Peripheral_Neuropathy : Messages : 6098-6127 of 6214

Nancy is moving out on the 30th. I was supposed to go with her but her family stopped it. I am very depressed right now. I will even be spending my first Thanksgiving after my mothers death alone, which I do not want to do.

I am also on edge waiting to see if the papers the doctor sends will be strong enough to get me eccepted for the accesible apartment near Nancy. So I am nt doing to great right now.

Sincerely,

Brian A

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

Reply | Forward | Messages in this Topic (2)

#6126

From: "Annemie" <a.rosebay@...>
Date: Mon Oct 5, 2009 10:38 pm
Subject: All Because You Smiled (OT)

solros25

Offline

All Because You Smiled

If at times you feel you want to cry,
And life seems such a trial;

Above the clouds there's a bright blue sky,
So make your tears a smile.
As you travel on life's way,
With its many ups and downs;
Remember its quite true to say,
One smile is worth a dozen frowns.

Among the world's expensive things,
A smile is very cheap;
And when you give a smile away,
You get one back to keep.

Happiness comes at times to all,
But sadness comes unbidden;
And sometimes a few tears must fall,
Among the laughter hidden.

So when friends have sadness on their face,
And troubles around them piled;
The world will seem a better place,
And all because you....

SMILED!

~ Author Unknown ~

"Don't Worry, Be Happy"

#6125

From: brian A <buffalo1850@...>
Date: Sun Oct 4, 2009 12:42 pm
Subject: Re: Going through a hard time

buffalo1850

Offline

Nancy is not retarded, and very smart. She has mild learning disabilities, and cerebal palsy. She has lived on her own for almost 20 years.

Because of her families views of Nancy, they took my name off the accesible apartment we both where to live in. I now can not live with her, but in another apartment in the same building. With my falls in the tub, I need it almost as much.

I now am in the nerve wrecking spot of waiting to see if the papers my doctor fills out will be strong enough to get me on the waiting list. If I am approved, I will live in Nancy's former apartment for six months to a year, which is how long the waiting list is. I will be allowed to visit her, even sleep over a couple nights a week with her, but her brother who thinks my mentality is to high for her, has it so I can not live in the same apartment with her.

Sincerely,

Brian A

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

http://neuropathy. webs.com/

From: Shawna Hall <shawnahall78@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Monday, September 28, 2009 12:06:35 AM
Subject: Re: [Peripheral_Neuropathy] Going through a hard time

Brian,

I am not really sure how all of this works but with Nancy haveing the challenges she does have is it possible to get a social worker assigned to her? Someone that can maybe be an objective 3rd party that is looking out for the best interest of Nancy but doesnt have the nasty mother-inlaw like attidue? Is her mental capacity such that she can take care of her basic needs herself? Dressing, hygein and maybe even basic cooking? Do her parents have any legal rights to make her decisions for her? Power of attorney? Is there someway that you 3 or 4 (you, nancy, her mom, and dad) could possibly seek group counceling to help you and her parents see eye to eye? Is it possible that maybe even you need to speak to a social worker for yourself. Someone that has the resources to help you to find an affordable close to doctors/work place to live? I would deffinatly look into those kind of things. Do you have medicare or medicade? I know that they sometimes offer transportation to people in need to get to doctor apointments or mental health apointments. Is Nancy in speach or occupational therapy? From what I understand about the 2 they could be a great deal of help to her and you especcialy the ocupational therapy. It is not what it sounds like its more along the lines of looking at you as a person and the chalenges you have in your life medicly or mentaly and help you to find easier more efficent ways to do things in your everyday life they also have the knowlage and resources to help to find the tools that might make life a little easier for you unfortunatly My brain is drawing a blank for an example right now but I will do a quick internet search see what I can come up for you!

Ok here is something that I think puts an excelent description on what occupational therapy is. I got it from this website http://en.wikipedia.org/wiki/Occupational_therapy

Occupational Therapy, often abbreviated as "OT", incorporates meaningful and purposeful occupation to enable people with limitations or impairments to participate in everyday life. Occupational therapists work with individuals, families, groups and populations to facilitate health and well-being through engagement or re-engagement in occupation. Occupational therapists are becoming increasingly involved in addressing the impact of social and environmental factors that contribute to exclusion and occupational deprivation.^[1]^[2]

The World Federation of Occupational Therapists defines occupational therapy as a profession concerned with promoting health and well-being through occupation. The primary goal of occupational therapy is to enable people to participate in the activities of everyday life. Occupational therapists achieve this outcome by enhancing the individual's ability to participate, by modifying the environment, adapting the activity to better support participation and/or facilitating physical or mental rehabilitation to maximize functional performance.^[3]

Occupational therapy relies on understanding the importance of an activity to an individual, being able to analyze the physical, mental and social components of the activity, and then adapting the activity, the environment, and/or the person to enable them to resume the activity. Occupational therapists address the question, "Why does this person have difficulties managing his or her daily activities (or occupations) , and what can we adapt to make it possible for him or her to manage better and how will this then impact his or her health and well-being?”

Occupational therapy gives people the "skills for the job of living" necessary for "living life to its fullest."^[4]

Occupational therapy draws from the field of occupational science to provide an evidence base to practice and develop academic and practice links to other related disciplines such as social science and anthropology, and also utilizes a range of generic models to guide the practice of OT.

I hope that something workes out for you!

Shawna

From: brian A <buffalo1850@ yahoo.com>
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Sunday, September 27, 2009 10:08:55 PM
Subject: [Peripheral_ Neuropathy] Going through a hard time

I am going through a hard time.

We got the call to get in an accesible apartment. The bad news is that her family considers Nancy as retarded, and does not want me to live with her anymore. They feel that she can not compete with me verbaly, and I am hurting her communication skills. They are so intimidating to her, she tells me she personaly wants to live with me, but can not tell her family that. They do not want me living with her anymore. I do not have the money to pay full rent, or move. Because of my nerves, I am getting the electrical shocks in my legs, feet, and hands.. They keep me up all night. I can not eat much, or sleep.

Sincerely,

Brian A

buffalo1850@ yahoo.com

Moderator of

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy/

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy_ Sister_Group/

http://groups. yahoo.com/ group/Friends185 0/

#6124

From: "Annemie" <a.rosebay@...>
Date: Wed Sep 30, 2009 5:17 pm
Subject: Little Update Annemie

solros25

Offline

Hi All , ..

I hope that you are doing well as can be , I just thought of sending a little update...

