HAS ANYONE EVER HEARD OF GIANT AXONAL NEUROPATHY?
MY AND SISTER AND I CAME ACROSS THIS, AND IT FITS MY SON PERFECTLY.
I ASKED THE REGULAR DOCTOR IF THIS MAY BE WHAT MY SON HAS AND HE SAID
THEIR WAS NO WAY.( THIS WAS THE SAME DOCTOR WHO SAID PHYSICAL THERPY
WOULD NOT HELP MY SON BUT YET IT HAS) IT SAID THIS IS USUALLY DETECTED
IN CHILDREN BETWEEN THE AGES OF 3 AND 6

ANYWAY MY SISTER SENT THE INFORMATION TO THE DOCTOR WE SAW A WHILE
BACK UP AT UAB, HE CALLED AND SAID THIS MAY VERY WELL BE WHAT ALAN
HAS, BUT TO MAKE SURE, THEY WILL NEED TO DO A SKIN BIOSPY OR A NERVE
BIOSPY. HE WILL TALK TO THE PATHOLGY DOCTOR TO FIND OUT WHAT TEST
WOULD BE BEST TO GET THE BETTER RESULTS.THAT WAY ALAN DOES NOT HAVE TO
HAVE ANY UNESSERAY TEST DONE. ACCORDING TO THE DOCTOR THIS IS VERY
RARE. I WAS WONDERING IF ANYONE KNOWS ANYTHING ABOUT IT.ANY
INFORMATION WOULD BE GREAT.THANKS A BUNCH

AMANDA