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54
hi anybody knows "Giant axonal neuropathy"? Or anybody knows somebody who has this rar illness?? Please tell me rolliman79@......
likewildall
Offline Send Email
Oct 11, 2002
8:49 pm
55
Hi, well, I am new to this group and need all the answers I can get. I have been getting B12 shots once a week now for the past 7 wks. and doesn't seem to make...
beautyandbeasthere
beautyandbea...
Offline Send Email
Oct 24, 2002
3:51 pm
56
... Do you Yahoo!? Yahoo! Mail Plus - Powerful. Affordable. Sign up now...
Virginia Lang
bearsnme1
Offline Send Email
Dec 14, 2002
3:14 pm
57
... Do you Yahoo!? Yahoo! Mail Plus - Powerful. Affordable. Sign up now...
Virginia Lang
bearsnme1
Offline Send Email
Dec 14, 2002
10:08 pm
58
Thank you for the welcome. As requested, here is my intro. My name is Tina, but I also go by Saphira. I sometimes run into several Tina's on a list and this...
Saphira
saphira_rmm
Offline Send Email
Dec 30, 2002
10:37 pm
59
I just got bck from seeing my physiatrist and he is wanting me to try another and the last medication. He had me try Gabitril and it made my blood pressure go...
saphira_rmm <saphira@...
saphira_rmm
Offline Send Email
Jan 3, 2003
7:21 pm
60
Hi, I have peripheral neuropathy and I am in pain all the time and it is getting worse. It started in my feet 3 yrs. ago and now it is up to my knees. I am not...
billygoat50 <billygoa...
billygoat50
Offline Send Email
Jan 9, 2003
5:19 am
61
Hi, I have had peripheral neuropathy for 7 years in my feet. After many tests I still don't know the cause. Two books have been very helpful, "NUMB TOES AND...
Rich Silva
silvarh2000
Offline Send Email
Jan 10, 2003
3:55 am
62
Hello. I am a Diabetic 10 years . Have alot a Pain in my Right Leg.Doctor has me on Neurontin 600mg 4 times a day and > Lidoderm Patch 12 hours on 12 hours...
carmelrea <piw@...>
carmelrea
Offline Send Email
Jan 18, 2003
12:21 pm
63
This has been a long term problem. I am reaching the end of my limits. There are days when if not for my son in my life I don't know how I would go on. It is...
jen_chara <jen_chara@...
jen_chara
Online Now Send Email
Mar 3, 2003
12:22 am
64
I've been through this "next drug" list. In fact my enwest doctor has a chart on his wall. A number of the anti-seizure drugs have off lable effects that seem ...
jen_chara <jen_chara@...
jen_chara
Online Now Send Email
Mar 3, 2003
12:33 am
65
hello everyone, I am at this point just trying to find out what is wrong with me. I was hit by a car 3 yrs. ago, lost everything since then basically a hit...
sandolly77 <sandolly7...
sandolly77
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Mar 4, 2003
4:47 am
66
is there a test for this? I had a test for rsd........ i didn't have that, but I like so many of us, am trying to find out WHAT I do have. So again is...
sandolly77
Offline Send Email
Mar 4, 2003
11:02 pm
67
I understand your anger and your confusion. What tests have you been given? What methods have been tried. I've been through a large number of them, so if I...
jen_chara
Online Now Send Email
Mar 4, 2003
11:55 pm
68
Hi Group, I joined this group about a month ago and now I can see that no one posts much to it at all. I do know that groups fall into disuse and that is...
Darienne&Ed
singingdogs_...
Offline Send Email
May 1, 2003
10:42 am
69
Hi there, Yes there is a real nice group. Please don't be thrown if we seem off topic sometimes but it helps us deal with our daily ills. :) Here's the...
Waltt Vest
wleevest
Offline Send Email
May 1, 2003
6:08 pm
70
Hi All, My significant other has PN and has twice lost control of her car. She is undergoing medical tests to determine why but I suspect she put her foot on...
highlinex
Offline Send Email
Aug 3, 2003
8:41 am
71
Hi everyone! My name is Eileen. I have significant PN in the lower extremities. Other than that, I don't understand too much about what is going on with me....
Eileen
servant123us
Offline Send Email
Aug 5, 2003
11:33 am
72
Hi Eileen, I have had PN for the past two years. After a summer of testings and finding out NO CAUSE, I did find out what I didn't have. I'm currently taking...
audreyhunt33
Offline Send Email
Aug 12, 2003
3:51 pm
73
Hi Audry! I would highly recommend you see your regular doctor, and if she thinks a nuerologist could help, she or he would refer you to them. Its important...
Eileen Hines
servant123us
Offline Send Email
Aug 12, 2003
7:18 pm
74
I go to a neurologist..she has helped me a lot..she is one who takes her time..really talks to you..she wanted to change my medicine because of some ...
SEASIDERS@...
tvvbugg
Offline Send Email
Aug 13, 2003
2:27 pm
75
Hooray! We finally discovered why I have PN. It's a combination of celiac sprue and "hypermobility syndrome". What the hypermobility syndrome is due to is...
Pamela Heath
rogneid
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Aug 13, 2003
5:40 pm
76
You are right, it's hard to find a doctor that spends time with you trying to resolve your problems. I had such a rough time getting PN diagnosed. Medication...
Albert Hunt
audreyhunt33
Offline Send Email
Aug 13, 2003
7:29 pm
77
Congratulations on finding our what is causing your PM. Haven't heard of your symptoms before. I'm so happy for you and hope that you continue to feel...
Albert Hunt
audreyhunt33
Offline Send Email
Aug 13, 2003
7:34 pm
78
Hi friends, I haven't yet tried it, but found this article on E-mailing your doctor in the magazine For Women First (Aug 11, 2003, p. 94). It says "log on to...
R Mc Keeck
carolinpain
Offline Send Email
Aug 14, 2003
2:31 pm
79
Does anyone have the diabetic amyotrophy too? This is what I have in addition to the diabetic neuropathy. I think the one thing that has bothered me a lot is...
SEASIDERS@...
tvvbugg
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Aug 17, 2003
6:56 pm
80
Does anybody have burning pains throughout the whole body, like it may start in the legs and feet and progress to the upper part, then to top it off, the head...
Gaylene
gsmedicine
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Aug 19, 2003
1:05 am
81
I have diabetic neuropathy and amyotrophy..the amyotrophy starts around the lower back hips..goes down the leg..I am not sure where else it can go but it did...
SEASIDERS@...
tvvbugg
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Aug 28, 2003
3:49 pm
82
I haven't heard of the one you are talking about, but I am aware of it. I just joined as someone suggested it cause of my burning pains etc and numbness. I...
Gaylene
gsmedicine
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Aug 29, 2003
5:20 am
83
I am getting the regular Social Security. You can get reduced benefits at 62. I am upset with my hubby though and I say well I should have known this is what...
SEASIDERS@...
tvvbugg
Offline Send Email
Sep 1, 2003
1:56 pm
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