Neuropathy is worse then it ever was , today I even saw a chiropractor and he sayd after examininge me that due to the hypermobility I have in the back he can not help me,.so it is back to fysio again to strengthen the backmuscles , oh and on the 16th of october I am going to see the doc in Maastricht again so we will see what happens next,.. next week on the 7th I will go and continue with school also , so busy times ahead , with that and we the renewal lessons of First Aid too...

Lexi and Macy are doing wonderful , they are such a sunshines , they are really really really sweet and they are content as long as they are with me , even when on the couch they want to ly against me when I sit on the couch ,or even have my arm they can lean to or put their little paws over and that way feel that I am near , this really is doing me good...

I am hanging in there ,just am extremely tired that I have to admit..

liefs and a hug

Annemie

#6123

From: "Annemie" <a.rosebay@...>
Date: Tue Sep 29, 2009 11:58 pm
Subject: For Annemie ( to remember Kyra)

solros25

Offline

I just wanted to share what my best friend made for me to remember Kyra , who passed away 4 years ago , and I still miss her,..

liefs

Annemie

Today, the 29th of September

it is a sad day....

Because on this day 4 years ago little Kyra

had to leave this planet and her dear Mommy Annemie.

The photo you see here has been taken 6 days before her dead.

It was the last time, I saw this sweetheart alive.

Kyra was a great dog, that I loved very much

fortunatley she also loved me.

As I saw Kyra again, the day after, she was laying in basket surounded by flowers.

My dogs could say boodbye to their little friend.

And while Annemie drove the car

I held her basket in my arms.

I never forget our last drive together...

And I never ever forget you my darling Kyra...

A special big hug Annemie

on this hard day for you.

#6122

From: "Annemie" <a.rosebay@...>
Date: Mon Sep 28, 2009 6:37 am
Subject: Re: Going through a hard time

solros25

Offline

I am so sorry to hear this , I do not get why her family butts in the way they do , if she wants to stay and is happy ,what are they putting their nose into the relationship???

They probably are trying to intimidate her because they think they can by doing that run her off of there , but what does happen then???? Did they think of that already? She probably will feel miserable and they have to find a way to make sure she is having another place to live etc , while she really wants to be with you..

I do not think that your and her relationship is any of their business and to say she is retarded is so wrong and so disrespectful , really sad that her family does go about running her life that way...

liefs

Annemie

----- Original Message -----

From: brian A

To: Peripheral_Neuropathy@yahoogroups.com

Sent: Monday, September 28, 2009 4:08 AM

Subject: [Peripheral_Neuropathy] Going through a hard time

I am going through a hard time.

We got the call to get in an accesible apartment. The bad news is that her family considers Nancy as retarded, and does not want me to live with her anymore. They feel that she can not compete with me verbaly, and I am hurting her communication skills. They are so intimidating to her, she tells me she personaly wants to live with me, but can not tell her family that. They do not want me living with her anymore. I do not have the money to pay full rent, or move. Because of my nerves, I am getting the electrical shocks in my legs, feet, and hands. They keep me up all night. I can not eat much, or sleep.

Sincerely,

Brian A

http://neuropathy.webs.com/

buffalo1850@...

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

http://groups.yahoo.com/group/Friends1850/

#6121

From: Shawna Hall <shawnahall78@...>
Date: Mon Sep 28, 2009 4:06 am
Subject: Re: Going through a hard time

shawnahall78

Offline

http://neuropathy. webs.com/

Brian,

Ok here is something that I think puts an excelent description on what occupational therapy is. I got it from this website http://en.wikipedia.org/wiki/Occupational_therapy

Occupational therapy relies on understanding the importance of an activity to an individual, being able to analyze the physical, mental and social components of the activity, and then adapting the activity, the environment, and/or the person to enable them to resume the activity. Occupational therapists address the question, "Why does this person have difficulties managing his or her daily activities (or occupations), and what can we adapt to make it possible for him or her to manage better and how will this then impact his or her health and well-being?”

Occupational therapy gives people the "skills for the job of living" necessary for "living life to its fullest."^[4]

I hope that something workes out for you!

Shawna

From: brian A <buffalo1850@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Sunday, September 27, 2009 10:08:55 PM
Subject: [Peripheral_Neuropathy] Going through a hard time

I am going through a hard time.

Sincerely,

Brian A

buffalo1850@ yahoo.com

Moderator of

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy/

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy_ Sister_Group/

http://groups. yahoo.com/ group/Friends185 0/

#6120

From: brian A <buffalo1850@...>
Date: Mon Sep 28, 2009 3:29 am
Subject: Re: Going through a hard time

buffalo1850

Offline

The problem is Nancy keeps telling them that she can not stand living with me, and plans on moving out without me, to these apartments. I need them now almost as much as she does.

Sincerely,

Brian A

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

From: Becky Coelho <mrsmlbj@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Sunday, September 27, 2009 11:15:18 PM
Subject: Re: [Peripheral_Neuropathy] Going through a hard time

IF she is an adult, she should tell them that she wants you to live with her. Would they rather her live by herself?

I'd say stick by your guns. You help her out.

----- Original Message -----

From: brian A

To: Peripheral_Neuropat hy@yahoogroups. com

Sent: Sunday, September 27, 2009 10:08 PM

Subject: [Peripheral_ Neuropathy] Going through a hard time

I am going through a hard time.

We got the call to get in an accesible apartment. The bad news is that her family considers Nancy as retarded, and does not want me to live with her anymore. They feel that she can not compete with me verbaly, and I am hurting her communication skills. They are so intimidating to her, she tells me she personaly wants to live with me, but can not tell her family that. They do not want me living with her anymore. I do not have the money to pay full rent, or move. Because of my nerves, I am getting the electrical shocks in my legs, feet, and hands. They keep me up all night. I can not eat much, or sleep.

Sincerely,

Brian A

http://neuropathy. webs.com/

buffalo1850@ yahoo.com

Moderator of

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy/

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy_ Sister_Group/

http://groups. yahoo.com/ group/Friends185 0/

#6119

From: "Becky Coelho" <mrsmlbj@...>
Date: Mon Sep 28, 2009 3:15 am
Subject: Re: Going through a hard time

mrsmlbj

Offline

IF she is an adult, she should tell them that she wants you to live with her. Would they rather her live by herself?

I'd say stick by your guns. You help her out.

