This has been a long term problem. I am reaching the end of my limits. There are days when if not for my son in my life I don't know how I would go on. It is...
I've been through this "next drug" list. In fact my enwest doctor has a chart on his wall. A number of the anti-seizure drugs have off lable effects that seem ...
hello everyone, I am at this point just trying to find out what is wrong with me. I was hit by a car 3 yrs. ago, lost everything since then basically a hit...
is there a test for this? I had a test for rsd........ i didn't have that, but I like so many of us, am trying to find out WHAT I do have. So again is...
I understand your anger and your confusion. What tests have you been given? What methods have been tried. I've been through a large number of them, so if I...
Hi Group, I joined this group about a month ago and now I can see that no one posts much to it at all. I do know that groups fall into disuse and that is...
Hi there, Yes there is a real nice group. Please don't be thrown if we seem off topic sometimes but it helps us deal with our daily ills. :) Here's the...
Hi All, My significant other has PN and has twice lost control of her car. She is undergoing medical tests to determine why but I suspect she put her foot on...
Hi everyone! My name is Eileen. I have significant PN in the lower extremities. Other than that, I don't understand too much about what is going on with me....
Hi Eileen, I have had PN for the past two years. After a summer of testings and finding out NO CAUSE, I did find out what I didn't have. I'm currently taking...
Hi Audry! I would highly recommend you see your regular doctor, and if she thinks a nuerologist could help, she or he would refer you to them. Its important...
I go to a neurologist..she has helped me a lot..she is one who takes her time..really talks to you..she wanted to change my medicine because of some ...
Hooray! We finally discovered why I have PN. It's a combination of celiac sprue and "hypermobility syndrome". What the hypermobility syndrome is due to is...
You are right, it's hard to find a doctor that spends time with you trying to resolve your problems. I had such a rough time getting PN diagnosed. Medication...
Congratulations on finding our what is causing your PM. Haven't heard of your symptoms before. I'm so happy for you and hope that you continue to feel...
Hi friends, I haven't yet tried it, but found this article on E-mailing your doctor in the magazine For Women First (Aug 11, 2003, p. 94). It says "log on to...
Does anyone have the diabetic amyotrophy too? This is what I have in addition to the diabetic neuropathy. I think the one thing that has bothered me a lot is...
Does anybody have burning pains throughout the whole body, like it may start in the legs and feet and progress to the upper part, then to top it off, the head...
I have diabetic neuropathy and amyotrophy..the amyotrophy starts around the lower back hips..goes down the leg..I am not sure where else it can go but it did...
I haven't heard of the one you are talking about, but I am aware of it. I just joined as someone suggested it cause of my burning pains etc and numbness. I...
I am getting the regular Social Security. You can get reduced benefits at 62. I am upset with my hubby though and I say well I should have known this is what...
When I wake up in the morning it's almost non-existent. As the day progresses, it gets worse and worse. The next day the cycle repeats. It's symetrical in...
I'm fairly new to this support system. My symptoms are worse in the morning, getting me up as early as 4:00-5.00, etc. My feet and legs are my main problem...
Study after study have shown that vitamin B6, even at 50 mg can cause toxicity resulting in PN. Due to stupidity on the part of MD's & myself I was in the...
When I come home in evening my feet are killing me from PN. When I come home I take my shoes/socks off and walk around barefoot on my carpet. BLESSED RELIEF...
I have diabetic neuropathy and amyotrophy. I went to this neurologist who wanted to do something like an intravenous on me. I forget what they were going to...
I used this Banana Boat green I think Aloe Gel Lotion. I kept it in the refrigerator and swore it helped me so much when I put it on. I thought about it ...
I have a question. I went to the doctor today and told him about a strange thing that is happening to me since my surgery (hysterectomy on 8/8/03). My little...
Hi everyone! I wanted to update and also ask a question. First the update. Still taking 300 mgs of neurontin 4 times a day. I am getting braces for both legs...
What was the Neurotin prescribed for originally? Just curious. We are doing a study on some medications. Can you see your doctor about your worries, some may...