Side effects are minimal if any.  Some people report that they have trouble sleeping or get headaches.  They just reduce the dose until the side effects go away.  Many people claim it really helps lift their mood.  I think the research shows problematic side effects when you take 300 mg a day of ReVia– so the FDA approved it at 50 mg a day.  You can’t take it while you are taking any kind of narcotic pain killer.  Taking 4.5 mg is really low risk.  I’ll be sure and post here about my dad’s results.  He has tried a number of things which have evidently been very helpful to some people with PN but have done nothing for him – anodyne therapy and IVIg being two that didn’t help him.  It seems like a no brainer to try LDN.

Carol     

-----Original Message-----
From: Peripheral_Neuropathy@yahoogroups.com [mailto:Peripheral_Neuropathy@yahoogroups.com] On Behalf Of rgs555@...
Sent: Tuesday, July 19, 2005 10:23 AM
To: Peripheral_Neuropathy@yahoogroups.com
Subject: Re: [Peripheral_Neuropathy] LDN Therapy (Low Dose Naltrexone)

In a message dated 7/19/05 11:09:53 AM Eastern Daylight Time, cbellon@... writes:

No doctor has recommend LDN for my dad, however, I learned that it is being used a lot with auto immune diseases with a lot of success.   It is said to help regulate the immune system.  Many people with MS who try it rave about the results.  My dad believes that his PN is auto immune related so he wants to try it.  It’s inexpensive because you take such a very lose dose (about 4.5 mg or less) at night.  The drug is approved by the FDA at 50 mg a day for use with helping people get off narcotics.  I think the brand name is Revia.   It’s a prescription drug.  My dad read a book about it called Up A Creek With A Paddle.  It is a story written by a woman whose husband has MS.  Their doctor in NY prescribes it for MS.  They saw incredible results and have tried to get studies done on it for this purpose.  Trouble is that it’s not profitable.  Most doctors do not know about its use with MS or other auto immune diseases.   There is a yahoo group that trades information on it.  They have over 1700 people in the group.  I’ve been trying to find out if anyone has tried it for sensory PN.   No luck so far.  I guess my dad may be one of the first.

 

Carol

  Hi Carol

:

Thank you for explaining more to me about LDN.  It's definitely worth a shot having your dad try it...make sure that you know the side effects (if any).  Please let our group know if it is successful for him.

Best regards,
Stan in Ft Lauderdale