----- Original Message -----

From: brian A

To: Peripheral_Neuropathy@yahoogroups.com

Sent: Sunday, September 27, 2009 10:08 PM

Subject: [Peripheral_Neuropathy] Going through a hard time

I am going through a hard time.

We got the call to get in an accesible apartment. The bad news is that her family considers Nancy as retarded, and does not want me to live with her anymore. They feel that she can not compete with me verbaly, and I am hurting her communication skills. They are so intimidating to her, she tells me she personaly wants to live with me, but can not tell her family that. They do not want me living with her anymore. I do not have the money to pay full rent, or move. Because of my nerves, I am getting the electrical shocks in my legs, feet, and hands. They keep me up all night. I can not eat much, or sleep.

Sincerely,

Brian A

http://neuropathy.webs.com/

buffalo1850@yahoo.com

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

http://groups.yahoo.com/group/Friends1850/

#6118

From: brian A <buffalo1850@...>
Date: Mon Sep 28, 2009 3:08 am
Subject: Going through a hard time

buffalo1850

Offline

I am going through a hard time.

We got the call to get in an accesible apartment. The bad news is that her family considers Nancy as retarded, and does not want me to live with her anymore. They feel that she can not compete with me verbaly, and I am hurting her communication skills. They are so intimidating to her, she tells me she personaly wants to live with me, but can not tell her family that. They do not want me living with her anymore. I do not have the money to pay full rent, or move. Because of my nerves, I am getting the electrical shocks in my legs, feet, and hands. They keep me up all night. I can not eat much, or sleep.

Sincerely,

Brian A

http://health.groups.yahoo.com/group/Peripheral_Neuropathy/

Moderator of

http://health.groups.yahoo.com/group/Peripheral_Neuropathy_Sister_Group/

#6117

From: "Annemie" <a.rosebay@...>
Date: Thu Sep 24, 2009 7:07 pm
Subject: {Spam?} (OT)cute-puppy-pictures-notice-cat

solros25

Offline

#6116

From: "Annemie" <a.rosebay@...>
Date: Thu Sep 24, 2009 5:16 pm
Subject: (OT) MORNING COFFEE

solros25

Offline

Life Is traveled only once…

Today's Moments becomes Tomorrow’s Memory…

Enjoy Every Moment….Good or Bad…

Because , the Gift of Life is Life itself…

Yesterday is only a dream,
tomorrow only a vision, but today -
we live. If we live as we should,
our yesterdays will be dreams of
happiness, and our tomorrow's will
be visions of hope.
May you experience each day as a sacred gift woven around the heart of wonder.
© Barbara A Bailey

The moment you were born you were faced with the serious, life-threatening challenge of a lack of oxygen. So with only the slightest hesitation you figured out how to breathe, and have been doing so ever since.

A year or so later you had become extremely frustrated at not being able to move quickly from place to place. So you figured out, largely through trial and error, and with incredible persistence, how to walk.

But the people around you didn't understand you very well, and you longed to improve the situation. So you listened very carefully, and learned the subtleties and enormous complexities of language.

It sounds like an empty, high-minded platitude to say that the challenges and frustrations are blessings in disguise. Yet when you look back and think about it, that has been precisely your experience since the day you were born.

Even to this day, the challenges and frustrations continue. Yet you have already overcome some of the most serious, difficult and complicated ones imaginable, and there's every reason to be confident that you'll continue to do so.

The fact is that the challenges have indeed made you stronger, the frustrations have most certainly motivated you to reach ever higher. And as you confidently work your way through each new challenge and frustration, you'll continue to receive the valuable blessings they have to offer.

Ralph Marston

#6115

From: "Wilma Kessler" <wilma40_31@...>
Date: Thu Sep 24, 2009 3:32 pm
Subject: Re: Hello I'm new/Meds

wilma_otobekops

Offline

Hi I am on Percocet 7.5/500, it doesn't stop all the pain but makes it bearable.

I also so have lots of Back pain, nothing seems to help. Have had 3 surgeries, so no more

of them if I can help it.

I am doing pretty well with the neuropathy, it all the other stuff that has hit me this summer.

Thyroid cancer surgery, also had a parathyroid remove. Just got back on Thyroid meds, so hope that will improve how I feel. Then Gall Bladder surgery 3 weeks ago.

I will never feel normal, but hope to be least half normal.

Wilma

FREE Animations for your email - by IncrediMail! Click Here!

#6114

From: "kuky_2008" <kuky_2008@...>
Date: Wed Sep 23, 2009 5:14 pm
Subject: NP and Myofascial Pain

kuky_2008

Offline

I was wondering if any in the group have myofascial pain. It's pain in your
muscle linings. I had NP before MFP but was wondering if NP brought it on.

Any help is appreciated.

Have a blessed day.

#6113

From: "kuky_2008" <kuky_2008@...>
Date: Wed Sep 23, 2009 5:11 pm
Subject: Re: Hello I'm new/Meds

kuky_2008

Offline

Donna, that surely is a cocktail of meds. LOL!
You have to take what you have to take to give you some kind of qualify of life.

Right now I'm on Percocet 10mg/650 and Zoloft for my mayofascial pain and
buldging disc pain. But, it soothes the PN pain. Maybe not as much a Lyrica
would but I'm fixing to go see a neuroligist since my meddicare kicked in. My
meds are prescribed by a pain doc. Maybe morphine would be a better pain killer
for me but I tried it once by a friend and I developped a bad rash. I do get
epidoral done for my back which contains morphine and no rash comes out of it.
So who knows.

Is anyone taking Percocet for their NP?








