----- Original Message -----

From: A J Burnett

To: Peripheral_Neuropathy@yahoogroups.com

Sent: Wednesday, December 09, 2009 8:06 AM

Subject: [Peripheral_Neuropathy] newest grade test Medical Terminologie

Congratulations...great xmas present, right? Ardith Jane Land-Burnett aka Zainab Khan   Searching: 1. Land, Brock, Hester, Queener, Baker, Webb, Davenport, Rayburn, Jack, Taylor, 2. Crittenden, Bailey, Terry, Carney, Young, Shults, Robertson,Willson, Beckett, 3. Burnett, Darrow, Hunt, Gray, Lindsey/Lindsay, Leatherwood 4. Stephens, , Phillips, Woods, Reynolds, Smith, Bobbit  Turkish proverb: “Ayrilikla olumu cekmisler, ayrilik agir gelmis.” : “They weighed separation and death on the scales, and separation was found to be heavier.” Asalam ale cum: May the Peace and Blessing of God be upon you and yours.

File        : Treatments and drugs.doc
Description : Treatment for Neuropathy

Hi,

I've been away, am jumping on.  Any ideas on the best walking shoe for one with
PN (me), specifically with numb toes/foot?  I'm male, 58, normal arch, walk
daily.  I'm thinking that my current Reebok's may be too tight and need to go up
one shoe size to create a bit more wiggle room.  While I can walk, things start
to get a bit numb after 15-30 minutes, but I keep going on the longer walks. 
Also, the experts say to get a shoe with a wide toe box, makes sense.  And I
learned that one's feet swells as one walks (always try shoes on to buy at the
end of the day for that reason they say) and those with PN need to get a shoe
size a bit larger than his/her dress shoe.  Makes sense also I guess.   New
Balance keeps coming up, as does SAS shoes (very expensive).  Any ideas .. on
"specific" brands and models?   And ideas re: socks specifically for walking? 
I've tried Thorlos, REI merino wool, and Dr. Comfort socks .. all very nice and
toasty while indoors, but perhaps a bit too thick with the walking shoe I'm
thinking.

I appreciate your thoughts, thank you!
Happy holidays,
Terry

----- Original Message -----

From: Suzie Medlock

To: Peripheral_Neuropathy@yahoogroups.com

Sent: Sunday, November 29, 2009 12:50 AM

Subject: Annemie: [Peripheral_Neuropathy] (OT) toetsuitslag van toets 2 Medical Terminology /testresult test 2 Medical Terminologie

All right! Way to go. Congratulations  Big Hugs Suzie    -------Original Message-------   From: Annemie Date: 11/26/2009 7:04:39 Suzie To: Undisclosed-Recipient:, Subject: [Peripheral_Neuropathy] (OT) toetsuitslag van toets 2 Medical Terminology /testresult test 2 Medical Terminologie       Woohooo , ik wil je even laten weten dat ik net het punt heb van de tweede toets , en het is een 7.9 !! dus ik ben heel blijjjjjjjjjjjjjjjjjjjjjj:)))     Woohooo, I wanted to let you know the grade I got for my second test ,it is a 7.9    ( 10 is the highest you can get)!! I am sooooooo happy;))) liefs Annemie

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----- Original Message -----

From: Becky Coelho

To: Peripheral_Neuropathy@yahoogroups.com

Sent: Wednesday, November 25, 2009 4:16 AM

Subject: Re: [Peripheral_Neuropathy] (OT)HOERAAAAAAAAAAAAAAAAAAAAA ( my friend made this for my birthday and I wanted to share )

How nice.  Happy Birthday.

 

----- Original Message -----

From: Annemie

To: Undisclosed-Recipient:;

Sent: Tuesday, November 24, 2009 10:14 PM

Subject: [Peripheral_Neuropathy] (OT)HOERAAAAAAAAAAAAAAAAAAAAA ( my friend made this for my birthday and I wanted to share )

 

 

 

 

 

 

----- Original Message -----

From: Annemie

To: Undisclosed-Recipient:;

Sent: Tuesday, November 24, 2009 10:14 PM

Subject: [Peripheral_Neuropathy] (OT)HOERAAAAAAAAAAAAAAAAAAAAA ( my friend made this for my birthday and I wanted to share )

 

 

 

 

 

 

mschatzkamer,
No I didn't, don't know anything about it.  My mother and I were examined by a
couple of neurologists and went through a bunch of tests.  Some of our tests
were abnormal, suggesting we probably have neuropathy, but nothing pointed to a
cause.  I imagine a pain management course would be quite helpful, but in
addition I would certainly try to find a cause of the neuropathy.  If your
doctors are reluctant to do such a search then I would press them.  You may be
able to save yourself a lot of money by reading online about the various causes
of neuropathy.  For example read here:

Mayo Clinic, Peripheral Neuropathy, Causes
http://tinyurl.com/yzy5t8e

Also here at Medline Plus:
http://tinyurl.com/ywkgr

They make a minor point of mentioning medications under the heading "Exposure to
poisons" but several medications can cause neuropathy, for example some drugs to
treat high blood pressure, AIDS, cancer, see 2nd site above for a long list.

