Peter has always had runny type poop that is not solid and seemingly not digested. It has streaks,etc in it? we test for blood about once a week. ..
Posted - Thu Dec 31, 2009 4:14 pm
Anne Park Hopkins
aphopki
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2010 2
2009 77 75 108 189 108 160 121 128 82 108 183 128
2008 52 72 125 57 57 71 57 58 67 50 53 23
2007 2
2006 6

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