--- In Peripheral_Neuropathy@yahoogroups.com, Donna <itzmedonna@...> wrote:
>
> Thanks Shawna, believe it or not I have already figured out that I need a
hobby.
> My husband and son in law are making space in the garage for me and my
granddaughter for our rubber stamping.  I told them we need to start on our
Christmas cards or we won't have enought time to get them done.  Our garage is
fixed up like an extra room with air conditioning and very clean so I won't mine
being out there.  I do look forward to this.
> Thanks for thinking of me and writing back.
> Donna
>
>
>
> ________________________________
> From: Shawna Hall <shawnahall78@...>
> To: Peripheral_Neuropathy@yahoogroups.com
> Sent: Thursday, September 17, 2009 7:27:19 PM
> Subject: Re: [Peripheral_Neuropathy] Re: Hello I'm new
>
>
> Donna,
>
> Find a Hobby even if you dont think you will like it you can get some cheap
craft kits for latch hook, crotceh, knitting ect to just try it and see if your
into it.  I had a baby just over 2 years ago and quit my job and started staying
home with him!  And got to the point where Its just to much work or I am to
afraid to drive with him in the car so we spend most days home he watches
cartoons plays outside does his thing and I have started crotcehing!  It took me
1 year with personal theripy and about 4 months of marriage councleing to figure
out that I needed a hobby!  I didnt think I would like the crotceh (I sure have
troubles spelling it) but turns out I love it!!!
>
> Shawna
>
> P.S. can make people cool christmas gifts to!
>
>
>
>
> ________________________________
>  From: Donna <itzmedonna@yahoo. com>
> To: Peripheral_Neuropat hy@yahoogroups. com
> Sent: Thursday, September 17, 2009 10:43:01 AM
> Subject: Re: [Peripheral_ Neuropathy] Re: Hello I'm new
>
>
> Hi Kuky, I was reading your post and thought I could add my 2 cents for you.
> I am on 270mg morphine a day for PN.  I also take 100 mg Nortriptyline, 200 mg
Topamax,
> 300 mg of Lyrica to finish up my cocktail mix.  It works well for me.  That is
if I don't forget
> one of my four scheduled times to take my meds.
> My PN is in my feet and starting to creep up my legs.  This started in May of
2005,
> I have been off work since and my husband doesn't like the idea of me driving
because
> of the amount of morphine.  I feel normal like I can drive fine but he wants
to be safe.
> I am depressed and feel stuck in my room/house.  I was always one to getup and
go when
> ever I wanted, I worked full time so I was out in the work force.  Now I am
here with the tv and pc.
> I never watch daytime tv, I always thought it was kinda of depressing, don't
need any more of that.
> Sorry to ramble on, take care.
> Donna
>
>
>
>
>
> ________________________________
>  From: kuky_2008 <kuky_2008@yahoo. com>
> To: Peripheral_Neuropat hy@yahoogroups. com
> Sent: Thursday, September 17, 2009 7:07:46 AM
> Subject: [Peripheral_ Neuropathy] Re: Hello I'm new
>
>
> Thank you both for replying.
>
> Shawnna,
> thank you for making me aware of the breathing issues. It sure is a scary
thing! At time when falling asleep my breathing gets interrupted and I find
myself catching my breath.
> I always thought it was due to my snoring. I will update my doc on this.
>
> Annemie,
> with NP you have to have something or someone to keep you going. For me it is
my 2 girls ages (13-17. There are days when I'm flaring and there's nothing they
can do but let me rest and be lazy. Other than that I must get up and move.
>
> I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for
my back issues, myofascial pain and sciatic nerve pain.
> I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking
Zoloft 5omg and Ibupofen for inflammation.
>
> I also have controlled high blood pressure.
>
> Are you both taking narcotics of any kind for NP?
> And is it a pain doc prescribing it or a neuro or pcp?
>
> Until later
>
>
> ____________ _________ _________ _________ _________ __
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail. yahoo.com
>

#6112

From: "kuky_2008" <kuky_2008@...>
Date: Wed Sep 23, 2009 5:11 pm
Subject: Re: Hello I'm new/Meds

kuky_2008

Offline

Donna, that surely is a cocktail of meds. LOL!
You have to take what you have to take to give you some kind of qualify of life.

Right now I'm on Percocet 10mg/650 and Zoloft for my mayofascial pain and
buldging disc pain. But, it soothes the PN pain. Maybe not as much a Lyrica
would but I'm fixing to go see a neuroligist since my meddicare kicked in. My
meds are prescribed by a pain doc. Maybe morphine would be a better pain killer
for me but I tried it once by a friend and I developped a bad rash. I do get
epidoral done for my back which contains morphine and no rash comes out of it.
So who knows.

Is anyone taking Percocet for their NP?








--- In Peripheral_Neuropathy@yahoogroups.com, Donna <itzmedonna@...> wrote:
>
> Thanks Shawna, believe it or not I have already figured out that I need a
hobby.
> My husband and son in law are making space in the garage for me and my
granddaughter for our rubber stamping.  I told them we need to start on our
Christmas cards or we won't have enought time to get them done.  Our garage is
fixed up like an extra room with air conditioning and very clean so I won't mine
being out there.  I do look forward to this.
> Thanks for thinking of me and writing back.
> Donna
>
>
>
> ________________________________
> From: Shawna Hall <shawnahall78@...>
> To: Peripheral_Neuropathy@yahoogroups.com
> Sent: Thursday, September 17, 2009 7:27:19 PM
> Subject: Re: [Peripheral_Neuropathy] Re: Hello I'm new
>
>
> Donna,
>
> Find a Hobby even if you dont think you will like it you can get some cheap
craft kits for latch hook, crotceh, knitting ect to just try it and see if your
into it.  I had a baby just over 2 years ago and quit my job and started staying
home with him!  And got to the point where Its just to much work or I am to
afraid to drive with him in the car so we spend most days home he watches
cartoons plays outside does his thing and I have started crotcehing!  It took me
1 year with personal theripy and about 4 months of marriage councleing to figure
out that I needed a hobby!  I didnt think I would like the crotceh (I sure have
troubles spelling it) but turns out I love it!!!
>
> Shawna
>
> P.S. can make people cool christmas gifts to!
>
>
>
>
> ________________________________
>  From: Donna <itzmedonna@yahoo. com>
> To: Peripheral_Neuropat hy@yahoogroups. com
> Sent: Thursday, September 17, 2009 10:43:01 AM
> Subject: Re: [Peripheral_ Neuropathy] Re: Hello I'm new
>
>
> Hi Kuky, I was reading your post and thought I could add my 2 cents for you.
> I am on 270mg morphine a day for PN.  I also take 100 mg Nortriptyline, 200 mg
Topamax,
> 300 mg of Lyrica to finish up my cocktail mix.  It works well for me.  That is
if I don't forget
> one of my four scheduled times to take my meds.
> My PN is in my feet and starting to creep up my legs.  This started in May of
2005,
> I have been off work since and my husband doesn't like the idea of me driving
because
> of the amount of morphine.  I feel normal like I can drive fine but he wants
to be safe.
> I am depressed and feel stuck in my room/house.  I was always one to getup and
go when
> ever I wanted, I worked full time so I was out in the work force.  Now I am
here with the tv and pc.
> I never watch daytime tv, I always thought it was kinda of depressing, don't
need any more of that.
> Sorry to ramble on, take care.
> Donna
>
>
>
>
>
> ________________________________
>  From: kuky_2008 <kuky_2008@yahoo. com>
> To: Peripheral_Neuropat hy@yahoogroups. com
> Sent: Thursday, September 17, 2009 7:07:46 AM
> Subject: [Peripheral_ Neuropathy] Re: Hello I'm new
>
>
> Thank you both for replying.
>
> Shawnna,
> thank you for making me aware of the breathing issues. It sure is a scary
thing! At time when falling asleep my breathing gets interrupted and I find
myself catching my breath.
> I always thought it was due to my snoring. I will update my doc on this.
>
> Annemie,
> with NP you have to have something or someone to keep you going. For me it is
my 2 girls ages (13-17. There are days when I'm flaring and there's nothing they
can do but let me rest and be lazy. Other than that I must get up and move.
>
> I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for
my back issues, myofascial pain and sciatic nerve pain.
> I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking
Zoloft 5omg and Ibupofen for inflammation.
>
> I also have controlled high blood pressure.
>
> Are you both taking narcotics of any kind for NP?
> And is it a pain doc prescribing it or a neuro or pcp?
>
> Until later
>
>
> ____________ _________ _________ _________ _________ __
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail. yahoo.com
>