Can you think of anything in your life that changed about the time the
neuropathy symptoms started?
BasicPoke


--- In Peripheral_Neuropathy@yahoogroups.com, "mschatzkamer" <mschatzkamer@...>
wrote:
>
> Did you go to the 3 week pain rehab program? Does that help people to be able
to manage their pain better? Thanks.
>

Did you go to the 3 week pain rehab program? Does that help people to be able to
manage their pain better? Thanks.

--- In Peripheral_Neuropathy@yahoogroups.com, "basicpoke" <basicpoke@...> wrote:
>
> mschatzkamer,
> You need to try to find a cause urgently.  I went to Mayo Clinic in Rochester
for this purpose but they did not find any.  This can be a very difficult
disease and it seems most doctors are not very knowledgeable about it.  My
neurologist told me that this is the best place to go and I believe this.  They
have been studying neuropathy there for over 50 years.  Dr. Peter Dyck did a lot
of pioneering work there in the field.  I can tell you more about the visit
later or you can search in this group, I have explained it before.
> BasicPoke
>
>
> --- In Peripheral_Neuropathy@yahoogroups.com, "mschatzkamer" <mschatzkamer@>
wrote:
> >
> > Hi, I just joined this group and am really glad to have found a forum where
there are others who can really understand what I am going through.
> > Just a little bit about myself ... I'm a 25 year old married woman with two
small children. I began feeling my first symptoms (i.e. tingling in both hands)
back in February 2009. After going through many MRI's, blood work, and other
tests, I was diagnosed with Small Fiber Neuropathy, with an unknown cause. The
symptoms soon spread to my arms, and legs/feet as well, and I began feeling the
sensation of burning in the upper and lower extremities. I have some days that
are a little better, and other days that are much worse, and I feel that I just
cannot live being in pain 24/7.
> > I have difficulty swallowing pills, so the neurologist put me on Neurontin
(liquid). I'm taking a very low dose (2 tsp in the morning and 2 at night). When
I tried increasing my dose, I got severe headaches, so I cannot go any higher. I
tried the lydoderm patch, but it didn't have any effect on my symptoms.
> > I have very little strength, and so doing even slight errands can put me in
a lot of pain. I often feel like all the muscles in my body are hurting. I
really don't know what to else to do to help releive this pain.
> > Is there anyone who is experiencing similar symptoms, with burning pain in
upper and lower extremities, and sometimes in the entire body, and the feeling
of every muscle aching? Have you found a way to get relief?
> > Right now I'm thinking of going to Mayo Clinic's pain rehab program. Have
any of you gone there? Was it helpful?
> >
> > Thanks so much for taking the time to read this.
> >
>

mschatzkamer,
You need to try to find a cause urgently.  I went to Mayo Clinic in Rochester
for this purpose but they did not find any.  This can be a very difficult
disease and it seems most doctors are not very knowledgeable about it.  My
neurologist told me that this is the best place to go and I believe this.  They
have been studying neuropathy there for over 50 years.  Dr. Peter Dyck did a lot
of pioneering work there in the field.  I can tell you more about the visit
later or you can search in this group, I have explained it before.
BasicPoke


--- In Peripheral_Neuropathy@yahoogroups.com, "mschatzkamer" <mschatzkamer@...>
wrote:
>
> Hi, I just joined this group and am really glad to have found a forum where
there are others who can really understand what I am going through.
> Just a little bit about myself ... I'm a 25 year old married woman with two
small children. I began feeling my first symptoms (i.e. tingling in both hands)
back in February 2009. After going through many MRI's, blood work, and other
tests, I was diagnosed with Small Fiber Neuropathy, with an unknown cause. The
symptoms soon spread to my arms, and legs/feet as well, and I began feeling the
sensation of burning in the upper and lower extremities. I have some days that
are a little better, and other days that are much worse, and I feel that I just
cannot live being in pain 24/7.
> I have difficulty swallowing pills, so the neurologist put me on Neurontin
(liquid). I'm taking a very low dose (2 tsp in the morning and 2 at night). When
I tried increasing my dose, I got severe headaches, so I cannot go any higher. I
tried the lydoderm patch, but it didn't have any effect on my symptoms.
> I have very little strength, and so doing even slight errands can put me in a
lot of pain. I often feel like all the muscles in my body are hurting. I really
don't know what to else to do to help releive this pain.
> Is there anyone who is experiencing similar symptoms, with burning pain in
upper and lower extremities, and sometimes in the entire body, and the feeling
of every muscle aching? Have you found a way to get relief?
> Right now I'm thinking of going to Mayo Clinic's pain rehab program. Have any
of you gone there? Was it helpful?
>
> Thanks so much for taking the time to read this.
>

