Hi I have been diagnosed with Peripheral neuropathy and was so glad to find Yahoo groups. I also seem to be bombarded with admonitions to walk and vacation...
I am glad you found the Yahoo groups also. There are several on this group that will post occasionally and try to help as I am. You might want to try the...
Hi my name is Marge..I do the web page for our local neuropathy group which regretfully has fallen apart..we were doing so good..!!..we had 60 people there...
to those people newly diagnosed, i recommend the following. other then reading on the web and speaking with others, get in touch with sam grundfast. sam is a...
Dave, Make sure the neurologist is one who specializes in Neuropathy. I live in Memphis and work at the UT Health Science Center where we have someone who is...
Thank you for your reply. My neurontin was upped to 300mg 3 times a day. I truely think my neuroligist knows what he's doing. What can i do for the pain???? It...
thanx for the reply i appreciate it. what can i do for the pain it is excrutiating. i have the neropathy in my hand and feet. i am soo overwhelmed i don't know...
hello my name is judy thanx for welcoming me to the group. Sorry to hear about your hubby. just think that he's in a better place looking down on you. i'm...
help@@ anybody... what can help the burning in my heels?? my next appt w/ my neurologist is not for a while and my heels keep burning. thanks for any ideas....
I really can't give you any suggestions but do now want to ignore you either. My neuropathy started several years ago so there have been many tests and meds....
I remember when I got up for 20 minutes..sat down for 20 minutes..I remember the first time I was able to bend down and actually pick something up off the...
It seems to be different for people..though I had amyotrophy too and it was terrible..I am on 3200 Neurontin a day..trying to get off it or lower it..I have...
hi I just joined and I had a question? The burning (as well as the back of my calves always feeling cold) all the way to my toes is constant. From the knee...
hello all; sadly it took a well meant threat of suicide to get my drs attention. i also ended up on the psch ward for 5 days. ( a truly interesting trip)...
For me I got real bad in June of 2000..I fell first on June 25 and ended up in the ER 2 more times as I was hurting so bad..they at first told me it was ...
I was on the Neurontin 3200 a day..Oxycontin..OxyIR..4 Advil every 4 hours..the sleeping pill..now I am on the Neurontin and have not taken the sleeping pill...
I think you will do a good job to go to the family renunion. Being that you are in your late 40's in my opinion you are a strong person. Be Strong for your...
This is my first posting. I am a 49 year old male who was in good health up until last year. My symptoms started with numbness/tingling/burning in my feet...
My husband has peripheral neuropathy and autoimmune thyroid disease. I was reading about gluten and came across this article. I know I'm grasping at straws,...
Hi and welcome..though I certainly wish you were not here..!.. I wish none of us were here..I have neuropathy and amyotrophy..I got this in 2000..I was ...
i truly understand your feelings. my definitive diagnosis came after 18 months of my primary dr telling me everything was in my head because of chronic...
I first had problems last June. I had problems walking as the numbness would go up my legs. It got so bad that I couldn't walk to the back of the supermarket...
thanx for the welcome even though it's not for something good. I don't feel alone anymore b/c of all the e-mails I've been getting. All these people are so...
hello all, i am in the beginning of applying for SSI benefits. has anyone out there gotten SSI using PN ? any tips anyone has will be greatfully used....