#6111

From: "basicpoke" <basicpoke@...>
Date: Tue Sep 22, 2009 2:40 am
Subject: Re: Pain relievers

basicpoke

Offline

I get relief from gabapentin (Neurontin), amitriptyline, alpha-lipoic acid, and
evening primrose oil.  The last two are supplements, and although a bit
expensive, I don't believe there are any side effects.  With alpha-lipoic acid I
have found that the brand matters, and I buy Jarrows Alpha-Lipoic Sustain, which
is a timed-release, 300 mg tablets.  I take 600 mg/day ALA and 2600 mg/day EPO.
BasicPoke


--- In Peripheral_Neuropathy@yahoogroups.com, "carl.jones@..." <carl.jones@...>
wrote:
>
> What new pain relievers are being used to treat peripheral neuropathy?  I have
been using both Lyrica and Cymbalta pretty successfully for the last couple of
years.  Lately, however, they don't seem to be as effective as they were
previously.
>
> I'm currently in the process of discontinuing the Cymbalta and starting
Trazodone.  I'm one day into this process so I don't know how it will actually
work out.
>
> Several months ago, I discovered by accident that Hydrocodone actually
provides very good pain relief for my peripheral neuropathy.  My doctors
however, are reluctant to prescribe this for me.  I guess I can understand that,
because it is a known addictive drug.  On the other hand, I am becoming
reconciled to the idea that my pain is not going to get better , and I'm
wondering if it really matters if I become addicted .
>
> What's the feeling of the group?
>

#6110

From: "carl.jones@..." <carl.jones@...>
Date: Mon Sep 21, 2009 2:36 am
Subject: Re: Pain relievers

carl.jones...

Offline

Shawna:

Thanks, I'll check it out.

caj

--- In Peripheral_Neuropathy@yahoogroups.com, Shawna Hall <shawnahall78@...>
wrote:
>
> Carl,
>
> I have been useing this site that tracks my pain the places that I have the
pain and the degree of pain I have.� It also tracks what makes the pain worse
what helps relive the pain and what medications I am on how much I take and how
often I take it.� It also tracks my statifaction with the medications I am
takeing.�� Also tracks any therpy I might be useing example hot bath and when i
need that and how satified I am with that treatment.� Also tracks how the pain
is affecting my life!�� Mood, excercise, normal work, aproximatly 10 differnt
things in life.� Maybe it can be used to convince your dr of what you need!��
Heres the link http://www.reliefinsite.com/
>
> Shawna
>

#6109

From: Shawna Hall <shawnahall78@...>
Date: Sun Sep 20, 2009 2:43 am
Subject: Re: Re: Pain relievers

shawnahall78

Offline

Carl,

I have been useing this site that tracks my pain the places that I have the pain and the degree of pain I have. It also tracks what makes the pain worse what helps relive the pain and what medications I am on how much I take and how often I take it. It also tracks my statifaction with the medications I am takeing. Also tracks any therpy I might be useing example hot bath and when i need that and how satified I am with that treatment. Also tracks how the pain is affecting my life! Mood, excercise, normal work, aproximatly 10 differnt things in life. Maybe it can be used to convince your dr of what you need! Heres the link http://www.reliefinsite.com/

Shawna

From: "carl.jones@..." <carl.jones@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Saturday, September 19, 2009 12:04:05 AM
Subject: [Peripheral_Neuropathy] Re: Pain relievers

Well, I think I am over the worst of the Cymbalta withdrawal. My head still swims some, but it's not nearly as bad as it was initially.

Now I'm working on getting off of the Lyrica. Along with that, I'm coming up to speed on a new medication: Trazadone. I am convinced that (1) the Lyrica is no longer helping me at all; and (2) the Trazadone doesn't seem to be doing very much for me, if anything. I've been on the phone with my neurologist several times and he has quadrupled my initial dose from 50 mg per day to 200 mg per day, and I still have a lot of pain. He seems to be trying everything he can think of except for prescribing Hydrocodone or Percocet.

I will be in his office on Monday, and is my plan that we shall have a long discussion about pain management. Then, if he still will not prescribe one of the afor-mentioned medications that I know to work, I'm going to ask him to refer me to a pain management clinic.

#6108

From: "carl.jones@..." <carl.jones@...>
Date: Sat Sep 19, 2009 5:04 am
Subject: Re: Pain relievers

carl.jones...

Offline

Well, I think I am over the worst of the Cymbalta withdrawal.  My head still
swims some, but it's not nearly as bad as it was initially.

Now I'm working on getting off of the Lyrica.  Along with that, I'm coming up to
speed on a new medication: Trazadone.  I am convinced that (1) the Lyrica is no
longer helping me at all; and (2) the Trazadone doesn't seem to be doing very
much for me, if anything.  I've been on the phone with my neurologist several
times and he has quadrupled my initial dose from 50 mg per day to 200 mg per
day, and I still have a lot of pain.  He seems to be trying everything he can
think of except for prescribing Hydrocodone or Percocet.

I will be in his office on Monday, and is my plan that we shall have a long
discussion about pain management.  Then, if he still will not prescribe one of
the afor-mentioned medications that I know to work, I'm going to ask him to
refer me to a pain management clinic.