Hi, I just joined this group and am really glad to have found a forum where
there are others who can really understand what I am going through.
Just a little bit about myself ... I'm a 25 year old married woman with two
small children. I began feeling my first symptoms (i.e. tingling in both hands)
back in February 2009. After going through many MRI's, blood work, and other
tests, I was diagnosed with Small Fiber Neuropathy, with an unknown cause. The
symptoms soon spread to my arms, and legs/feet as well, and I began feeling the
sensation of burning in the upper and lower extremities. I have some days that
are a little better, and other days that are much worse, and I feel that I just
cannot live being in pain 24/7.
I have difficulty swallowing pills, so the neurologist put me on Neurontin
(liquid). I'm taking a very low dose (2 tsp in the morning and 2 at night). When
I tried increasing my dose, I got severe headaches, so I cannot go any higher. I
tried the lydoderm patch, but it didn't have any effect on my symptoms.
I have very little strength, and so doing even slight errands can put me in a
lot of pain. I often feel like all the muscles in my body are hurting. I really
don't know what to else to do to help releive this pain.
Is there anyone who is experiencing similar symptoms, with burning pain in upper
and lower extremities, and sometimes in the entire body, and the feeling of
every muscle aching? Have you found a way to get relief?
Right now I'm thinking of going to Mayo Clinic's pain rehab program. Have any of
you gone there? Was it helpful?

Thanks so much for taking the time to read this.

I agree with everything you say. I like to ask questions, you never know what
you may learn.

Dennis

--- In Peripheral_Neuropathy@yahoogroups.com, Dick Rhindress
<dick.rhindress@...> wrote:
>
> Dennis,
>
> Don't get too carried away with the "good news" bit.  This is a casual
> observation by one doctor and a small number of patients (doc wouldn't even
> share a rough count with me).  Plus, I hope you realize that going through
> all of the tests an treatments for prostate cancer involves a whole suite of
> drugs entering our bodies.  My posting was hopeful of discovering others who
> had discovered the same, or perhaps alert others to review their own
> experience to discover an over-looked experience.
>
> That doesn't mean that we are not reasonably confident in our observation,
> but we remain very aware of all the complexities of what our bodies have
> gone through.  It could be something else -- there are many variables and
> not much research going on.  (Note $6 of research money goes to female
> breast cancer vs. $1 for prostate cancer -- even though the incidence rates
> are now slightly higher for men.)
>
> -RcR
>
> You can believe half of what's written on the Internet... mostly.
>
>
> On Sun, Nov 1, 2009 at 4:12 PM, dennis w <den3813@...> wrote:
>
> >
> >
> > This is good news to alot of people. I wonder if your urologist may know is
> > a generic drug, herb or vitamin may be useful in your condtion ? It would be
> > interesting to hear his responce.
> >
> > The best of luck to you.
> >
> > Dennis
> >
> > --- In
Peripheral_Neuropathy@yahoogroups.com<Peripheral_Neuropathy%40yahoogroups.com>,
> > "DickR" <dick.rhindress@> wrote:
> > >
> > > Background: I have peripheral neuropathy in both feet, it derives from
> > MGUS and although I've had it for perhaps 15 years it seems rather stable.
> > In the last year I was diagnosed and had radiation therapy for prostate
> > cancer. I am now in a sexual health and penile rehabilitation program which
> > has me on a low daily dose of Cialis (the ED drug) to improve vascular
> > conditioning.
> > >
> > > The Specifics: I mentioned to my urologist recently that my neuropathy
> > seems to be improving and he asked if the improvement started with the
> > regular dose of Cialis. As best I could recall it did. He commented that he
> > had heard similar report from others in the practice. [I am regaining
> > individual feeling and control of individual toes, and the "messages" (e.g.,
> > heat and cold) which rarely matched reality, are now stable and corect.]
> > >
> > > The questions:
> > > 1) has anyone else had a similar reaction?
> > > 2) does anyone know of any research being done on this effect?
> > >
> > > -RcR
> > >
> >
> >
> >
>