#6107

From: Donna <itzmedonna@...>
Date: Fri Sep 18, 2009 3:39 pm
Subject: Re: Re: Hello I'm new

itzmedonna

Offline

Thanks Shawna, believe it or not I have already figured out that I need a hobby.

My husband and son in law are making space in the garage for me and my granddaughter for our rubber stamping. I told them we need to start on our Christmas cards or we won't have enought time to get them done. Our garage is fixed up like an extra room with air conditioning and very clean so I won't mine being out there. I do look forward to this.

Thanks for thinking of me and writing back.

Donna

From: Shawna Hall <shawnahall78@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Thursday, September 17, 2009 7:27:19 PM
Subject: Re: [Peripheral_Neuropathy] Re: Hello I'm new

Donna,

Find a Hobby even if you dont think you will like it you can get some cheap craft kits for latch hook, crotceh, knitting ect to just try it and see if your into it. I had a baby just over 2 years ago and quit my job and started staying home with him! And got to the point where Its just to much work or I am to afraid to drive with him in the car so we spend most days home he watches cartoons plays outside does his thing and I have started crotcehing! It took me 1 year with personal theripy and about 4 months of marriage councleing to figure out that I needed a hobby! I didnt think I would like the crotceh (I sure have troubles spelling it) but turns out I love it!!!

Shawna

P.S. can make people cool christmas gifts to!

From: Donna <itzmedonna@yahoo. com>
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Thursday, September 17, 2009 10:43:01 AM
Subject: Re: [Peripheral_ Neuropathy] Re: Hello I'm new

Hi Kuky, I was reading your post and thought I could add my 2 cents for you.

I am on 270mg morphine a day for PN. I also take 100 mg Nortriptyline, 200 mg Topamax,

300 mg of Lyrica to finish up my cocktail mix. It works well for me. That is if I don't forget

one of my four scheduled times to take my meds.

My PN is in my feet and starting to creep up my legs. This started in May of 2005,

I have been off work since and my husband doesn't like the idea of me driving because

of the amount of morphine. I feel normal like I can drive fine but he wants to be safe.

I am depressed and feel stuck in my room/house. I was always one to getup and go when

ever I wanted, I worked full time so I was out in the work force. Now I am here with the tv and pc.

I never watch daytime tv, I always thought it was kinda of depressing, don't need any more of that.

Sorry to ramble on, take care.

Donna

From: kuky_2008 <kuky_2008@yahoo. com>
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Thursday, September 17, 2009 7:07:46 AM
Subject: [Peripheral_ Neuropathy] Re: Hello I'm new

Thank you both for replying.

Shawnna,
thank you for making me aware of the breathing issues. It sure is a scary thing! At time when falling asleep my breathing gets interrupted and I find myself catching my breath.
I always thought it was due to my snoring. I will update my doc on this.

Annemie,
with NP you have to have something or someone to keep you going. For me it is my 2 girls ages (13-17. There are days when I'm flaring and there's nothing they can do but let me rest and be lazy. Other than that I must get up and move.

I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for my back issues, myofascial pain and sciatic nerve pain.
I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking Zoloft 5omg and Ibupofen for inflammation.

I also have controlled high blood pressure.

Are you both taking narcotics of any kind for NP?
And is it a pain doc prescribing it or a neuro or pcp?

Until later

____________ _________ _________ _________ _________ __
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail. yahoo.com

#6106

From: Shawna Hall <shawnahall78@...>
Date: Fri Sep 18, 2009 2:31 am
Subject: Re: Re: Hello I'm new ****Sleep Apnea****

shawnahall78

Offline

I to have sleep apena have had it since 2005 funny story that was the 1st time I went to see a neurologist for foot pain and when I left still had no clue what was causeing the foot pain but found out I had sleep apnea yippie!!! Well it took a long long time for me to put together in my mind that the drs of arkansas are not total idiots and go back to a dr regarding the foot pain. Any how I have seen medical shows regarding sleep apnea and its incredible the things it can affect! One guy thought he was actualy dieing turned out to be sleep apena! Any how deffinatly worth checking out!

Shawna

From: Megan <Megan_Kowalski-Moore@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Thursday, September 17, 2009 5:30:46 PM
Subject: [Peripheral_Neuropathy] Re: Hello I'm new

Kuky,

When I read through your posting, I thought I should add in a little something to the comments... I have both neuropathic pain covering pretty much my entire right side, and insane GI issues as well. I will be having two feeding tubes put in to address the GI and malnutrition in two weeks and have 3 spinal cord stimulators for the neuropathic pain..

Now, with the breathing issues, this is what really got my attention... (I actually have spent about 30 minutes looking for this post so I could reply. :) )

Have you ever been tested for sleep apnea? My docs did the screening and tests on me, and many of the things that you are mentioning.. . interrupted breathing, gasping for breath, snoring... these are all highly associated with sleep apnea. I turned out to have some mild apnea, but all the same they put me on a CPAP. I have been on mine for 5 weeks now, and I am more fatigued than ever. However, in my particular case, I also have a severe malnutrition issue to incorporate. My PCP said that in my case, after reviewing the data from my CPAP, the machine is doing what it is supposed to do; so my fatigue is most likely nutritional.

However, I would inquire into this screening. They monitor all sorts of things, and any number of things that occur or don't occur during your sleep cycle can have a profound effect on your overall well-being. In my case, my oxygen level dropped below 90% more than 2/3rds of the night and I never went into REM, which is your 'regenerative sleep'. There were some breathing (apneas/hypopneas) here and there too.

I am not at all happy about doing this machine, especially since I haven't seen any sort of improvement. However, I thought it would be something to throw out there for you to consider. Dropping O2 levels, lack of REM, snoring, etc... can not only affect your alertness, but also your ability to deal with pain and stress.

Megan

> From: kuky_2008 <kuky_2008@. ..>
> To: Peripheral_Neuropat hy@yahoogroups. com
> Sent: Thursday, September 17, 2009 7:07:46 AM
> Subject: [Peripheral_ Neuropathy] Re: Hello I'm new
>
>
> Thank you both for replying.
>
> Shawnna,
> thank you for making me aware of the breathing issues. It sure is a scary thing! At time when falling asleep my breathing gets interrupted and I find myself catching my breath.
> I always thought it was due to my snoring. I will update my doc on this.
>
> Annemie,
> with NP you have to have something or someone to keep you going. For me it is my 2 girls ages (13-17. There are days when I'm flaring and there's nothing they can do but let me rest and be lazy. Other than that I must get up and move.
>
> I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for my back issues, myofascial pain and sciatic nerve pain.
> I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking Zoloft 5omg and Ibupofen for inflammation..
>
> I also have controlled high blood pressure.
>
> Are you both taking narcotics of any kind for NP?
> And is it a pain doc prescribing it or a neuro or pcp?
>
> Until later
>

#6105

From: Shawna Hall <shawnahall78@...>
Date: Fri Sep 18, 2009 2:27 am
Subject: Re: Re: Hello I'm new

shawnahall78

Offline

Donna,

Shawna

P.S. can make people cool christmas gifts to!

From: Donna <itzmedonna@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Thursday, September 17, 2009 10:43:01 AM
Subject: Re: [Peripheral_Neuropathy] Re: Hello I'm new

Hi Kuky, I was reading your post and thought I could add my 2 cents for you.

I am on 270mg morphine a day for PN. I also take 100 mg Nortriptyline, 200 mg Topamax,

300 mg of Lyrica to finish up my cocktail mix. It works well for me. That is if I don't forget

one of my four scheduled times to take my meds.

My PN is in my feet and starting to creep up my legs. This started in May of 2005,

I have been off work since and my husband doesn't like the idea of me driving because

of the amount of morphine. I feel normal like I can drive fine but he wants to be safe.

I am depressed and feel stuck in my room/house. I was always one to getup and go when

ever I wanted, I worked full time so I was out in the work force. Now I am here with the tv and pc.

I never watch daytime tv, I always thought it was kinda of depressing, don't need any more of that.

Sorry to ramble on, take care.

Donna

From: kuky_2008 <kuky_2008@yahoo. com>
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Thursday, September 17, 2009 7:07:46 AM
Subject: [Peripheral_ Neuropathy] Re: Hello I'm new

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

#6104

From: "Annemie" <a.rosebay@...>
Date: Thu Sep 17, 2009 11:41 pm
Subject: Re: Re: Hello I'm new

solros25

Offline

i so agree Kuky:)
liefs
Annemie
----- Original Message -----
From: "kuky_2008" <kuky_2008@...>
To: <Peripheral_Neuropathy@yahoogroups.com>
Sent: Thursday, September 17, 2009 3:07 PM
Subject: [Peripheral_Neuropathy] Re: Hello I'm new


> Thank you both for replying.
>
> Shawnna,
> thank you for making me aware of the breathing issues. It sure is a scary
> thing! At time when falling asleep my breathing gets interrupted and I
> find myself catching my breath.
> I always thought it was due to my snoring. I will update my doc on this.
>
> Annemie,
> with NP you have to have something or someone to keep you going. For me it
> is my 2 girls ages (13-17. There are days when I'm flaring and there's
> nothing they can do but let me rest and be lazy. Other than that I must
> get up and move.
>
>
> I have not seen a neuro for awhile but my pcp send me to a pain doc mainly
> for my back issues, myofascial pain and sciatic nerve pain.
> I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking
> Zoloft 5omg and Ibupofen for inflammation.
>
> I also have controlled high blood pressure.
>
> Are you both taking narcotics of any kind for NP?
> And is it a pain doc prescribing it or a neuro or pcp?
>
> Until later
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>

#6103

From: "Megan" <Megan_Kowalski-Moore@...>
Date: Thu Sep 17, 2009 10:30 pm
Subject: Re: Hello I'm new

mekmoore2

Offline

Kuky,

When I read through your posting, I thought I should add in a little something
to the comments...  I have both neuropathic pain covering pretty much my entire
right side, and insane GI issues as well.  I will be having two feeding tubes
put in to address the GI and malnutrition in two weeks and have 3 spinal cord
stimulators for the neuropathic pain.

Now, with the breathing issues, this is what really got my attention...  (I
actually have spent about 30 minutes looking for this post so I could reply.  :)
)

Have you ever been tested for sleep apnea?  My docs did the screening and tests
on me, and many of the things that you are mentioning...  interrupted breathing,
gasping for breath, snoring... these are all highly associated with sleep apnea.
I turned out to have some mild apnea, but all the same they put me on a CPAP.  I
have been on mine for 5 weeks now, and I am more fatigued than ever.  However,
in my particular case, I also have a severe malnutrition issue to incorporate. 
My PCP said that in my case, after reviewing the data from my CPAP, the machine
is doing what it is supposed to do; so my fatigue is most likely nutritional.

However, I would inquire into this screening.  They monitor all sorts of things,
and any number of things that occur or don't occur during your sleep cycle can
have a profound effect on your overall well-being.  In my case, my oxygen level
dropped below 90% more than 2/3rds of the night and I never went into REM, which
is your 'regenerative sleep'.  There were some breathing (apneas/hypopneas) here
and there too.

I am not at all happy about doing this machine, especially since I haven't seen
any sort of improvement.  However, I thought it would be something to throw out
there for you to consider.  Dropping O2 levels, lack of REM, snoring, etc... 
can not only affect your alertness, but also your ability to deal with pain and
stress.

Megan

> From: kuky_2008 <kuky_2008@...>
> To: Peripheral_Neuropathy@yahoogroups.com
> Sent: Thursday, September 17, 2009 7:07:46 AM
> Subject: [Peripheral_Neuropathy] Re: Hello I'm new
>
>
> Thank you both for replying.
>
> Shawnna,
> thank you for making me aware of the breathing issues. It sure is a scary
thing! At time when falling asleep my breathing gets interrupted and I find
myself catching my breath.
> I always thought it was due to my snoring. I will update my doc on this.
>
> Annemie,
> with NP you have to have something or someone to keep you going. For me it is
my 2 girls ages (13-17. There are days when I'm flaring and there's nothing they
can do but let me rest and be lazy. Other than that I must get up and move.
>
> I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for
my back issues, myofascial pain and sciatic nerve pain.
> I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking
Zoloft 5omg and Ibupofen for inflammation.
>
> I also have controlled high blood pressure.
>
> Are you both taking narcotics of any kind for NP?
> And is it a pain doc prescribing it or a neuro or pcp?
>
> Until later
>

#6102

From: "ice_man_2121" <ice_man_2121@...>
Date: Thu Sep 17, 2009 7:54 pm
Subject: Re: Hello I'm new

ice_man_2121

Offline

--- In Peripheral_Neuropathy@yahoogroups.com, "kuky_2008" <kuky_2008@...> wrote:
>
> Hello everyone. I have been reading past post and wanted to introducce myself.
I'm kuky. I was diagnosed with PN in late 2007. I was 33 at the time. I do not
have diabetes, so my neuroligist does not understand why I have it. Earlier in
that year I was battling a rare blood disorder ( TTP)and was given Prednisone
for 3 months. When I was finally off the steroids I started noticing the nerve
pains. So, I believe it was the side affects of the steroids that caused NP for
me.
> I was given Lyrica 75mg and took it for about a year. I stopped due using it
because I felt It wasn't no longer needed after I went a several days without it
and my pain was at a 2 or 3 level.I was on Hydrocodone for my buldging disc so
maybe that is why I felt my neuropathy in my legs were being treated by it and
did not need the Lyrica.
>
> For the past 2 months my NP has increased. Not only in my legs but I feel it
in my arms, fingers, face and in my gums. I don't have the numbness going up but
am experiencing lots of vibration on my feet.
>
> My question to you all is, do you feel nerve pain in your face and gums?
>
> Any response will be greatly appreciated.
>

ice_man_2121:

hey kuky,

I do not have pain from pn in my face and gums like you do, but I am 
experiencing numbness in my face and gums. After all the posts i have read, you
were the only one that said that pn is affecting your face and gums as well.

i didnt know that pn had already worked its magic on my face until one of my
molar rotted away about a year ago (i discovered in the same exact place where
the molar used to be, there was a open abcess. I had to have surgery to fix it
and remove three of my wisdom teeth). the only thing that i experienced was
having this god-aweful taste in my mouth.

#6101

From: Donna <itzmedonna@...>
Date: Thu Sep 17, 2009 3:43 pm
Subject: Re: Re: Hello I'm new

itzmedonna

Offline

Hi Kuky, I was reading your post and thought I could add my 2 cents for you.

I am on 270mg morphine a day for PN. I also take 100 mg Nortriptyline, 200 mg Topamax,

300 mg of Lyrica to finish up my cocktail mix. It works well for me. That is if I don't forget

one of my four scheduled times to take my meds.

My PN is in my feet and starting to creep up my legs. This started in May of 2005,

I have been off work since and my husband doesn't like the idea of me driving because

of the amount of morphine. I feel normal like I can drive fine but he wants to be safe.

I am depressed and feel stuck in my room/house. I was always one to getup and go when

ever I wanted, I worked full time so I was out in the work force. Now I am here with the tv and pc.

I never watch daytime tv, I always thought it was kinda of depressing, don't need any more of that.

Sorry to ramble on, take care.

Donna

From: kuky_2008 <kuky_2008@...>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Thursday, September 17, 2009 7:07:46 AM
Subject: [Peripheral_Neuropathy] Re: Hello I'm new

#6100

From: "kuky_2008" <kuky_2008@...>
Date: Thu Sep 17, 2009 2:07 pm
Subject: Re: Hello I'm new

kuky_2008

Offline

Thank you both for replying.

Shawnna,
thank you for making me aware of the breathing issues. It sure is a scary thing!
At time when falling asleep my breathing gets interrupted and I find myself
catching my breath.
I always thought it was due to my snoring. I will update my doc on this.

Annemie,
with NP you have to have something or someone to keep you going. For me it is my
2 girls ages (13-17. There are days when I'm flaring and there's nothing they
can do but let me rest and be lazy. Other than that I must get up and move.


I have not seen a neuro for awhile but my pcp send me to a pain doc mainly for
my back issues, myofascial pain and sciatic nerve pain.
I'm on 10mg percocet as of today was taking 7.5mg before. Also, am taking Zoloft
5omg and Ibupofen for inflammation.

I also have controlled high blood pressure.

Are you both taking narcotics of any kind for NP?
And is it a pain doc prescribing it or a neuro or pcp?

Until later

#6099

From: "Annemie" <a.rosebay@...>
Date: Thu Sep 17, 2009 9:17 am
Subject: (OT) Kindergarten

solros25

Offline

A kindergarten teacher handed out a coloring page to her class. On it was a picture of a duck holding an umbrella.

The teacher told her class to color the duck in yellow and the umbrella green; however, Bobby, the class rebel, colored the duck in a bright fire truck red.

The teacher asked him, "Bobby, how many times have you see a red duck?"

Young Bobby replied, "The same number of times I've seen a duck holding an umbrella."

#6098

From: "Annemie" <a.rosebay@...>
Date: Thu Sep 17, 2009 9:02 am
Subject: Re: Hello I'm new

solros25

Offline

Hello Kuky
Welcome to the group ,..
No I never have had pain from the NP in my gums ,arms , fingers and face, I
have that pain in my upperlegs and feet (drives me nuts at times ).
I got Cymbalta subscribed and it did work better then the Lyrica did ,..
I was diagnosed in 1997 by the way:(( and I am sorry to say but it has not
gotten better..
At this moment I am not feeling well at all , I do not know where all the
pains and aches come from but I am exhausted ,.. Not giving up though ,
since my two doggies are really my sunshines each day ,.. I love them to
bits..
Oh by the way I am not a diabetic too.
Enjoy your stay here and have a good day.
liefs
Annemie
----- Original Message -----
From: "kuky_2008" <kuky_2008@...>
To: <Peripheral_Neuropathy@yahoogroups.com>
Sent: Thursday, September 17, 2009 3:31 AM
Subject: [Peripheral_Neuropathy] Hello I'm new


> Hello everyone. I have been reading past post and wanted to introducce
> myself. I'm kuky. I was diagnosed with PN in late 2007. I was 33 at the
> time. I do not have diabetes, so my neuroligist does not understand why I
> have it. Earlier in that year I was battling a rare blood disorder (
> TTP)and was given Prednisone for 3 months. When I was finally off the
> steroids I started noticing the nerve pains. So, I believe it was the side
> affects of the steroids that caused NP for me.
> I was given Lyrica 75mg and took it for about a year. I stopped due using
> it because I felt It wasn't no longer needed after I went a several days
> without it and my pain was at a 2 or 3 level.I was on Hydrocodone for my
> buldging disc so maybe that is why I felt my neuropathy in my legs were
> being treated by it and did not need the Lyrica.
>
> For the past 2 months my NP has increased. Not only in my legs but I feel
> it in my arms, fingers, face and in my gums. I don't have the numbness
> going up but am experiencing lots of vibration on my feet.
>
> My question to you all is, do you feel nerve pain in your face and gums?
>
> Any response will be greatly appreciated.
>
>
>
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